‘We have no services for you… so you have to make the best out of it’: A qualitative study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients’ dissatisfaction with healthcare services

Assessing the impact of patient-involvement healthcare strategies on patients, providers, and the healthcare system: A systematic review

(2023) Thomas Miller et al.   PATIENT EDUCATION AND COUNSELING

Severe and Very Severe Myalgic Encephalopathy/Chronic Fatigue Syndrome ME/CFS in Norway: Symptom Burden and Access to Care

(2023) Kristian Sommerfelt et al.   Journal of Clinical Medicine

A Natural History of Disease Framework for Improving the Prevention, Management, and Research on Post-viral Fatigue Syndrome and Other Forms of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

(2022) Shennae O'Boyle et al.   Frontiers in Medicine

Estimert insidens av kronisk utmattelsessyndrom/myalgisk encefalopati i Norge mellom 2016-2018

(2022) Geir Haakon Hilland et al.   Nordisk Tidsskrift for Helseforskning

The circuit of symbolic violence in chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) (I): A preliminary study

(2021) Xavier Gimeno Torrent   Health Care for Women International

How do street‐level bureaucrats manage high workloads? Collegial mechanisms at the organisational level—experiences from public healthcare organisations

(2021) Johan Berlin et al.   European Management Review

Factors related to educational adaptations and social life at school experienced by young people with CFS/ME: a qualitative study

(2021) Wenche Ann Similä et al.   BMJ Open

Conceptual and design thinking for thematic analysis.

(2021) Virginia Braun et al.   Qualitative Psychology

How might patient involvement in healthcare quality improvement efforts work—A realist literature review

(2019) Carolina Bergerum et al.   HEALTH EXPECTATIONS

Uncertainty in health care: Towards a more systematic program of research

(2019) Paul K.J. Han et al.   PATIENT EDUCATION AND COUNSELING

Myalgic encephalomyelitis/chronic fatigue syndrome and the biopsychosocial model: a review of patient harm and distress in the medical encounter

(2018) Keith J. Geraghty et al.   DISABILITY AND REHABILITATION

Are ME/CFS Patient Organizations “Militant”?

(2018) Charlotte Blease et al.   Journal of Bioethical Inquiry

How to practice person-centred care: A conceptual framework

(2017) Maria J. Santana et al.   HEALTH EXPECTATIONS

Children's experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review and meta-ethnography of qualitative studies

(2017) Roxanne M Parslow et al.   BMJ Open

Experiences of general practitioner continuity among women with chronic fatigue syndrome/myalgic encephalomyelitis: a cross-sectional study

(2016) Anne Helen Hansen et al.   BMC HEALTH SERVICES RESEARCH

Epistemic injustice in healthcare encounters: evidence from chronic fatigue syndrome

(2016) Charlotte Blease et al.   JOURNAL OF MEDICAL ETHICS

How do women with chronic fatigue syndrome/myalgic encephalomyelitis rate quality and coordination of healthcare services? A cross-sectional study

(2016) Anne Helen Hansen et al.   BMJ Open

National Institutes of Health Pathways to Prevention Workshop: Advancing the Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

(2015) Carmen R. Green et al.   ANNALS OF INTERNAL MEDICINE

Overcoming the barriers to the diagnosis and management of chronic fatigue syndrome/ME in primary care: a meta synthesis of qualitative studies

(2014) Kerin Bayliss et al.   BMC Family Practice

‘Sometimes it feels as if the world goes on without me’: adolescents' experiences of living with chronic fatigue syndrome

(2013) Anette Winger et al.   JOURNAL OF CLINICAL NURSING

The Patient Experience and Health Outcomes

(2012) Matthew P. Manary et al.   NEW ENGLAND JOURNAL OF MEDICINE

A review and meta-synthesis of qualitative studies on Myalgic Encephalomyelitis/chronic fatigue syndrome

(2011) Valerie R. Anderson et al.   PATIENT EDUCATION AND COUNSELING

Using Multiple Sources of Knowledge to Reach Clinical Understanding of Chronic Fatigue Syndrome

(2008) C. A. Chew-Graham et al.   ANNALS OF FAMILY MEDICINE

Obstructions for quality care experienced by patients with chronic fatigue syndrome (CFS)—A case study

(2008) Ann Marit Gilje et al.   PATIENT EDUCATION AND COUNSELING