Psychologisch geleitete Gruppentreffen für Angehörige von ALS-Patient*innen

Psychoeducational groups for people with Amyotrophic Lateral Sclerosis and their caregiver: a qualitative study

(2022) Vittoria Anita Bilenchi et al.   NEUROLOGICAL SCIENCES

Caregivers’ View of Socio-Medical Care in the Terminal Phase of Amyotrophic Lateral Sclerosis—How Can We Improve Holistic Care in ALS?

(2022) Katharina Linse et al.   Journal of Clinical Medicine

Informal Caregiving in Amyotrophic Lateral Sclerosis (ALS): A High Caregiver Burden and Drastic Consequences on Caregivers’ Lives

(2021) Pavel Schischlevskij et al.   Brain Sciences

A Systematic Review of Caregiver Coping Strategies in Amyotrophic Lateral Sclerosis and Frontotemporal Dementia

(2021) Jashelle Caga et al.   JOURNAL OF GERIATRIC PSYCHIATRY AND NEUROLOGY

Support Needs and Interventions for Family Caregivers of Patients with Amyotrophic Lateral Sclerosis (ALS): A Narrative Review with Report of Telemedicine Experiences at the Time of COVID-19 Pandemic

(2021) Giulia D’Alvano et al.   Brain Sciences

Bereavement and Support Experiences of Informal Caregivers of Persons with Amyotrophic Lateral Sclerosis: A Qualitative Study

(2021) Christopher Poppe et al.   Journal of Social Work in End-of-Life & Palliative Care

Blended psychosocial support for partners of patients with ALS and PMA: results of a randomized controlled trial

(2020) Jessica De Wit et al.   Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Palliative care, evidence, and ALS: The baby and the bathwater

(2020) James M. Gordon et al.   NEUROLOGY

Individual quality of life in spousal ALS patient-caregiver dyads

(2020) Miriam Galvin et al.   Health and Quality of Life Outcomes

Psychological distress and coping styles of caregivers of patients with amyotrophic lateral sclerosis: a longitudinal study

(2019) Jessica de Wit et al.   Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Provision of assistive technology devices among people with ALS in Germany: a platform-case management approach

(2018) Andreas Funke et al.   Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Caregiver burden in amyotrophic lateral sclerosis: A systematic review

(2017) Jessica de Wit et al.   PALLIATIVE MEDICINE

A self-care, problem-solving and mindfulness intervention for informal caregivers of people with motor neurone disease: A pilot study

(2017) Anna Ugalde et al.   PALLIATIVE MEDICINE

Decision-making among patients and their family in ALS care: a review

(2017) Geraldine Foley et al.   Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Coping strategies and psychological distress in caregivers of patients with Amyotrophic Lateral Sclerosis (ALS)

(2017) Mattia Siciliano et al.   Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

“A monster that lives in our lives”: experiences of caregivers of people with motor neuron disease and identifying avenues for support: Table 1

(2016) Nicole Hennessy Anderson et al.   BMJ Supportive & Palliative Care

Validation of the German version of the extended ALS functional rating scale as a patient-reported outcome measure

(2013) Susanne Abdulla et al.   JOURNAL OF NEUROLOGY

Global Epidemiology of Amyotrophic Lateral Sclerosis: A Systematic Review of the Published Literature

(2013) A. Chiò et al.   NEUROEPIDEMIOLOGY

What are the roles of carers in decision-making for amyotrophic lateral sclerosis multidisciplinary care?

(2013) Anne Hogden et al.   Patient Preference and Adherence

Attitudes towards hastened death in ALS: A prospective study of patients and family caregivers

(2013) Ralf Stutzki et al.   Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

The need for support services for family carers of people with motor neurone disease (MND): views of current and former family caregivers a qualitative study

(2011) Mary R. O’Brien et al.   DISABILITY AND REHABILITATION

EFNS guidelines on the Clinical Management of Amyotrophic Lateral Sclerosis (MALS) - revised report of an EFNS task force

(2011) et al.   EUROPEAN JOURNAL OF NEUROLOGY

Incidence of amyotrophic lateral sclerosis in Europe

(2009) G. Logroscino et al.   JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY

ALS: Family caregiver needs and quality of life

(2008) Mary Tederous Williams et al.   Amyotrophic Lateral Sclerosis