‘It gives me more freedom’: Family perspectives on travelling with children on nocturnal ventilation

The growing complexities with long term ventilated children: A personal perspective

(2023) Eleanor J Turner   Medico-Legal Journal

The perceived impact of Covid-19 pandemic on the children with cerebral palsy: the parents’ perspective explored within the “6-F words” framework

(2023) Silvia Pizzighello et al.   Child and Adolescent Psychiatry and Mental Health

‘This battle, between your gut feeling and your mind. Try to find the right balance’: Parental experiences of children with spinal muscular atrophy during COVID‐19 pandemic

(2022) Irene L. B. Oude Lansink et al.   CHILD CARE HEALTH AND DEVELOPMENT

BTS Clinical Statement on air travel for passengers with respiratory disease

(2022) Robina Kate Coker et al.   THORAX

Modified hypoxic challenge testing in children needing nocturnal ventilation: An observational study

(2022) Mollie Riley et al.   PEDIATRIC PULMONOLOGY

Changes in UK paediatric long-term ventilation practice over 10 years

(2022) Nicki Barker et al.   ARCHIVES OF DISEASE IN CHILDHOOD

Guidelines for diagnosis and management of congenital central hypoventilation syndrome

(2020) Ha Trang et al.   Orphanet Journal of Rare Diseases

Depression and Anxiety in Mothers of Home Ventilated Children Before and During COVID‐19 Pandemic

(2020) Almala Pinar Ergenekon et al.   PEDIATRIC PULMONOLOGY

Development and validation of a novel informational booklet for pediatric long‐term ventilation decision support

(2020) Jeffrey D. Edwards et al.   PEDIATRIC PULMONOLOGY

New Therapeutics Options for Pediatric Neuromuscular Disorders

(2020) Marina Flotats-Bastardas et al.   Frontiers in Pediatrics

Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: A population-based retrospective cohort study (2003-2014)

(2019) Louise Rose et al.   PLoS One

Exploring the experiences of parent caregivers of children with chronic medical complexity during pediatric intensive care unit hospitalization: an interpretive descriptive study

(2019) Janet E. Rennick et al.   BMC Pediatrics

Caring for technology-dependent children at home: Problems and solutions identified by mothers

(2019) Valerie Boebel Toly et al.   APPLIED NURSING RESEARCH

Analysis of paediatric long-term ventilation incidents in the community

(2019) Rasanat Fatima Nawaz et al.   ARCHIVES OF DISEASE IN CHILDHOOD

Long-term non-invasive ventilation therapies in children: A scoping review

(2018) Maria L. Castro-Codesal et al.   SLEEP MEDICINE REVIEWS

The quality of life of home-ventilated children and their primary caregivers plus the associated social and economic burdens: a prospective study

(2016) Michael Seear et al.   ARCHIVES OF DISEASE IN CHILDHOOD

The prevalence of neuromuscular disease in the paediatric population in Yorkshire, UK; variation by ethnicity and deprivation status

(2016) Ian R Woodcock et al.   DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY

Hypercapnic Respiratory Acidosis During An In-Flight Oxygen Assessment

(2016) Kristofer J. Spurling et al.   Aerospace Medicine and Human Performance

Using Framework Analysis in nursing research: a worked example

(2013) Deborah J. Ward et al.   JOURNAL OF ADVANCED NURSING

Childhood cancer-parenting work for British Bangladeshi families during treatment: An ethnographic study

(2012) Paula Kelly et al.   INTERNATIONAL JOURNAL OF NURSING STUDIES

The ‘F-words’ in childhood disability: I swear this is how we should think!

(2011) P. Rosenbaum et al.   CHILD CARE HEALTH AND DEVELOPMENT

Children on long-term ventilatory support: 10 years of progress

(2010) C. Wallis et al.   ARCHIVES OF DISEASE IN CHILDHOOD

Families With Children Who Are Technology Dependent

(2010) Valerie Boebel Toly et al.   WESTERN JOURNAL OF NURSING RESEARCH

Ventilator-dependent children in the United Kingdom: Increasing numbers, increasing expectations, and remaining challenges

(2010) Jane Noyes   Australian Critical Care

Hypoxic challenge flight assessments in patients with severe chest wall deformity or neuromuscular disease at risk for nocturnal hypoventilation

(2009) N Mestry et al.   THORAX