Data quality and patient characteristics in European ANCA-associated vasculitis registries: data retrieval by federated querying

Long-term outcomes and prognostic factors for survival of patients with ANCA-associated vasculitis

(2023) Beatriz Sánchez Álamo et al.   NEPHROLOGY DIALYSIS TRANSPLANTATION

EULAR recommendations for the management of ANCA-associated vasculitis: 2022 update

(2023) Bernhard Hellmich et al.   ANNALS OF THE RHEUMATIC DISEASES

Stable incidence but increase in prevalence of ANCA-associated vasculitis in southern Sweden: a 23-year study

(2023) Jens Rathmann et al.   RMD Open

FAIRVASC: A semantic web approach to rare disease registry integration

(2022) Kris McGlinn et al.   COMPUTERS IN BIOLOGY AND MEDICINE

The Sound of Interconnectivity; The European Vasculitis Society 2022 Report

(2022) Allyson C. Egan et al.   Kidney International Reports

Quality of Hospital Electronic Health Record (EHR) Data Based on the International Consortium for Health Outcomes Measurement (ICHOM) in Heart Failure: Pilot Data Quality Assessment Study

(2021) Hannelore Aerts et al.   JMIR Medical Informatics

Intravenous pulse methylprednisolone for induction of remission in severe ANCA associated Vasculitis: a multi-center retrospective cohort study

(2019) Dimitrios Chanouzas et al.   BMC Nephrology

All-cause and cause-specific mortality in ANCA-associated vasculitis: overall and according to ANCA type

(2019) Zachary S Wallace et al.   RHEUMATOLOGY

The RD-Connect Registry & Biobank Finder: a tool for sharing aggregated data and metadata among rare disease researchers

(2018) Sabina Gainotti et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Recommendations for Improving the Quality of Rare Disease Registries

(2018) Yllka Kodra et al.   International Journal of Environmental Research and Public Health

Need of informatics in designing interoperable clinical registries

(2017) Majid Rastegar-Mojarad et al.   INTERNATIONAL JOURNAL OF MEDICAL INFORMATICS

Linked Registries: Connecting Rare Diseases Patient Registries through a Semantic Web Layer

(2017) Pedro Sernadela et al.   Biomed Research International

The Epidemiology of Antineutrophil Cytoplasmic Autoantibody-Associated Vasculitis in Olmsted County, Minnesota

(2017) Alvise Berti et al.   Arthritis & Rheumatology

The FAIR Guiding Principles for scientific data management and stewardship

(2016) Mark D. Wilkinson et al.   Scientific Data

Rituximab versus cyclophosphamide in ANCA-associated renal vasculitis: 2-year results of a randomised trial

(2015) Rachel B Jones et al.   ANNALS OF THE RHEUMATIC DISEASES

Outcome and Treatment of Elderly Patients with ANCA-Associated Vasculitis

(2015) M. Weiner et al.   Clinical Journal of the American Society of Nephrology

Feature Selection with theBorutaPackage

(2015) Miron B. Kursa et al.   Journal of Statistical Software

Rituximab versus Azathioprine for Maintenance in ANCA-Associated Vasculitis

(2014) Loïc Guillevin et al.   NEW ENGLAND JOURNAL OF MEDICINE

Characteristics and outcomes of patients with ANCA-associated vasculitis in the Czech population

(2013) Z. Hruskova et al.   PRESSE MEDICALE

2012 Revised International Chapel Hill Consensus Conference Nomenclature of Vasculitides

(2012) J. C. Jennette et al.   ARTHRITIS AND RHEUMATISM

The American College of Rheumatology 1990 criteria for the classification of wegener's granulomatosis

(2010) Randi Y. Leavitt et al.   ARTHRITIS AND RHEUMATISM

The American College of Rheumatology 1990 criteria for the classification of churg-strauss syndrome (allergic granulomatosis and angiitis)

(2010) Alfonse T. Masi et al.   ARTHRITIS AND RHEUMATISM

Rituximab versus Cyclophosphamide for ANCA-Associated Vasculitis

(2010) John H. Stone et al.   NEW ENGLAND JOURNAL OF MEDICINE

A cross-sectional study of the Birmingham Vasculitis Activity Score version 3 in systemic vasculitis

(2010) R. Suppiah et al.   RHEUMATOLOGY