Patient Reported Outcome Measures for Patients With CKD: The Case for Patient Reported Outcomes Measurement Information System (PROMIS) Tools

Non-English Speakers and Socioeconomic Minorities are Significantly Less Likely To Complete Patient Reported Outcome Measures For Total Hip And Knee Arthroplasty: Analysis Of 16,119 Cases

(2023) Jaclyn A. Konopka et al.   JOURNAL OF ARTHROPLASTY

Health-Related Quality-of-Life Trajectories over Time in Older Men and Women with Advanced Chronic Kidney Disease

(2022) Nicholas C. Chesnaye et al.   Clinical Journal of the American Society of Nephrology

Understanding the patient experience of chronic kidney disease stages 2–3b: a qualitative interview study with Kidney Disease Quality of Life (KDQOL-36) debrief

(2022) Anna Rydén et al.   BMC Nephrology

Symptom burden and health-related quality of life in chronic kidney disease: A global systematic review and meta-analysis

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Five-Year Symptom Trajectories in Nondialysis-Dependent CKD Patients

(2022) Moustapha Faye et al.   Clinical Journal of the American Society of Nephrology

How the Routine Use of Patient-Reported Outcome Measures for Hemodialysis Care Influences Patient-Clinician Communication

(2022) Kara Schick-Makaroff et al.   Clinical Journal of the American Society of Nephrology

Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection

(2022) Olalekan Lee Aiyegbusi et al.   Nature Communications

QALYs, DALYs and Now PALYs: Strengthening the Argument for Prevention of CKD

(2021) Mark Canney et al.   JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY

Patient‐reported outcome measures (PROMs): A review of generic and condition‐specific measures and a discussion of trends and issues

(2021) Kate Churruca et al.   HEALTH EXPECTATIONS

Evaluation of PROMIS Preference Scoring System (PROPr) in Patients Undergoing Hemodialysis or Kidney Transplant

(2021) Jing Zhang et al.   Clinical Journal of the American Society of Nephrology

Psychometric properties of the spinal cord injury-quality of life (SCI-QOL) Resilience item bank in a sample with spinal cord injury and chronic pain

(2021) Duygu Kuzu et al.   QUALITY OF LIFE RESEARCH

Minimal important change (MIC): a conceptual clarification and systematic review of MIC estimates of PROMIS measures

(2021) Caroline B. Terwee et al.   QUALITY OF LIFE RESEARCH

Associations between depressive symptoms and disease progression in older patients with chronic kidney disease: results of the EQUAL study

(2021) Boukje C Eveleens Maarse et al.   Clinical Kidney Journal

Global, regional, and national burden of chronic kidney disease, 1990–2017: a systematic analysis for the Global Burden of Disease Study 2017

(2020) Boris Bikbov et al.   LANCET

Psychological and Psychopathological Aspects of Kidney Transplantation: A Systematic Review

(2020) Concetta De Pasquale et al.   Frontiers in Psychiatry

Impact of Renal Supportive Care on Symptom Burden in Dialysis Patients: A Prospective Observational Cohort Study

(2020) Amanda N. Siriwardana et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

A cluster randomized controlled trial for the Evaluation of routinely Measured PATient reported outcomes in HemodialYsis care (EMPATHY): a study protocol

(2020) Jeffrey A. Johnson et al.   BMC HEALTH SERVICES RESEARCH

Patient and clinician opinions of patient reported outcome measures (PROMs) in the management of patients with rare diseases: a qualitative study

(2020) Olalekan Lee Aiyegbusi et al.   Health and Quality of Life Outcomes

Health-related quality of life in glomerular disease

(2019) Pietro A. Canetta et al.   KIDNEY INTERNATIONAL

Kidney Disease Quality of Life 36-Item Short Form Survey (KDQOL-36) Normative Values for the United States Dialysis Population and New Single Summary Score

(2019) John D. Peipert et al.   JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY

Patient and Clinician Perspectives on Electronic Patient-Reported Outcome Measures in the Management of Advanced CKD: A Qualitative Study

(2019) Olalekan Lee Aiyegbusi et al.   AMERICAN JOURNAL OF KIDNEY DISEASES

Using PROMIS® to create clinically meaningful profiles of nephrotic syndrome patients.

(2019) Jonathan P. Troost et al.   HEALTH PSYCHOLOGY

PROMIS® Adult Health Profiles: Efficient Short-Form Measures of Seven Health Domains

(2019) David Cella et al.   VALUE IN HEALTH

Patient-Reported Outcome Measures for Adults With Kidney Disease: Current Measures, Ongoing Initiatives, and Future Opportunities for Incorporation Into Patient-Centered Kidney Care

(2019) Devika Nair et al.   AMERICAN JOURNAL OF KIDNEY DISEASES

Quality of life in patients with autosomal dominant tubulointerstitial kidney disease

(2019) Anthony J. Bleyer et al.   CLINICAL NEPHROLOGY

A comparison of computer adaptive tests (CATs) and short forms in terms of accuracy and number of items administrated using PROMIS profile

(2019) Eisuke Segawa et al.   QUALITY OF LIFE RESEARCH

The use of PROMs and shared decision‐making in medical encounters with patients: An opportunity to deliver value‐based health care to patients

(2019) Olga C. Damman et al.   JOURNAL OF EVALUATION IN CLINICAL PRACTICE

Kidney function and symptom development over time in elderly patients with advanced chronic kidney disease: results of the EQUAL cohort study

(2019) Cynthia J Janmaat et al.   NEPHROLOGY DIALYSIS TRANSPLANTATION

PROMIS®-29 v2.0 profile physical and mental health summary scores

(2018) Ron D. Hays et al.   QUALITY OF LIFE RESEARCH

Perceptions of Response Burden Associated with Completion of Patient-Reported Outcome Assessments in Oncology

(2018) Thomas M. Atkinson et al.   VALUE IN HEALTH

Using patient-reported outcome measures (PROMs) to promote quality of care in the management of patients with established kidney disease requiring treatment with haemodialysis in the UK (PROM-HD): a qualitative study protocol

(2018) Nicola Elzabeth Anderson et al.   BMJ Open

Montreal Accord on Patient-Reported Outcomes (PROs) use series – Paper 3: patient-reported outcomes can facilitate shared decision-making and guide self-management

(2017) Vanessa K. Noonan et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Measurement properties of patient-reported outcome measures (PROMs) used in adult patients with chronic kidney disease: A systematic review

(2017) Olalekan Lee Aiyegbusi et al.   PLoS One

PROMIS PF CAT Outperforms the ODI and SF-36 Physical Function Domain in Spine Patients

(2017) Darrel S. Brodke et al.   SPINE

The Transplant Palliative Care Clinic: An early palliative care model for patients in a transplant program

(2016) Kirsten Wentlandt et al.   CLINICAL TRANSPLANTATION

Impact of a transplant palliative care clinic on symptoms for patients awaiting lung transplantation

(2016) Nicole Freeman et al.   JOURNAL OF HEART AND LUNG TRANSPLANTATION

Stretching the Limits of Renal Transplantation in Elderly Recipients of Grafts from Elderly Deceased Donors

(2016) Hessel Peters-Sengers et al.   JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY

Health-Related Quality of Life Impacts Mortality but Not Progression to End-Stage Renal Disease in Pre-Dialysis Chronic Kidney Disease: A Prospective Observational Study

(2016) Mark D. Jesky et al.   PLoS One

Strategies to use tablet computers for collection of electronic patient-reported outcomes

(2015) Kara Schick-Makaroff et al.   Health and Quality of Life Outcomes

Establishing a Common Metric for Physical Function: Linking the HAQ-DI and SF-36 PF Subscale to PROMIS® Physical Function

(2015) Benjamin D. Schalet et al.   JOURNAL OF GENERAL INTERNAL MEDICINE

An introduction to patient-reported outcome measures (PROMs) in physiotherapy

(2015) D.G. Kyte et al.   Physiotherapy

Associations of Depressive Symptoms and Pain with Dialysis Adherence, Health Resource Utilization, and Mortality in Patients Receiving Chronic Hemodialysis

(2014) S. D. Weisbord et al.   Clinical Journal of the American Society of Nephrology

Item Response Theory, Computerized Adaptive Testing, and PROMIS: Assessment of Physical Function

(2013) J. F. Fries et al.   JOURNAL OF RHEUMATOLOGY

When to start dialysis: updated guidance following publication of the Initiating Dialysis Early and Late (IDEAL) study

(2011) J. Tattersall et al.   NEPHROLOGY DIALYSIS TRANSPLANTATION

Response Burden and Questionnaire Length: Is Shorter Better? A Review and Meta-analysis

(2011) Sindre Rolstad et al.   VALUE IN HEALTH

The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008

(2010) David Cella et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Validation of Depression Screening Scales in Patients With CKD

(2009) S. Susan Hedayati et al.   AMERICAN JOURNAL OF KIDNEY DISEASES

Progress in Assessing Physical Function in Arthritis: PROMIS Short Forms and Computerized Adaptive Testing

(2009) J. F. FRIES et al.   JOURNAL OF RHEUMATOLOGY