Developing a dementia friendly approach to consent in dementia research

What are the information needs of people with dementia and their family caregivers when they are admitted to a mental health ward and do current ward patient information leaflets meet their needs?

(2023) Emma Wolverson et al.   HEALTH EXPECTATIONS

Complex and alternate consent pathways in clinical trials: methodological and ethical challenges encountered by underserved groups and a call to action

(2023) Amy M. Russell et al.   Trials

Empowering patients with dementia to make legally effective decisions: a randomized controlled trial on enhancing capacity to consent to treatment

(2022) Aoife Poth et al.   AGING & MENTAL HEALTH

Ethical Issues in Dementia Research

(2021) Mina Chandra et al.   Indian Journal of Psychological Medicine

Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation (MORECare_Capacity statement)

(2020) C. J. Evans et al.   BMC Medicine

Procedural Framework to Facilitate Hospital-Based Informed Consent for Dementia Research

(2018) Timothy R. Holden et al.   JOURNAL OF THE AMERICAN GERIATRICS SOCIETY

Capacity issues and decision-making in dementia

(2016) Ratnavalli Ellajosyula et al.   Annals of Indian Academy of Neurology

Assessing capacity to consent to treatment with cholinesterase inhibitors in dementia using a specific and standardized version of the MacArthur Competence Assessment Tool (MacCAT-T)

(2016) Tanja Mueller et al.   INTERNATIONAL PSYCHOGERIATRICS

Informierte Einwilligung in der Demenzforschung. Eine qualitative Studie zum Informationsverständnis von Probanden

(2015) Holger Schütz et al.   Ethik in der Medizin

Dementia research and advance consent: it is not about critical interests

(2014) Karin Rolanda Jongsma et al.   JOURNAL OF MEDICAL ETHICS

Alternative Decision-Makers' Perspectives on Assent and Dissent for Dementia Research

(2013) Eve Overton et al.   AMERICAN JOURNAL OF GERIATRIC PSYCHIATRY

Initial evaluation of the Consent Support Tool: A structured procedure to facilitate the inclusion and engagement of people with aphasia in the informed consent process

(2013) Mark Jayes et al.   International Journal of Speech-Language Pathology

Seeking Assent and Respecting Dissent in Dementia Research

(2009) Betty S. Black et al.   AMERICAN JOURNAL OF GERIATRIC PSYCHIATRY