Neurological conditions: Prognostic communication, shared decision making, and symptom management
Published 2023 View Full Article
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Title
Neurological conditions: Prognostic communication, shared decision making, and symptom management
Authors
Keywords
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Journal
Seminars in Fetal & Neonatal Medicine
Volume 28, Issue 3, Pages 101457
Publisher
Elsevier BV
Online
2023-05-19
DOI
10.1016/j.siny.2023.101457
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Note: Only part of the references are listed.- Decision Making for Infants With Neurologic Conditions
- (2022) Charlotte Gerrity et al. JOURNAL OF CHILD NEUROLOGY
- Prognostic Discussion for Infants with Neurologic Conditions: Qualitative Analysis of Family Conferences
- (2022) Monica E. Lemmon et al. ANNALS OF NEUROLOGY
- Trial of Erythropoietin for Hypoxic–Ischemic Encephalopathy in Newborns
- (2022) Yvonne W. Wu et al. NEW ENGLAND JOURNAL OF MEDICINE
- The ALIGN Framework: A Parent-Informed Approach to Prognostic Communication for Infants With Neurologic Conditions
- (2022) Monica E. Lemmon et al. NEUROLOGY
- Pediatric Palliative Care for Children with Severe Neurological Impairment and Their Families
- (2021) Jori F. Bogetz et al. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
- Use of Cognitive Shortcuts in Decision-making for Children With Severe Neurologic Impairment
- (2021) Jori F. Bogetz et al. PEDIATRICS
- Parents Are the Experts: A Qualitative Study of the Experiences of Parents of Children With Severe Neurological Impairment During Decision-Making
- (2021) Jori F. Bogetz et al. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
- Assessment of parent understanding in conferences for critically ill neonates
- (2021) Mary C. Barks et al. PATIENT EDUCATION AND COUNSELING
- Supporting families in their child's journey with neonatal encephalopathy and therapeutic hypothermia
- (2021) Betsy Pilon et al. Seminars in Fetal & Neonatal Medicine
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- (2021) Sarah M. Bernstein et al. SEMINARS IN PERINATOLOGY
- Parental perspective on important health outcomes of extremely preterm infants
- (2021) Magdalena Jaworski et al. Archives of Disease in Childhood-Fetal and Neonatal Edition
- Communicating With Families of Children With Severe Neurological Impairment
- (2021) Jori F. Bogetz et al. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
- Family-Centered Care for Children and Families Impacted by Neonatal Seizures: Advice From Parents
- (2021) Monica E. Lemmon et al. PEDIATRIC NEUROLOGY
- Quality of life cannot be predicted from a brain scan
- (2020) Nora Fayed et al. DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
- A Randomized Trial of Erythropoietin for Neuroprotection in Preterm Infants
- (2020) Sandra E. Juul et al. NEW ENGLAND JOURNAL OF MEDICINE
- “Good-Parent Beliefs”: Research, Concept, and Clinical Practice
- (2020) Meaghann S. Weaver et al. PEDIATRICS
- Parent experience of caring for neonates with seizures
- (2020) Monica Lemmon et al. Archives of Disease in Childhood-Fetal and Neonatal Edition
- Characterization of death in infants with neonatal seizures
- (2020) Monica E. Lemmon et al. PEDIATRIC NEUROLOGY
- End-of-Life Care for Neonates: Assessing and Addressing Pain and Distressing Symptoms
- (2020) Shelly Haug et al. Frontiers in Pediatrics
- Estimating Neurologic Prognosis in Children
- (2019) Monica E. Lemmon et al. JAMA Neurology
- Neurologic Outcome After Prematurity: Perspectives of Parents and Clinicians
- (2019) Monica E. Lemmon et al. PEDIATRICS
- Non-pharmacological pain management in the neonatal intensive care unit: Managing neonatal pain without drugs
- (2019) Oana Bucsea et al. Seminars in Fetal & Neonatal Medicine
- Applying an Adaptive Communication Approach to Medical Decision Making
- (2019) Jori Bogetz et al. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
- Moving Beyond Using the Term Poor Prognosis in Children With Severe Neurological Impairment
- (2019) Jori Bogetz et al. JAMA Pediatrics
- Values clarification and parental decision making about newborn genomic sequencing.
- (2019) Susana Peinado et al. HEALTH PSYCHOLOGY
- Parental Perspectives Regarding Outcomes of Very Preterm Infants: Toward a Balanced Approach
- (2018) Magdalena Jaworski et al. JOURNAL OF PEDIATRICS
- Values-based shared decision-making in the antenatal period
- (2018) Stephanie K. Kukora et al. Seminars in Fetal & Neonatal Medicine
- Outcomes after acute symptomatic seizures in neonates
- (2018) Hannah C. Glass et al. Seminars in Fetal & Neonatal Medicine
- Ethical Problems in Decision Making in the Neonatal ICU
- (2018) John D. Lantos NEW ENGLAND JOURNAL OF MEDICINE
- Supporting Family Decision-making for a Child Who Is Seriously Ill: Creating Synchrony and Connection
- (2018) Vanessa N. Madrigal et al. PEDIATRICS
- Withdrawal of Life-Support in Neonatal Hypoxic-Ischemic Encephalopathy
- (2018) Girija Natarajan et al. PEDIATRIC NEUROLOGY
- Challenges in neurologic prognostication after neonatal brain injury
- (2017) Niranjana Natarajan et al. SEMINARS IN PERINATOLOGY
- The ‘ouR-HOPE’ approach for ethics and communication about neonatal neurological injury
- (2016) Eric Racine et al. DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
- Parent Experience of Neonatal Encephalopathy
- (2016) Monica E. Lemmon et al. JOURNAL OF CHILD NEUROLOGY
- Characterization of Death in Neonatal Encephalopathy in the Hypothermia Era
- (2016) Monica E. Lemmon et al. JOURNAL OF CHILD NEUROLOGY
- Gabapentin Use in the Neonatal Intensive Care Unit
- (2016) Laura Edwards et al. JOURNAL OF PEDIATRICS
- Measuring and communicating meaningful outcomes in neonatology: A family perspective
- (2016) Annie Janvier et al. SEMINARS IN PERINATOLOGY
- Predictors of caregiver depression and family functioning after perinatal stroke
- (2015) Taryn B. Bemister et al. BMC Pediatrics
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- (2015) Susan E. Sparks CLINICS IN PERINATOLOGY
- Neonatal Magnetic Resonance Imaging Pattern of Brain Injury as a Biomarker of Childhood Outcomes following a Trial of Hypothermia for Neonatal Hypoxic-Ischemic Encephalopathy
- (2015) Seetha Shankaran et al. JOURNAL OF PEDIATRICS
- Palliative care in neonatal neurology: robust support for infants, families and clinicians
- (2015) M E Lemmon et al. Journal of Perinatology
- Good-Parent Beliefs of Parents of Seriously Ill Children
- (2015) Chris Feudtner et al. JAMA Pediatrics
- Neonatal hypertonia - a diagnostic challenge
- (2014) Anthony R Hart et al. DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
- Perspectives on anticipated quality-of-life and recommendations for neonatal intensive care: a survey of neonatal providers
- (2014) Kirsten Salmeen et al. Journal of Maternal-Fetal & Neonatal Medicine
- The Parent Perspective
- (2014) Tessie W. October et al. Pediatric Critical Care Medicine
- Impact of repeated procedural pain-related stress in infants born very preterm
- (2014) Jillian Vinall et al. PEDIATRIC RESEARCH
- Neuroimaging and Neurodevelopmental Outcome in Extremely Preterm Infants
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- (2013) Bonnie J. Stevens et al. CLINICAL JOURNAL OF PAIN
- Parent Decision Making for Life Support for Extremely Premature Infants
- (2013) Teresa T. Moro et al. JOURNAL OF PERINATAL & NEONATAL NURSING
- Neonatal pain in relation to postnatal growth in infants born very preterm
- (2012) Jillian Vinall et al. PAIN
- Effects of Description of Options on Parental Perinatal Decision-Making
- (2012) M. F. Haward et al. PEDIATRICS
- A National Profile of Caregiver Challenges Among More Medically Complex Children With Special Health Care Needs
- (2011) Dennis Z. Kuo ARCHIVES OF PEDIATRICS & ADOLESCENT MEDICINE
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- (2011) Susan E. Jacobs ARCHIVES OF PEDIATRICS & ADOLESCENT MEDICINE
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- Impact of Extreme Prematurity on Family Functioning and Maternal Health 20 Years Later
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- (2010) Jeffrey C. Klick et al. Current Problems in Pediatric and Adolescent Health Care
- Neonatologist Training to Guide Family Decision Making for Critically Ill Infants
- (2009) Renee D. Boss et al. ARCHIVES OF PEDIATRICS & ADOLESCENT MEDICINE
- Ethics in Neonatal Neurology: When is Enough, Enough?
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- The TOBY Study. Whole body hypothermia for the treatment of perinatal asphyxial encephalopathy: A randomised controlled trial
- (2008) Dennis Azzopardi et al. BMC Pediatrics
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- (2008) Mark S. Scher PEDIATRIC NEUROLOGY
- Values Parents Apply to Decision-Making Regarding Delivery Room Resuscitation for High-Risk Newborns
- (2008) R. D. Boss et al. PEDIATRICS
- The Evaluation of the Hypotonic Infant
- (2008) John B. Bodensteiner Seminars in Pediatric Neurology
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