Moving beyond the Court of Public Opinion: A Citizens’ Jury Exploring the Public’s Values around Funding Decisions for Ultra-Orphan Drugs

HTA decision-making for drugs for rare diseases: comparison of processes across countries

(2022) Tania Stafinski et al.   Orphanet Journal of Rare Diseases

A systematic review of moral reasons on orphan drug reimbursement

(2021) Bettina M. Zimmermann et al.   Orphanet Journal of Rare Diseases

How Should We Value Orphan Drugs? Suggestions From A Large Public Opinion Survey

(2017) D Korchagina et al.   VALUE IN HEALTH

Why orphan drug coverage reimbursement decision-making needs patient and public involvement

(2015) Conor M.W. Douglas et al.   HEALTH POLICY

Effectiveness of public deliberation methods for gathering input on issues in healthcare: Results from a randomized trial

(2015) Kristin L. Carman et al.   SOCIAL SCIENCE & MEDICINE

Cystic fibrosis: to screen or not to screen? Involving a Citizens' jury in decisions on screening carrier

(2014) Paola Mosconi et al.   HEALTH EXPECTATIONS

The use of citizens' juries in health policy decision-making: A systematic review

(2014) Jackie Street et al.   SOCIAL SCIENCE & MEDICINE

Assessing the impact of deliberative processes on the views of participants: is it ‘in one ear and out the other’?

(2012) Tania Stafinski et al.   HEALTH EXPECTATIONS

Pricing and reimbursement of orphan drugs: the need for more transparency

(2011) Steven Simoens   Orphanet Journal of Rare Diseases

Health outcomes in economic evaluation: the QALY and utilities

(2010) S. J. Whitehead et al.   BRITISH MEDICAL BULLETIN

Exploring public perspectives on e-health: findings from two citizen juries

(2010) Gerry King et al.   HEALTH EXPECTATIONS

Engaging the public in priority-setting for health technology assessment: findings from a citizens’ jury

(2008) Devidas Menon et al.   HEALTH EXPECTATIONS