Fenfluramine treatment for dravet syndrome: Real-world benefits on quality of life from the caregiver perspective

Sleep in Dravet syndrome: A parent-driven survey

(2021) Abigail Van Nuland et al.   SEIZURE-EUROPEAN JOURNAL OF EPILEPSY

A systematic review of adults with Dravet syndrome

(2021) Arunan Selvarajah et al.   SEIZURE-EUROPEAN JOURNAL OF EPILEPSY

Development and validation of the University of Washington caregiver stress and benefit scales for caregivers of children with or without serious health conditions

(2020) Dagmar Amtmann et al.   QUALITY OF LIFE RESEARCH

Intellectual functioning and behavior in Dravet syndrome: A systematic review

(2020) Josefine Soto Jansson et al.   EPILEPSY & BEHAVIOR

Impact of childhood Dravet syndrome on care givers of patients with DS, a major impact on mothers

(2020) Rima Nabbout et al.   EPILEPSY & BEHAVIOR

Fenfluramine for the Treatment of Dravet Syndrome and Lennox–Gastaut Syndrome

(2020) Ganna Balagura et al.   CNS DRUGS

Efficacy and safety of Fenfluramine hydrochloride for the treatment of seizures in Dravet syndrome: A real‐world study

(2020) Nicola Specchio et al.   EPILEPSIA

Fenfluramine HCl (Fintepla ® ) provides long‐term clinically meaningful reduction in seizure frequency: Analysis of an ongoing open‐label extension study

(2020) Joseph Sullivan et al.   EPILEPSIA

Diagnosing cognitive disorders in older adults with epilepsy

(2020) Anny Reyes et al.   EPILEPSIA

The REDCap consortium: Building an international community of software platform partners

(2019) Paul A. Harris et al.   JOURNAL OF BIOMEDICAL INFORMATICS

Fenfluramine hydrochloride for the treatment of seizures in Dravet syndrome: a randomised, double-blind, placebo-controlled trial

(2019) Lieven Lagae et al.   LANCET

Fenfluramine for Treatment-Resistant Seizures in Patients With Dravet Syndrome Receiving Stiripentol-Inclusive Regimens

(2019) Rima Nabbout et al.   JAMA Neurology

The humanistic and economic burden of Dravet syndrome on caregivers and families: Implications for future research

(2017) Mark P. Jensen et al.   EPILEPSY & BEHAVIOR

Life impact of caregiving for severe childhood epilepsy: Results of expert panels and caregiver focus groups

(2017) Mark P. Jensen et al.   EPILEPSY & BEHAVIOR

Short sleep duration, shift work, and actual days taken off work are predictive life-style risk factors for new-onset metabolic syndrome: a seven-year cohort study of 40,000 male workers

(2017) Osamu Itani et al.   SLEEP MEDICINE

Combinations of physical activity, sedentary behaviour and sleep: relationships with health indicators in school-aged children and youth

(2016) Travis John Saunders et al.   Applied Physiology Nutrition and Metabolism

Five-year extended follow-up status of 10 patients with Dravet syndrome treated with fenfluramine

(2016) Berten Ceulemans et al.   EPILEPSIA

Low-dose fenfluramine significantly reduces seizure frequency in Dravet syndrome: a prospective study of a new cohort of patients

(2016) A. Schoonjans et al.   EUROPEAN JOURNAL OF NEUROLOGY

Successful use of fenfluramine as an add-on treatment for Dravet syndrome

(2012) Berten Ceulemans et al.   EPILEPSIA

Sleep, cognition, and behavioral problems in school-age children: A century of research meta-analyzed.

(2012) Rebecca G. Astill et al.   PSYCHOLOGICAL BULLETIN

The core Dravet syndrome phenotype

(2011) Charlotte Dravet   EPILEPSIA

Research electronic data capture (REDCap)—A metadata-driven methodology and workflow process for providing translational research informatics support

(2008) Paul A. Harris et al.   JOURNAL OF BIOMEDICAL INFORMATICS