Grappling with uncertainty – Experiences of parents of infants following perinatal stroke

Recognition, identification, and diagnosis announcement of neonatal arterial ischemic stroke: A combined exploratory quantitative and qualitative study on parents’ lived experiences

(2021) Cindy Leal Martins et al.   ARCHIVES DE PEDIATRIE

“It Should Have Been Given Sooner, and We Should Not Have to Fight for It”: A Mixed-Methods Study of the Experience of Diagnosis and Early Management of Cerebral Palsy

(2021) Sîan A Williams et al.   Journal of Clinical Medicine

Perinatal stroke syndromes: Similarities and diversities in aetiology, outcome and management

(2019) Joel Fluss et al.   EUROPEAN JOURNAL OF PAEDIATRIC NEUROLOGY

Neurodevelopmental Risk: A Tool to Enhance Conversations With Families of Infants

(2019) Monica E. Lemmon et al.   JOURNAL OF CHILD NEUROLOGY

Effects of the caregiver burden perceived by caregivers of patients with neurological disorders on caregiver wellbeing and caregiver stress

(2019) Fatma Özkan Tuncay et al.   PERSPECTIVES IN PSYCHIATRIC CARE

Best practice guidelines for communicating to parents the diagnosis of disability

(2019) I. Novak et al.   EARLY HUMAN DEVELOPMENT

Feasibility trial of an early therapy in perinatal stroke (eTIPS)

(2018) Anna Purna Basu et al.   BMC Neurology

Long-term neurodevelopmental outcome after perinatal arterial ischemic stroke and periventricular venous infarction

(2018) Silva Lõo et al.   EUROPEAN JOURNAL OF PAEDIATRIC NEUROLOGY

The complexity of physicians’ understanding and management of prognostic uncertainty in neonatal hypoxic-ischemic encephalopathy

(2018) Lisa Anne Rasmussen et al.   Journal of Perinatology

Lived experience of having a child with stroke: A qualitative study

(2017) Syrine Soufi et al.   EUROPEAN JOURNAL OF PAEDIATRIC NEUROLOGY

Chronic Sorrow in Parents of Children with a Chronic Illness or Disability: An Integrative Literature Review

(2017) Mary Beth Coughlin et al.   Journal of Pediatric Nursing-Nursing Care of Children & Families

Early, Accurate Diagnosis and Early Intervention in Cerebral Palsy

(2017) Iona Novak et al.   JAMA Pediatrics

The ‘ouR-HOPE’ approach for ethics and communication about neonatal neurological injury

(2016) Eric Racine et al.   DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY

Multimodal Outcome at 7 Years of Age after Neonatal Arterial Ischemic Stroke

(2016) Stéphane Chabrier et al.   JOURNAL OF PEDIATRICS

Predictors of caregiver depression and family functioning after perinatal stroke

(2015) Taryn B. Bemister et al.   BMC Pediatrics

Improving Outcomes in Cerebral Palsy with Early Intervention: New Translational Approaches

(2015) Anna Purna Basu et al.   Frontiers in Neurology

Parent and family impact of raising a child with perinatal stroke

(2014) Taryn B Bemister et al.   BMC Pediatrics

Early intervention after perinatal stroke: opportunities and challenges

(2014) Anna P Basu   DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY

Parents' experiences of information and communication in the neonatal unit about brain imaging and neurological prognosis: a qualitative study

(2013) Merryl E Harvey et al.   ACTA PAEDIATRICA

Life After Perinatal Stroke

(2013) Adam Kirton et al.   STROKE

Factors associated with perceived uncertainty among parents of children with undiagnosed medical conditions

(2012) Anne C. Madeo et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

Sorrow, coping and resiliency: parents of children with cerebral palsy share their experiences

(2012) Koa Whittingham et al.   DISABILITY AND REHABILITATION

Myth: Cerebral palsy cannot be predicted by neonatal brain imaging

(2011) Linda S. de Vries et al.   Seminars in Fetal & Neonatal Medicine