4.4 Review

A systematic review of sociodemographic reporting and representation in eating disorder psychotherapy treatment trials in the United States

Journal

INTERNATIONAL JOURNAL OF EATING DISORDERS
Volume 55, Issue 4, Pages 423-454

Publisher

WILEY
DOI: 10.1002/eat.23699

Keywords

disparities; ethnicity; gender; inclusion; race; randomized controlled trials; sexual orientation; socioeconomic status

Funding

  1. National Heart, Lung, and Blood Institute [T32HL150452]

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The study examines the reporting, inclusion, and analysis of sociodemographic variables in randomized controlled trials (RCTs) of psychotherapeutic treatment for eating disorders (EDs) in the US. The findings show that while there has been some progress in reporting racial and ethnic data, information on socioeconomic status and sexual orientation is inconsistent or absent. The majority of participants are still white women, with underrepresentation of men, people of color, and gender-diverse individuals. These findings underscore the importance of improving reporting and increasing representation to ensure effective treatments across diverse groups.
Objective Eating disorders (EDs) were once conceptualized as primarily affecting affluent, White women, a misconception that informed research and practice for many years. Abundant evidence now discredits this stereotype, but it is unclear if prevailing evidence-based treatments have been evaluated in samples representative of the diversity of individuals affected by EDs. Our goal was to evaluate the reporting, inclusion, and analysis of sociodemographic variables in ED psychotherapeutic treatment randomized controlled trials (RCTs) in the US through 2020. Methods We conducted a systematic review of ED psychotherapeutic treatment RCTs in the US and examined the reporting and inclusion of gender identity, age, race/ethnicity, sexual orientation, and socioeconomic status (SES) of enrolled participants, as well as recruitment methods, power analyses, and discussion of limitations and generalizability. Results Our search yielded 58 studies meeting inclusion criteria dating back to 1985. Reporting was at times incomplete, absent, or centered on the racial/gender majority group. No studies reported gender diverse participants, and men and people of color were underrepresented generally, with differences noted across diagnoses. A minority of papers considered sociodemographic variables in analyses or acknowledged limitations related to sample characteristics. Some progress was made across the decades, with studies increasingly providing full racial and ethnic data, and more men included over time. Although racial and ethnic diversity improved somewhat, progress appeared to stall in the last decade. Discussion We summarize findings, consider context and challenges for RCT researchers, and offer suggestions for researchers, journal editors, and reviewers on improving representation, reporting, and analytic practices. Public Significance Randomized controlled trials of eating disorder psychotherapeutic treatment in the US are increasingly reporting full race/ethnicity data, but information on SES is inconsistent and sexual orientation absent. White women still comprise the overwhelming majority of participants, with few men and people of color, and no gender-diverse individuals. Findings underscore the need to improve reporting and increase representation to ensure evidence-based treatments are effective across and within diverse groups.

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