Health Care Transition From Pediatric- to Adult-Focused Care in X-linked Hypophosphatemia: Expert Consensus

Responsiveness of PROMIS and Patient Health Questionnaire (PHQ) Depression Scales in three clinical trials

(2021) Kurt Kroenke et al.   Health and Quality of Life Outcomes

Diagnosis and management of X-linked hypophosphatemia in children and adolescent in the Gulf Cooperation Council countries

(2021) Fahad Al Juraibah et al.   Archives of Osteoporosis

The Rapid Transition to Telemedicine and Its Effect on Access to Care for Patients With Type 1 Diabetes During the COVID-19 Pandemic

(2021) Daniel R. Tilden et al.   DIABETES CARE

Consensus Recommendations for the Diagnosis and Management of X-Linked Hypophosphatemia in Belgium

(2021) Michaël R. Laurent et al.   Frontiers in Endocrinology

Health Care Transition of Adolescents and Young Adults with Haemophilia: the Situation in Germany and the Munich experience

(2020) Christoph Bidlingmaier et al.   Hamostaseologie

Transition Readiness Not Associated With Measures of Health in Youth With IBD

(2020) Marina Arvanitis et al.   INFLAMMATORY BOWEL DISEASES

Telemedicine: Patient-Provider Clinical Engagement During the COVID-19 Pandemic and Beyond

(2020) Carlo M. Contreras et al.   JOURNAL OF GASTROINTESTINAL SURGERY

Telemedicine in the Era of Coronavirus Disease 2019 (COVID-19): A Neurosurgical Perspective

(2020) Rachel Blue et al.   World Neurosurgery

Paediatric to adult transition care for patients with sickle cell disease: a global perspective

(2020) Baba Psalm Duniya Inusa et al.   Lancet Haematology

Use of Telemedicine and Virtual Care for Remote Treatment in Response to COVID-19 Pandemic

(2020) Bokolo Anthony Jnr.   JOURNAL OF MEDICAL SYSTEMS

The international X-linked hypophosphataemia (XLH) registry (NCT03193476): rationale for and description of an international, observational study

(2020) Raja Padidela et al.   Orphanet Journal of Rare Diseases

Burden of disease associated with X-linked hypophosphataemia in adults: a systematic literature review

(2020) L. Seefried et al.   OSTEOPOROSIS INTERNATIONAL

Telemedicine for Cancer Care in the Time of COVID-19

(2020) Trevor J. Royce et al.   JAMA Oncology

Strategies to engage lost to follow-up patients with phenylketonuria in the United States: Best practice recommendations

(2020) Jennifer Beazer et al.   Molecular Genetics and Metabolism Reports

The impact of COVID-19 on rare metabolic patients and healthcare providers: results from two MetabERN surveys

(2020) C. Lampe et al.   Orphanet Journal of Rare Diseases

Evaluation of the TRxANSITION Index–Parent Version for assessment of readiness to transition to adult care among youth with chronic conditions

(2020) Laura C. Hart et al.   Journal of Pediatric Nursing-Nursing Care of Children & Families

The evaluation and costs of transition programs for youth with epilepsy

(2019) Rima Nabbout et al.   EPILEPSY & BEHAVIOR

Health literacy, nutrition knowledge, and health care transition readiness in youth with chronic kidney disease or hypertension: A cross-sectional study

(2019) Yi Zhong et al.   Journal of Child Health Care

FGF23 and its role in X-linked hypophosphatemia-related morbidity

(2019) Signe Sparre Beck-Nielsen et al.   Orphanet Journal of Rare Diseases

Clinical practice recommendations for the diagnosis and management of X-linked hypophosphataemia

(2019) Dieter Haffner et al.   Nature Reviews Nephrology

Exploring the Burden of X-Linked Hypophosphataemia: An Opportunistic Qualitative Study of Patient Statements Generated During a Technology Appraisal

(2019) Nermina Ferizović et al.   ADVANCES IN THERAPY

Management of X-linked hypophosphatemia in adults

(2019) Anne-Lise Lecoq et al.   METABOLISM-CLINICAL AND EXPERIMENTAL

A Parental Report of Youth Transition Readiness: The Parent STARx Questionnaire (STARx-P) and Re-evaluation of the STARx Child Report

(2018) Meaghan Nazareth et al.   Journal of Pediatric Nursing-Nursing Care of Children & Families

Longitudinal Self-Management and/or Transition Readiness per the TRANSITION Index among Patients with Chronic Conditions in Pediatric or Adult Care Settings

(2018) Yi Zhong et al.   JOURNAL OF PEDIATRICS

Transition Planning Among US Youth With and Without Special Health Care Needs

(2018) Lydie A. Lebrun-Harris et al.   PEDIATRICS

Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home

(2018) Patience H. White et al.   PEDIATRICS

Measurable Outcomes After Transfer From Pediatric to Adult Providers in Youth With Chronic Illness

(2017) Bethany Coyne et al.   JOURNAL OF ADOLESCENT HEALTH

Outcome Evidence for Structured Pediatric to Adult Health Care Transition Interventions: A Systematic Review

(2017) Phabinly Gabriel et al.   JOURNAL OF PEDIATRICS

The Care Continuum: An Evolving Model for Care and Research in Rare Diseases

(2017) Erika F. Augustine et al.   PEDIATRICS

Self-management and Transition to Adult Health Care in Adolescents and Young Adults: A Team Process

(2017) John D. Mahan et al.   PEDIATRICS IN REVIEW

Ecological Factors Predict Transition Readiness/Self-Management in Youth With Chronic Conditions

(2016) Karina Javalkar et al.   JOURNAL OF ADOLESCENT HEALTH

Conventional Therapy in Adults With X-Linked Hypophosphatemia: Effects on Enthesopathy and Dental Disease

(2015) Jessica Connor et al.   JOURNAL OF CLINICAL ENDOCRINOLOGY & METABOLISM

Self-Management and Transition Readiness Assessment: Concurrent, Predictive and Discriminant Validation of the STARx Questionnaire

(2015) Sarah E. Cohen et al.   Journal of Pediatric Nursing-Nursing Care of Children & Families

The Relationship of Transition Readiness, Self-Efficacy, and Adherence to Preferred Health Learning Method by Youths with Chronic Conditions

(2015) Meredith A.J. Johnson et al.   Journal of Pediatric Nursing-Nursing Care of Children & Families

Self-Management and Transition Readiness Assessment: Development, Reliability, and Factor Structure of the STARx Questionnaire

(2015) M. Ferris et al.   Journal of Pediatric Nursing-Nursing Care of Children & Families

Elevated Fibroblast Growth Factor 23 Exerts Its Effects on Placenta and Regulates Vitamin D Metabolism in Pregnancy ofHypMice

(2014) Yasuhisa Ohata et al.   JOURNAL OF BONE AND MINERAL RESEARCH

Preparing Adolescents With Chronic Disease for Transition to Adult Care: A Technology Program

(2014) J. S. Huang et al.   PEDIATRICS

Transition experiences and health care utilization among young adults with type 1 diabetes

(2013) Katharine C Garvey et al.   Patient Preference and Adherence

Transition From Pediatric to Adult Care in Sickle Cell Disease: Perspectives on the Family Role

(2013) Jerlym S. Porter et al.   Journal of Pediatric Nursing-Nursing Care of Children & Families

A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions

(2011) L. A. Schwartz et al.   CHILD CARE HEALTH AND DEVELOPMENT

Diabetes Care for Emerging Adults: Recommendations for Transition From Pediatric to Adult Diabetes Care Systems: A position statement of the American Diabetes Association, with representation by the American College of Osteopathic Family Physicians, the American Academy of Pediatrics, the American Association of Clinical Endocrinologists, the American Osteopathic Association, the Centers for Disease Control and Prevention, Children with Diabetes, The Endocrine Society, the International Society for Pediatric and Adolescent Diabetes, Juvenile Diabetes Research Foundation International, the National Diabetes Education Program, and the Pediatric Endocrine Society (formerly Lawson Wilkins Pediatric Endocrine Society)

(2011) A. Peters et al.   DIABETES CARE

Transition to Adult Care: Systematic Assessment of Adolescents with Chronic Illnesses and their Medical Teams

(2011) Jeannie S. Huang et al.   JOURNAL OF PEDIATRICS

Utility and cost of a renal transplant transition clinic

(2011) Chanel Prestidge et al.   PEDIATRIC NEPHROLOGY

Residency Training in Transition of Youth With Childhood-Onset Chronic Disease

(2010) Manisha S. Patel et al.   PEDIATRICS

Planning for Health Care Transitions: Results From the 2005-2006 National Survey of Children With Special Health Care Needs

(2008) D. S. Lotstein et al.   PEDIATRICS