4.1 Article

ADvANCING INCLuSIvE RESEARCH: ESTABLISHING CoLLABoRATIvE STRATEGIES To IMpRovE DIvERSITy IN CLINICAL TRIALS

Journal

ETHNICITY & DISEASE
Volume 32, Issue 1, Pages 61-68

Publisher

ETHNICITY & DISEASE, INC
DOI: 10.18865/ed.32.1.61

Keywords

Health Care Disparities; Minor-ity Health; Personalized Health Care; COVID-19; Clinical Trial Design

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This article chronicles Genentech's efforts to address the disparities in clinical research, particularly for patients of color. Over the last four years, they have focused on tackling the barriers at the system, study, and patient levels to increase participation and retention of patients of color. These efforts are crucial for realizing personalized healthcare and providing greater patient benefits at a lower cost to society.
Well-characterized disparities in clinical research have disproportionately affected patients of color, particularly in underserved communities. To tackle these barriers, Genentech formed the External Council for Advancing Inclusive Research, a 14-person committee dedicated to developing strate-gies to increase clinical research participa-tion. To help improve the recruitment and retention of patients of color, this article chronicles our efforts to tangibly address the clinical research barriers at the system, study, and patient levels over the last four years. These efforts are one of the initial steps to fully realize the promise of person-alized health care and provide increased patient benefit at less cost to society. Instead of simply acknowledging the problem, here we illuminate the collaborative and multi-level strategies that have been effective in delivering meaningful progress for patients.

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