Patient involvement in the development of patient-reported outcome measures: a scoping review

Interviewing to develop Patient-Reported Outcome (PRO) measures for clinical research: eliciting patients’ experience

(2014) Anne Brédart et al.   Health and Quality of Life Outcomes

The PRISMA Statement for Reporting Systematic Reviews and Meta-Analyses of Studies That Evaluate Health Care Interventions: Explanation and Elaboration

(2013) Alessandro Liberati   ANNALS OF INTERNAL MEDICINE

Patient reported outcome measures could help transform healthcare

(2013) N. Black   BMJ-British Medical Journal

Content Development for the Functional Assessment of Cancer Therapy-Multiple Myeloma (FACT-MM): Use of Qualitative and Quantitative Methods for Scale Construction

(2012) Lynne I. Wagner et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Patient-reported outcomes in randomized clinical trials: development of ISOQOL reporting standards

(2012) Michael Brundage et al.   QUALITY OF LIFE RESEARCH

Measuring patient-reported outcomes: moving beyond misplaced common sense to hard science

(2011) Stephen P McKenna   BMC Medicine

The Genetic Counseling Outcome Scale: a new patient-reported outcome measure for clinical genetics services

(2011) M McAllister et al.   CLINICAL GENETICS

The Huntington's Disease health-related Quality of Life questionnaire (HDQoL): a disease-specific measure of health-related quality of life

(2011) MB Hocaoglu et al.   CLINICAL GENETICS

Using patient experience to measure the quality of HIV care

(2011) L Land et al.   INTERNATIONAL JOURNAL OF STD & AIDS

The GRIPP checklist: Strengthening the quality of patient and public involvement reporting in research

(2011) Sophie Staniszewska et al.   INTERNATIONAL JOURNAL OF TECHNOLOGY ASSESSMENT IN HEALTH CARE

Patient Perspective: Choosing or Developing Instruments

(2011) J. R. KIRWAN et al.   JOURNAL OF RHEUMATOLOGY

Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review

(2011) Kirstie L. Haywood et al.   QUALITY OF LIFE RESEARCH

Content Validity—Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 2—Assessing Respondent Understanding

(2011) Donald L. Patrick et al.   VALUE IN HEALTH

Content Validity—Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 1—Eliciting Concepts for a New PRO Instrument

(2011) Donald L. Patrick et al.   VALUE IN HEALTH

The Dutch Consumer Quality Index: an example of stakeholder involvement in indicator development

(2010) Diana MJ Delnoij et al.   BMC HEALTH SERVICES RESEARCH

Adding The Patient Perspective To Comparative Effectiveness Research

(2010) Albert W. Wu et al.   HEALTH AFFAIRS

Patient-reported outcome measures in the NHS: new methods for analysing and reporting EQ-5D data

(2010) Nancy J. Devlin et al.   HEALTH ECONOMICS

The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: an international Delphi study

(2010) Lidwine B. Mokkink et al.   QUALITY OF LIFE RESEARCH

Development of the Pediatric Restless Legs Syndrome Severity Scale (P-RLS-SS)©: A patient-reported outcome measure of pediatric RLS symptoms and impact

(2010) Robert Arbuckle et al.   SLEEP MEDICINE

Collaboration with patients in the design of patient-reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis

(2010) Joanna Nicklin et al.   ARTHRITIS CARE & RESEARCH

Development of a questionnaire to measure patient-reported postoperative recovery: content validity and intra-patient reliability

(2009) Renée Allvin et al.   JOURNAL OF EVALUATION IN CLINICAL PRACTICE

Development of a New Patient-Reported Outcome Measure for Breast Surgery: The BREAST-Q

(2009) Andrea L. Pusic et al.   PLASTIC AND RECONSTRUCTIVE SURGERY