Informal Caregivers in Amyotrophic Lateral Sclerosis: A Multi-Centre, Exploratory Study of Burden and Difficulties

Incidence, Prevalence and Geographical Clustering of Motor Neuron Disease in the Netherlands

(2021) Adriaan D. de Jongh et al.   NEUROLOGY

Informal Caregiving in Amyotrophic Lateral Sclerosis (ALS): A High Caregiver Burden and Drastic Consequences on Caregivers’ Lives

(2021) Pavel Schischlevskij et al.   Brain Sciences

Individual quality of life in spousal ALS patient-caregiver dyads

(2020) Miriam Galvin et al.   Health and Quality of Life Outcomes

The Impact of Cognitive and Behavioral Symptoms on ALS Patients and Their Caregivers

(2019) Jashelle Caga et al.   Frontiers in Neurology

Predicting the future of ALS: the impact of demographic change and potential new treatments on the prevalence of ALS in the United Kingdom, 2020–2116

(2019) Alison Gowland et al.   Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Lifetime Risk and Heritability of Amyotrophic Lateral Sclerosis

(2019) Marie Ryan et al.   JAMA Neurology

Needs of informal caregivers across the caregiving course in amyotrophic lateral sclerosis: a qualitative analysis

(2018) Miriam Galvin et al.   BMJ Open

Caregivers of patients with amyotrophic lateral sclerosis: investigating quality of life, caregiver burden, service engagement, and patient survival

(2017) Tom Burke et al.   JOURNAL OF NEUROLOGY

Caregiver burden in amyotrophic lateral sclerosis: A systematic review

(2017) Jessica de Wit et al.   PALLIATIVE MEDICINE

From first symptoms to diagnosis of amyotrophic lateral sclerosis: perspectives of an Irish informal caregiver cohort—a thematic analysis

(2017) Miriam Galvin et al.   BMJ Open

Caregiving in ALS – a mixed methods approach to the study of Burden

(2016) Miriam Galvin et al.   BMC Palliative Care

Caregiver burden in amyotrophic lateral sclerosis: a cross-sectional investigation of predictors

(2015) Tom Burke et al.   JOURNAL OF NEUROLOGY

End-of-life management in patients with amyotrophic lateral sclerosis

(2015) Sheelah Connolly et al.   LANCET NEUROLOGY

Cognitive Impairment in Chinese Patients with Sporadic Amyotrophic Lateral Sclerosis

(2015) Bo Cui et al.   PLoS One

Development and evaluation of a clinical staging system for amyotrophic lateral sclerosis

(2013) Adriano Chiò et al.   JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY

The Impact on the Family Carer of Motor Neurone Disease and Intervention with Noninvasive Ventilation

(2013) Susan K. Baxter et al.   JOURNAL OF PALLIATIVE MEDICINE

Survival Analysis of Irish Amyotrophic Lateral Sclerosis Patients Diagnosed from 1995–2010

(2013) James Rooney et al.   PLoS One

The Hospital Anxiety and Depression Scale: A meta confirmatory factor analysis

(2012) Sam Norton et al.   JOURNAL OF PSYCHOSOMATIC RESEARCH

A 10-year literature review of family caregiving for motor neurone disease: Moving from caregiver burden studies to palliative care interventions

(2012) Samar M Aoun et al.   PALLIATIVE MEDICINE

Physical and Mental Health Effects of Family Caregiving

(2011) Richard Schulz et al.   AMERICAN JOURNAL OF NURSING

Predictors of quality of life in carers for people with a progressive neurological illness: a longitudinal study

(2010) Elodie J. O’Connor et al.   QUALITY OF LIFE RESEARCH