Patient-reported impact of myasthenia gravis in the real world: protocol for a digital observational study (MyRealWorld MG)

Exploring the Impact of Adding a Respiratory Dimension to the EQ-5D-5L

(2019) Martine Hoogendoorn et al.   MEDICAL DECISION MAKING

Myasthenia gravis

(2019) Nils Erik Gilhus et al.   Nature Reviews Disease Primers

Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on data sharing and data protection - quantitative survey and recommendations

(2019) Sandra Courbier et al.   Orphanet Journal of Rare Diseases

Understanding side effects of therapy for myasthenia gravis and their impact on daily life

(2019) Elizabeth Dansie Bacci et al.   BMC Neurology

Selecting Bolt-On Dimensions for the EQ-5D: Examining Their Contribution to Health-Related Quality of Life

(2018) Aureliano Paolo Finch et al.   VALUE IN HEALTH

International clinimetric evaluation of the MG-QOL15, resulting in slight revision and subsequent validation of the MG-QOL15r

(2016) Ted M. Burns et al.   MUSCLE & NERVE

International consensus guidance for management of myasthenia gravis

(2016) Donald B. Sanders et al.   NEUROLOGY

Myasthenia gravis: descriptive analysis of life-threatening events in a recent nationwide registry

(2015) A. Ramos-Fransi et al.   EUROPEAN JOURNAL OF NEUROLOGY

An up-date on health-related quality of life in myasthenia gravis -results from population based cohorts

(2015) M. I. Boldingh et al.   Health and Quality of Life Outcomes

Quality of life in 188 patients with myasthenia gravis in China

(2015) Yongxiang Yang et al.   INTERNATIONAL JOURNAL OF NEUROSCIENCE

The effectiveness of collaborative care for people with memory problems in primary care: results of the CAREDEM case management modelling and feasibility study

(2014) Steve Iliffe et al.   HEALTH TECHNOLOGY ASSESSMENT

Myasthenia gravis: A comprehensive review of immune dysregulation and etiological mechanisms

(2014) Sonia Berrih-Aknin et al.   JOURNAL OF AUTOIMMUNITY

The Hospital Anxiety and Depression Scale

(2014) A. F. Stern   OCCUPATIONAL MEDICINE-OXFORD

Clinical profile and outcome of myasthenic crisis in a tertiary care hospital: A prospective study

(2013) Vivek Lal et al.   Annals of Indian Academy of Neurology

Effect of Adding a Sleep Dimension to the EQ-5D Descriptive System

(2013) Yaling Yang et al.   MEDICAL DECISION MAKING

Development of a Disease-Specific Version of the EQ-5D-5L for Use in Patients Suffering from Psoriasis: Lessons Learned from a Feasibility Study in the UK

(2013) Paul Swinburn et al.   VALUE IN HEALTH

Complete stable remission and autoantibody specificity in myasthenia gravis

(2012) F. Baggi et al.   NEUROLOGY

MG-ADL: Still a relevant outcome measure

(2011) Srikanth Muppidi et al.   MUSCLE & NERVE

Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L)

(2011) M. Herdman et al.   QUALITY OF LIFE RESEARCH

Quality of life and life circumstances in German myasthenia gravis patients

(2010) Sabine Twork et al.   Health and Quality of Life Outcomes

Less is more, or almost as much: A 15-item quality-of-life instrument for myasthenia gravis

(2008) Ted M. Burns et al.   MUSCLE & NERVE