Patient activation and treatment decision-making in the context of cancer: examining the contribution of informal caregivers’ involvement

Implementation of Self-Management Interventions in Cancer Survivors: Why Are We Not There Yet?

(2021) Ben Rimmer et al.   JOURNAL OF CANCER EDUCATION

Systematic Review of Technology-Based Interventions Targeting Chronically Ill Adults and Their Caregivers

(2020) Elliane Irani et al.   WESTERN JOURNAL OF NURSING RESEARCH

Empowering patients in decision-making in radiation oncology - can we do better?

(2020) Michelle Leech et al.   Molecular Oncology

Interdependence of physical and psychological morbidity among patients with cancer and family caregivers: Review of the literature

(2020) Brennan P. Streck et al.   PSYCHO-ONCOLOGY

A Gender Framework for Understanding Health Lifestyles

(2020) Stefanie Mollborn et al.   SOCIAL SCIENCE & MEDICINE

How do family-caregivers of patients with advanced cancer provide symptom self-management support? A qualitative study

(2020) Ruth Pethybridge et al.   European Journal of Oncology Nursing

Prostate Cancer Survivors’ and Caregivers’ Experiences Using Behavior Change Techniques during a Web-Based Self-Management and Physical Activity Program: A Qualitative Study

(2020) Laura Hallward et al.   Journal of Clinical Medicine

Adherence to treatment guidelines as a major determinant of survival disparities between black and white patients with ovarian cancer

(2020) Fa Chen et al.   GYNECOLOGIC ONCOLOGY

Interventions to Support Behavioral Self-Management of Chronic Diseases

(2019) John P. Allegrante et al.   Annual Review of Public Health

Cancer statistics, 2019

(2019) Rebecca L. Siegel et al.   CA-A CANCER JOURNAL FOR CLINICIANS

Barriers and facilitators to shared decision-making in oncology: a systematic review of the literature

(2019) Jordan R. Covvey et al.   SUPPORTIVE CARE IN CANCER

How family caregivers of persons with advanced cancer assist with upstream healthcare decision-making: A qualitative study

(2019) J. Nicholas Dionne-Odom et al.   PLoS One

Adolescent and Young Adult Cancer Patients’ Experiences With Treatment Decision-making

(2019) Jennifer W. Mack et al.   PEDIATRICS

Understanding patient activation and adherence to nebuliser treatment in adults with cystic fibrosis: responses to the UK version of PAM-13 and a think aloud study

(2019) Jie Gao et al.   BMC HEALTH SERVICES RESEARCH

Cancer treatment and survivorship statistics, 2019

(2019) Kimberly D. Miller et al.   CA-A CANCER JOURNAL FOR CLINICIANS

Economic Burden Associated with Cancer Caregiving

(2019) Cathy J. Bradley   Seminars in Oncology Nursing

The Caregiving Health Engagement Scale (CHE-s): development and initial validation of a new questionnaire for measuring family caregiver engagement in healthcare

(2019) Serena Barello et al.   BMC PUBLIC HEALTH

Contextual and stress process factors associated with head and neck cancer caregivers’ physical and psychological well-being

(2018) M.-S. Paek et al.   EUROPEAN JOURNAL OF CANCER CARE

“Brave Men” and “Emotional Women”: A Theory-Guided Literature Review on Gender Bias in Health Care and Gendered Norms towards Patients with Chronic Pain

(2018) Anke Samulowitz et al.   Pain Research & Management

Patient’s Cognitive Function and Attitudes towards Family Involvement in Cancer Treatment Decision Making: A Patient-Family Caregiver Dyadic Analysis

(2018) Dong Wook Shin et al.   Cancer Research and Treatment

Measuring caregiver activation to identify coaching and support needs: Extending MYLOH to advanced chronic illness

(2018) Soo Borson et al.   PLoS One

Self-management intervention for head and neck cancer couples: Results of a randomized pilot trial

(2018) Hoda Badr et al.   CANCER

How to practice person-centred care: A conceptual framework

(2017) Maria J. Santana et al.   HEALTH EXPECTATIONS

Telehealth Interventions to Support Self-Management of Long-Term Conditions: A Systematic Metareview of Diabetes, Heart Failure, Asthma, Chronic Obstructive Pulmonary Disease, and Cancer

(2017) Peter Hanlon et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Future cancer research priorities in the USA: a Lancet Oncology Commission

(2017) Elizabeth M Jaffee et al.   LANCET ONCOLOGY

The TRIO Framework: Conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making

(2017) Rebekah Laidsaar-Powell et al.   PATIENT EDUCATION AND COUNSELING

Does patient activation level affect the cancer patient journey?

(2017) Judith H. Hibbard et al.   PATIENT EDUCATION AND COUNSELING

The role of Patient Health Engagement Model (PHE-model) in affecting patient activation and medication adherence: A structural equation model

(2017) Guendalina Graffigna et al.   PLoS One

Impact of caregiver burden on mental health in bereaved caregivers of cancer patients: A systematic review

(2017) Julia Große et al.   PSYCHO-ONCOLOGY

Determinants of patient activation in a community sample of breast and prostate cancer survivors

(2017) Denalee O'Malley et al.   PSYCHO-ONCOLOGY

Shared decision-making and providing information among newly diagnosed patients with hematological malignancies and their informal caregivers: Not “one-size-fits-all”

(2017) J.A.J. Rood et al.   PSYCHO-ONCOLOGY

Barriers and facilitators of adjuvant hormone therapy adherence and persistence in women with breast cancer: a systematic review

(2017) Zoe Moon et al.   Patient Preference and Adherence

Caring for caregivers and patients: Research and clinical priorities for informal cancer caregiving

(2016) Erin E. Kent et al.   CANCER

The Relationship Between Cancer Survivors’ Socioeconomic Status and Reports of Follow-up Care Discussions with Providers

(2016) Lisa D. DiMartino et al.   JOURNAL OF CANCER EDUCATION

Family involvement in cancer treatment decision-making: A qualitative study of patient, family, and clinician attitudes and experiences

(2016) Rebekah Laidsaar-Powell et al.   PATIENT EDUCATION AND COUNSELING

Patient empowerment, patient participation and patient-centeredness in hospital care: A concept analysis based on a literature review

(2016) Eva Marie Castro et al.   PATIENT EDUCATION AND COUNSELING

A chronic care ostomy self-management program for cancer survivors

(2016) Robert S. Krouse et al.   PSYCHO-ONCOLOGY

Attitudes and experiences of family involvement in cancer consultations: a qualitative exploration of patient and family member perspectives

(2016) Rebekah Laidsaar-Powell et al.   SUPPORTIVE CARE IN CANCER

The role of families in decisions regarding cancer treatments

(2015) Gabriela S. Hobbs et al.   CANCER

How Are Spousal Depressed Mood, Distress, and Quality of Life Associated with Risk of Depressed Mood in Cancer Survivors? Longitudinal Findings from a National Sample

(2015) K. Litzelman et al.   CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION

Development and usability testing of a web-based self-management intervention for oral cancer survivors and their family caregivers

(2015) H. Badr et al.   EUROPEAN JOURNAL OF CANCER CARE

When Patient Activation Levels Change, Health Outcomes And Costs Change, Too

(2015) Jessica Greene et al.   HEALTH AFFAIRS

The association between patient activation and medication adherence, hospitalization, and emergency room utilization in patients with chronic illnesses: A systematic review

(2015) Rebecca L. Kinney et al.   PATIENT EDUCATION AND COUNSELING

Quality of life of family caregivers 8 years after a relative's cancer diagnosis: follow-up of the National Quality of Life Survey for Caregivers

(2015) Youngmee Kim et al.   PSYCHO-ONCOLOGY

Activation for Health Management in Colorectal Cancer Survivors and Their Family Caregivers

(2015) Susan R. Mazanec et al.   WESTERN JOURNAL OF NURSING RESEARCH

Cancer caregiving tasks and consequences and their associations with caregiver status and the caregiver’s relationship to the patient: a survey

(2014) Line Lund et al.   BMC CANCER

Cancer caregiving predicts physical impairments: Roles of earlier caregiving stress and being a spousal caregiver

(2014) Youngmee Kim et al.   CANCER

Collaborative deliberation: A model for patient care

(2014) Glyn Elwyn et al.   PATIENT EDUCATION AND COUNSELING

Cross-sectional relationships between dyadic coping and anxiety, depression, and relationship satisfaction for patients with prostate cancer and their spouses

(2014) Tim W. Regan et al.   PATIENT EDUCATION AND COUNSELING

“Speaking-for” and “speaking-as”: Pseudo-surrogacy in physician–patient–companion medical encounters about advanced cancer

(2014) Benjamin L. Mazer et al.   PATIENT EDUCATION AND COUNSELING

A literature review on the mutual impact of the spousal caregiver–cancer patients dyads: ‘Communication’, ‘reciprocal influence’, and ‘caregiver–patient congruence’

(2013) Qiuping Li et al.   European Journal of Oncology Nursing

What The Evidence Shows About Patient Activation: Better Health Outcomes And Care Experiences; Fewer Data On Costs

(2013) Judith H. Hibbard et al.   HEALTH AFFAIRS

Effect of Patient Activation on Self-Management in Patients With Heart Failure

(2013) Martha J. Shively et al.   Journal of Cardiovascular Nursing

Effects of Self-Care on Quality of Life in Adults With Heart Failure and Their Spousal Caregivers

(2013) Ercole Vellone et al.   Journal of Family Nursing

A Systematic Review of Web-Based Interventions for Patient Empowerment and Physical Activity in Chronic Diseases: Relevance for Cancer Survivors

(2013) Wilma Kuijpers et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Health-related quality of life after surgical treatment in patients with non-small cell lung cancer: A systematic review

(2013) Hermine Poghosyan et al.   LUNG CANCER

Physical and psychosocial problems in cancer survivors beyond return to work: a systematic review

(2013) Saskia F. A. Duijts et al.   PSYCHO-ONCOLOGY

Preferences for and experiences of family involvement in cancer treatment decision-making: patient-caregiver dyads study

(2013) Dong Wook Shin et al.   PSYCHO-ONCOLOGY

Framework to assess the effects of using patient-reported outcome measures in chronic care management

(2013) Maria-Jose Santana et al.   QUALITY OF LIFE RESEARCH

The importance of symptom surveillance during follow-up care of leukemia, bladder, and colorectal cancer survivors

(2013) Erin E. Kent et al.   SUPPORTIVE CARE IN CANCER

Physical, Psychosocial, Relationship, and Economic Burden of Caring for People With Cancer: A Review

(2013) Afaf Girgis et al.   Journal of Oncology Practice

Patient factors and glycaemic control - associations and explanatory power

(2012) S. Rogvi et al.   DIABETIC MEDICINE

Effects of a Web-Based Intervention for Adults With Chronic Conditions on Patient Activation: Online Randomized Controlled Trial

(2012) Michael Solomon et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Shared Mind: Communication, Decision Making, and Autonomy in Serious Illness

(2011) R. M. Epstein et al.   ANNALS OF FAMILY MEDICINE

Self-management: Enabling and empowering patients living with cancer as a chronic illness

(2011) Ruth McCorkle et al.   CA-A CANCER JOURNAL FOR CLINICIANS

Family Caregivers and Cancer Pain Management: A Review

(2011) Mary Ann Meeker et al.   Journal of Family Nursing

An organizing framework for informal caregiver interventions: detailing caregiving activities and caregiver and care recipient outcomes to optimize evaluation efforts

(2011) Courtney Harold Van Houtven et al.   BMC Geriatrics

Quality of Life After Breast Cancer Diagnosis and Survival

(2010) Meira Epplein et al.   JOURNAL OF CLINICAL ONCOLOGY

Preferences of Patients with Advanced Lung Cancer Regarding the Involvement of Family and Others in Medical Decision-Making

(2010) Koen Pardon et al.   JOURNAL OF PALLIATIVE MEDICINE

Objective burden, resources, and other stressors among informal cancer caregivers: a hidden quality issue?

(2010) Michelle van Ryn et al.   PSYCHO-ONCOLOGY

Measuring self-management of patients’ and employees’ health: Further validation of the Patient Activation Measure (PAM) based on its relation to employee characteristics

(2009) Jinnet Briggs Fowles et al.   PATIENT EDUCATION AND COUNSELING

Review of the literature on the effects of caring for a patient with cancer

(2009) Una Stenberg et al.   PSYCHO-ONCOLOGY

Hidden in Plain SightMedical Visit Companions as a Resource for Vulnerable Older Adults

(2008) Jennifer L. Wolff   ARCHIVES OF INTERNAL MEDICINE

THE MEDICAL DECISION-MAKING PROCESS AND THE FAMILY: THE CASE OF BREAST CANCER PATIENTS AND THEIR HUSBANDS

(2008) ROY GILBAR et al.   BIOETHICS

Intimacy and relationship processes in couples' psychosocial adaptation to cancer

(2008) Sharon Manne et al.   CANCER

Using Systematic Measurement to Target Consumer Activation Strategies

(2008) Judith H. Hibbard   MEDICAL CARE RESEARCH AND REVIEW

Companion participation in cancer consultations

(2007) Richard L. Street et al.   PSYCHO-ONCOLOGY