Dravet syndrome: Effects on informal caregivers’ mental health and quality of life – A systematic review

Changing Landscape of Dravet Syndrome Management: An Overview

(2020) Debopam Samanta   NEUROPEDIATRICS

Intellectual functioning and behavior in Dravet syndrome: A systematic review

(2020) Josefine Soto Jansson et al.   EPILEPSY & BEHAVIOR

Impact of childhood Dravet syndrome on care givers of patients with DS, a major impact on mothers

(2020) Rima Nabbout et al.   EPILEPSY & BEHAVIOR

Barriers to transition from pediatric to adult care for patients with Dravet syndrome: A focus group study of caregivers

(2020) Danielle M. Boyce et al.   EPILEPSY & BEHAVIOR

Quality of life and correlating factors in children, adolescents with epilepsy, and their caregivers: A cross-sectional multicenter study from Germany

(2019) Janna Riechmann et al.   SEIZURE-EUROPEAN JOURNAL OF EPILEPSY

Burden-of-illness and cost-driving factors in Dravet syndrome patients and carers: A prospective, multicenter study from Germany

(2019) Adam Strzelczyk et al.   EUROPEAN JOURNAL OF PAEDIATRIC NEUROLOGY

A multicenter, matched case-control analysis comparing burden-of-illness in Dravet syndrome to refractory epilepsy and seizure remission in patients and caregivers in Germany

(2019) Adam Strzelczyk et al.   EPILEPSIA

Addressing overestimation of the prevalence of depression based on self-report screening questionnaires

(2018) Brett D. Thombs et al.   CANADIAN MEDICAL ASSOCIATION JOURNAL

Assessing the impact of caring for a child with Dravet syndrome: Results of a caregiver survey

(2018) Jonathan D. Campbell et al.   EPILEPSY & BEHAVIOR

Development and content validation of a preliminary core set of patient- and caregiver-relevant outcomes for inclusion in a potential composite endpoint for Dravet Syndrome

(2018) Rima Nabbout et al.   EPILEPSY & BEHAVIOR

The direct and indirect costs of Dravet Syndrome

(2018) Melanie D. Whittington et al.   EPILEPSY & BEHAVIOR

Trends in resource utilization and prescription of anticonvulsants for patients with active epilepsy in Germany from 2003 to 2013 — A ten-year overview

(2018) Laurent M. Willems et al.   EPILEPSY & BEHAVIOR

A systematic review of quality of life in parents of children with epilepsy

(2018) Klajdi Puka et al.   EPILEPSY & BEHAVIOR

Care-related quality of life in caregivers of children with drug-resistant epilepsy

(2018) Puneet Jain et al.   JOURNAL OF NEUROLOGY

Incidence, Risk Factors and Consequences of Epilepsy-Related Injuries and Accidents: A Retrospective, Single Center Study

(2018) Laurent M. Willems et al.   Frontiers in Neurology

Caregiver impact and health service use in high and low severity Dravet syndrome: A multinational cohort study

(2018) Lieven Lagae et al.   SEIZURE-EUROPEAN JOURNAL OF EPILEPSY

ILAE classification of the epilepsies: Position paper of the ILAE Commission for Classification and Terminology

(2017) Ingrid E. Scheffer et al.   EPILEPSIA

The humanistic and economic burden of Dravet syndrome on caregivers and families: Implications for future research

(2017) Mark P. Jensen et al.   EPILEPSY & BEHAVIOR

Dravet syndrome: Characteristics, comorbidities, and caregiver concerns

(2017) Nicole Villas et al.   EPILEPSY & BEHAVIOR

Life impact of caregiving for severe childhood epilepsy: Results of expert panels and caregiver focus groups

(2017) Mark P. Jensen et al.   EPILEPSY & BEHAVIOR

From genotype to phenotype in Dravet disease

(2017) Svetlana Gataullina et al.   SEIZURE-EUROPEAN JOURNAL OF EPILEPSY

Helping Families Cope with the Severe Stress of Dravet Syndrome

(2016) Peter Camfield et al.   CANADIAN JOURNAL OF NEUROLOGICAL SCIENCES

Parental anxiety in childhood epilepsy: A systematic review

(2016) Chloe Jones et al.   EPILEPSIA

Mortality in Dravet syndrome

(2016) Monica S. Cooper et al.   EPILEPSY RESEARCH

Qualitative research methods: when to use them and how to judge them

(2016) K. Hammarberg et al.   HUMAN REPRODUCTION

Self-reported health and gender: The role of social norms

(2016) Eve Caroli et al.   SOCIAL SCIENCE & MEDICINE

Costs of epilepsy and cost-driving factors in children, adolescents, and their caregivers in Germany

(2015) Janna Riechmann et al.   EPILEPSIA

Hallucinations and delusions are frequently reported in individuals with Dravet syndrome

(2015) J. Peter Martin et al.   EPILEPSY & BEHAVIOR

Incidence of Dravet Syndrome in a US Population

(2015) Y. W. Wu et al.   PEDIATRICS

The psychoeducational program for children with epilepsy and their parents (FAMOSES): Results of a controlled pilot study and a survey of parent satisfaction over a five-year period

(2012) M. Pfäfflin et al.   EPILEPSY & BEHAVIOR

Helping families cope with the devastation of Dravet syndrome

(2012) Peter Camfield et al.   EUROPEAN JOURNAL OF PAEDIATRIC NEUROLOGY

Dravet syndrome and parent associations: The IDEA League experience with comorbid conditions, mortality, management, adaptation, and grief

(2011) Joan V. Skluzacek et al.   EPILEPSIA

Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement

(2009) David Moher et al.   PLOS MEDICINE