Article
Psychology, Clinical
Sabina Vatter, Timothy E. Schlub, Christine E. Napier, Megan C. Best, Nicci Bartley, Ilona Juraskova, Bettina Meiser, Mandy L. Ballinger, Barbara B. Biesecker, David Goldstein, David M. Thomas, Phyllis Butow
Summary: This study investigated the psychological state and related factors of advanced cancer patients after receiving comprehensive tumor genomic profiling (CGP) results. The study found that most patients did not experience significant distress after receiving the results, although hope decreased. General anxiety and CGP-specific anxiety also decreased. Psychological and demographic factors were associated with psychological status.
Article
Oncology
Jan Ilgen, Mirjam Renovanz, Andreas Stengel, Stephan Zipfel, Norbert Schaeffeler
Summary: Cancer causes psychological distress, and resilience, a psychological adaptive capacity, significantly impacts distress among patients with neuro-oncological disease. Resilience has a significant effect on distress in the acute phase.
Article
Psychology, Multidisciplinary
Alessandro Alberto Rossi, Maria Marconi, Federica Taccini, Claudio Verusio, Stefania Mannarini
Summary: This study aimed to investigate the psychometric properties of the Psychological Distress Inventory (PDI) through two independent studies. Study 1 found that the original PDI had an unclear structure and needed to be reconsidered; whereas Study 2 showed that the revised version (PDI-R) had a solid factorial structure, was invariant across gender and age, and had good psychometric properties, suggesting it is a reliable measure for psychological distress in oncological patients.
FRONTIERS IN PSYCHOLOGY
(2022)
Article
Oncology
Christopher F. Sharpley, David R. H. Christie, Vicki Bitsika
Summary: The study confirmed the buffering effect of psychological resilience on depression in prostate cancer patients, and found that past and current treatments may have effects on patients' psychological resilience, suggesting a possible 'steeling' effect.
Article
Oncology
M. Zwakman, M. M. Milota, A. van der Heide, L. J. Jabbarian, I. J. Korfage, J. A. C. Rietjens, J. J. M. van Delden, M. C. Kars
Summary: This study reveals that patients do not have to be fully ready for all ACP topics to participate in ACP conversations. Healthcare professionals should be sensitive to patients' readiness and adapt the conversation accordingly.
SUPPORTIVE CARE IN CANCER
(2021)
Review
Oncology
Fiona S. M. Schulte, Michaela Patton, Nicole M. Alberts, Alicia Kunin-Batson, Barbara A. Olson-Bullis, Caitlin Forbes, K. Brooke Russell, Alexandra Neville, Lauren C. Heathcote, Cynthia W. Karlson, Nicole M. Racine, Courtney Charnock, Matthew C. Hocking, Pia Banerjee, Perri R. Tutelman, Melanie Noel, Kevin R. Krull
Summary: Survivors of childhood cancer are at higher risk of experiencing pain, especially chronic pain. Females report more pain than males, and factors related to pain will require stronger evidence support. Theoretically grounded, multidimensional measurements of pain are absent from the literature.
Article
Oncology
Yilong Yang, Xinxin Zhao, Meng Cui, Simeng Wang, Yumei Wang
Summary: In Chinese inpatients with terminal cancer receiving short-term palliative care, there is a decreasing trend in spiritual well-being, particularly in the meaning facet. Decreases in existential well-being are related to increases in depression and pain, and optimism-pessimism may moderate the linear trend of existential well-being and meaning domain.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Health Care Sciences & Services
Anna J. Pedrosa Carrasco, Martin Koch, Teresa Machacek, Anna Genz, Svenja Herzog, Jorge Riera Knorrenschild, Pia von Blanckenburg, Carola Seifart
Summary: This study evaluated a novel collaborative advance care planning approach by synthesizing cancer patient and carer perspectives on communicational and relational effects. Participants consistently evaluated the approach positively, stating that it served to foster individual and societal readiness for advance care planning discussions. However, the approach may require more time and human resources to implement effectively.
PALLIATIVE MEDICINE
(2021)
Article
Oncology
Jordan Gilleland Marchak, Sean N. Halpin, Cam Escoffery, Shade Owolabi, Ann C. Mertens, Karen Wasilewski-Masker
Summary: Formative research methods were used to plan for the implementation of evidence-based psychosocial screening in pediatric oncology, with focus groups of multidisciplinary professionals highlighting barriers, suggestions for adaptation, and potential impacts of electronic screening. Specific implementation strategies were then developed based on the qualitative data collected, aimed at supporting the adoption, implementation, and maintenance of electronic screening programs in pediatric oncology.
Review
Oncology
Louise Mullen, Christina Signorelli, Larissa Nekhlyudov, Paul B. Jacobsen, Isaiah Gitonga, Tania Estape, Beverly Lim-Hoeg, Anne Miles, Cristina Sade, Carolyn Mazariego, Csaba L. Degi, Fuchsia Howard, Sharon Manne, Luzia Travado, Michael Jefford
Summary: This study found that most National Cancer Control Plans did not mention psycho-oncology, and only one-quarter of the plans had clear objectives specifically in the post-treatment survivorship phase.
Article
Oncology
Daniel John Hubik, Clare O'Callaghan, Justin Dwyer
Summary: Doctors working in specialist palliative care services experience a variety of strong emotions in their daily work, including distress from patients, families, staff, and organizational issues. These strong emotional reactions can impact clinical behaviors, patient care, and doctors' personal lives. Various strategies are developed to manage these emotions, including debriefing, setting boundaries, avoidance, self-reflection, and non-work related activities such as spending time with family.
Review
Critical Care Medicine
Emily K. Rose, James O'Connor
Summary: COPD is a progressive disease that affects patients' quality of life, and it is crucial to discuss patients' care goals before the disease becomes refractory. Advance Care Planning (ACP) is a comprehensive approach to discussing goals with patients. Existing research has shown that ACP improves communication, reduces hospital admissions, and enhances quality of life, although most studies have focused on cancer patients. Without further research and guidance, obtaining funding for ACP programs dedicated to COPD may be challenging. There are currently no guidelines for addressing ACP in patients with COPD, and barriers exist that hinder meaningful discussions between patients, families, and healthcare providers. Research has also indicated that multidisciplinary teams can improve care and quality of life. Therefore, dedicated research should investigate the effects of ACP initiatives on outcomes in COPD patients, particularly in reducing hospital admissions and improving quality of life.
Review
Pediatrics
Lars Dinkelbach, Maren Galushko, Anne Oommen-Halbach, Melisa Felek, Oliver Dechert, Laura Trocan, Gisela Janssen
Summary: The parental migration history in pediatric palliative care has an influence on advance care planning decisions, but the patients' underlying disease may be more crucial. Culture-sensitive and patient-centered care is essential in pediatric palliative care.
EUROPEAN JOURNAL OF PEDIATRICS
(2022)
Article
Psychology, Clinical
Vera Yu Men, Clifton Robert Emery, Tai-Chung Lam, Paul Siu Fai Yip
Summary: Cancer patients are at risk of suicidal/self-harm behaviors, with factors such as cancer severity, history of suicidal behaviors, diabetes, and hypertension playing a role. Age and gender may also impact the influence of these factors.
PSYCHOLOGICAL MEDICINE
(2022)
Article
Clinical Neurology
Jenny T. van der Steen, Miharu Nakanishi, Lieve van den Block, Paola Di Giulio, Silvia Gonella, Juergen In Der Schmitten, Rebecca L. Sudore, Karen Harrison Dening, Deborah Parker, Ninoslav Mimica, Iva Holmerova, Philip Larkin, Sandra Martins Pereira, Judith A. C. Rietjens, Ida J. Korfage
Summary: This study aimed to conceptualize advance care planning for dementia through a Delphi study, focusing on defining the concept and identifying key issues such as capacity, family, and engagement. The results highlighted the importance of communication and relationship-centered approach for ACP in dementia.
ALZHEIMERS & DEMENTIA
(2023)
Article
Family Studies
Nancy Lau, Anna M. Zhou, Amanda Yuan, Ryan Parigoris, Abby R. Rosenberg, John R. Weisz
Summary: Social Anxiety Disorder is highly prevalent among children and can lead to negative long-term outcomes. This pilot study found evidence of both social skills deficits and negative self-appraisal biases in anxious children. Anxious children struggled with physical discomfort but not with speech content.
JOURNAL OF CHILD AND FAMILY STUDIES
(2023)
Article
Health Care Sciences & Services
Karly M. Murphy, Edith Chen, Edward H. Ip, Abby R. Rosenberg, Mallory A. Snyder, John M. Salsman
Summary: The present study examined the psychometric properties of the Shift and Persist Questionnaire (SPQ) in adolescent and young adult cancer patients and survivors, and provided guidelines for interpretation. The results showed that the SPQ had good structural validity, internal consistency, and construct validity, and recommended minimal important differences (MIDs) to enhance its interpretability.
QUALITY OF LIFE RESEARCH
(2023)
Article
Pediatrics
Abby R. Rosenberg, Krysta S. Barton, Miranda C. Bradford, Shaquita Bell, Linda Quan, Anita Thomas, Leslie Walker-Harding, Anne C. Slater
Summary: This study examines the prevalence of gender-harassment in academic pediatrics and the challenges faced in reporting it. The results show that many faculty members have experienced gender-harassment, but there is a fear and sense of futility in reporting it.
ACADEMIC PEDIATRICS
(2023)
Review
Health Care Sciences & Services
William E. Rosa, Shigeko Izumi, Donald R. Sullivan, Joshua Lakin, Abby R. Rosenberg, Claire J. Creutzfeldt, Debbie Lafond, Jennifer Tjia, Valerie Cotter, Cara Wallace, Danetta E. Sloan, Dulce Maria Cruz-Oliver, Susan DeSanto-Madeya, Rachelle Bernacki, Thomas W. Leblanc, Andrew S. Epstein
Summary: This study aims to identify the potential benefits and missed opportunities of ACP and provide an evidence-informed, clinically relevant path for ACP in serious illness. Early ACP practices focused on document completion, potentially missing holistic preferences. ACP models that emphasize communication show promising results for patients and clinicians.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Medicine, Research & Experimental
Maeve B. O'Donnell, Samantha R. Scott, Britney M. Ellisor, Viena T. Cao, Chuan Zhou, Miranda C. Bradford, Catherine Pihoker, Daniel J. DeSalvo, Faisal S. Malik, Marisa E. Hilliard, Abby R. Rosenberg, Joyce P. Yi-Frazier
Summary: The PRISM program is a skills-based intervention aimed at promoting resilience among adolescents with T1D and elevated diabetes distress. This randomized controlled trial seeks to assess the impact of PRISM on glycemic outcomes, diabetes distress, resilience, self-reported adherence, and quality of life. The study aims to provide rigorous evidence and data regarding the effectiveness of this novel intervention and its potential to improve outcomes for this high-risk group.
CONTEMPORARY CLINICAL TRIALS
(2023)
Editorial Material
Pediatrics
Abby R. Rosenberg, Crystal E. Brown, William E. Rosa, Joyce P. Yi-Frazier
LANCET CHILD & ADOLESCENT HEALTH
(2023)
Article
Dentistry, Oral Surgery & Medicine
Kaitlyn M. Fladeboe, Nicola Marie Stock, Carrie L. Heike, Kelly N. Evans, Courtney Junkins, Laura Stueckle, Alison O'Daffer, Abby R. Rosenberg, Joyce P. Yi-Frazier
Summary: This study aimed to assess the feasibility and acceptability of the PRISM-P intervention among caregivers of children with craniofacial conditions, and to describe the barriers and facilitators of caregiver resilience to inform program adaptation. The results showed that the intervention was acceptable among caregivers, but faced difficulties in program completion.
CLEFT PALATE CRANIOFACIAL JOURNAL
(2023)
Article
Oncology
Rebecca A. Spence, Leslie J. Hinyard, Reshma Jagsi, Rachel B. Jimenez, Ana Maria Lopez, Mariana Chavez-MacGregor, Kayte Spector-Bagdady, Abby R. Rosenberg
Summary: The decision in Dobbs v Jackson Women's Health Organization has revoked federal protection for abortion rights, allowing states to ban abortion without exceptions. This has had a significant impact on patient care in various medical fields, including oncology. However, ethical considerations for physicians remain unchanged, and ASCO provides guidance to help oncologists and institutions navigate these limitations while upholding their ethical duties. This paper establishes principles for cancer care and pregnancy, offers an ethical framework for oncologists caring for pregnant patients, and provides recommendations for individual and institutional action to support evidence-based and patient-centered care in the United States where abortion is illegal or restricted.
JOURNAL OF CLINICAL ONCOLOGY
(2023)
Article
Oncology
Neel S. Bhatt, Kelly J. Shipman, Abby R. Rosenberg, Kari M. Jenssen, Sheri A. Ballard, Kevin Scott Baker, Krysta S. Barton
Summary: This study examined the challenges faced by caregivers of adolescent hematopoietic cell transplant (HCT) recipients during their child's return to school after completion of therapy. Lack of communication between healthcare and school teams was identified as a major issue, and the need for better support and coordination for caregivers was emphasized. The findings of this study could serve as a framework for developing supportive care interventions to improve the return-to-school experience of HCT survivors.
PEDIATRIC BLOOD & CANCER
(2023)
Article
Pediatrics
Aleksandra E. Olszewski, Jori Bogetz, Amanda Mercer, Miranda C. Bradford, Maya Scott, Blanca Fields, Kelli Williams, Abby R. Rosenberg, Amy Trowbridge
Summary: This study analyzed transcripts of care conferences in pediatric patients and found that clinician empathy does not differ when language interpretation is used. Clinicians often miss opportunities to express empathy or bury it with medical talk. While unburied empathy creates opportunities for relationship-building and family-sharing, buried empathy negatively impacts these domains similarly to no empathic expression.
Article
Health Care Sciences & Services
Alison O'Daffer, Liam Comiskey, Samantha R. Scott, Chuan Zhou, Miranda C. Bradford, Joyce P. Yi-Frazier, Abby R. Rosenberg
Summary: This study aims to test the efficacy of a new intervention for adolescents and young adults with advanced cancer. The intervention includes skills-based training and the use of a smartphone app. The study will evaluate the impact of the intervention on patient-reported outcomes such as quality of life, anxiety, and depression.
BMC PALLIATIVE CARE
(2023)
Article
Oncology
Kristine A. Karvonen, Erin Balay-Dustrude, Annie Do, Miranda C. Bradford, Amanda Phipps, Abby R. Rosenberg
Summary: This study examines the association between race/ethnicity, experiences of racism, and adverse health outcomes in survivors of cancer. The results indicate that historically marginalized racial/ethnic groups are more likely to experience adverse health outcomes. Racism contributes to poor mental and physical health in cancer survivors. Screening for experiences of racism may be necessary to improve health outcomes in this population.
Article
Medicine, Research & Experimental
Shena Gazaway, Rachel D. Wells, Andres Azuero, Maria Pisu, Kate Guastaferro, Christine Rini, Richard Taylor, Rhiannon D. Reed, Erin R. Harrell, Avery C. Bechthold, Reed W. Bratches, Peg McKie, Jane Lowers, Grant R. Williams, Abby R. Rosenberg, Marie A. Bakitas, Dio Kavalieratos, J. Nicholas Dionne-Odom
Summary: This article presents the method and objective of the CASCADE decision support training intervention, aiming to train family caregivers to provide effective decision support and identify the most effective intervention components.
CONTEMPORARY CLINICAL TRIALS
(2023)
Article
Pediatrics
Teresia M. O'Connor, Milenka Cuevas Guaman, Kimberly A. Randell, Heather T. Keenan, Jessica Snowden, Jennifer W. Mack, Elizabeth A. Camp, Oriana Perez, Michael L. Chang, Angela L. Myers, Lise E. Nigrovic, Jennifer O'Toole, Jennifer L. Reed, Jennifer Reese, Abby R. Rosenberg, Anne C. Slater, Susan H. Wootton, Sonja I. Ziniel, H. Joseph Yost, Kristy O. Murray, Lara Shekerdemian, Corrie E. Chumpitazi
Summary: The COVID-19 pandemic had a negative impact on the work productivity of pediatric faculty, especially those with caregiving responsibilities. Mitigation strategies are needed to minimize the long-term impacts on academic pediatric career pathways.
PEDIATRIC RESEARCH
(2023)
Article
Oncology
Kaitlyn M. Fladeboe, Elizabeth J. Siembida, Edward Ip, Abby R. Rosenberg, Mallory A. Snyder, John M. Salsman
Summary: This study describes perceived adult status as a novel developmental indicator and examines its associations with social milestones achievements and health-related quality of life (HRQoL). The findings highlight the unique developmental needs of emerging adults (EAs) and the utility of patient perspectives for understanding developmental outcomes.