Patient-centered Outcomes Research in Interstitial Lung Disease: An Official American Thoracic Society Research Statement

Remote Monitoring in IPF: Home Is Where the Bluetooth Enabled Spirometer Is

(2020) Kerri A Johannson   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE

Home Monitoring in Patients with Idiopathic Pulmonary Fibrosis: A Randomized Controlled Trial

(2020) Catharina C. Moor et al.   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE

Managing fatigue in patients with interstitial lung disease

(2020) V. Kahlmann et al.   CHEST

Virtually Perfect? Telemedicine for Covid-19

(2020) Judd E. Hollander et al.   NEW ENGLAND JOURNAL OF MEDICINE

Development and Initial Validation Analyses of the Living with Idiopathic Pulmonary Fibrosis (L-IPF) Questionnaire

(2020) Jeffrey J Swigris et al.   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE

Diagnosis of Hypersensitivity Pneumonitis in Adults. An Official ATS/JRS/ALAT Clinical Practice Guideline

(2020) Ganesh Raghu et al.   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE

Evaluation of health-related quality of life and the related factors in a group of Chinese patients with interstitial lung diseases

(2020) Xue-Yan Yuan et al.   PLoS One

Home Oxygen Therapy for Adults with Chronic Lung Disease. An Official American Thoracic Society Clinical Practice Guideline

(2020) Susan S. Jacobs et al.   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE

Portable Oxygen Therapy: Is the 6-Minute Walking Test Overestimating the Actual Oxygen Needs?

(2020) Daniel Sanchez-Morillo et al.   Journal of Clinical Medicine

8-Foot-Up-and-Go Test is Associated with Hospitalizations and Mortality in Idiopathic Pulmonary Fibrosis: A Prospective Pilot Study

(2019) Baruch Vainshelboim et al.   LUNG

Activity monitors in pulmonary disease

(2019) Sameep Sehgal et al.   RESPIRATORY MEDICINE

Idiopathic pulmonary fibrosis-associated cough: Mechanisms and management

(2019) Katherine Myall et al.   PULMONARY PHARMACOLOGY & THERAPEUTICS

Home Oxygen Therapy for Children. An Official American Thoracic Society Clinical Practice Guideline

(2019) Don Hayes et al.   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE

Oxygen in Patients with Fibrotic Interstitial Lung Disease: An International Delphi Survey

(2019) Rachel K. Lim et al.   EUROPEAN RESPIRATORY JOURNAL

Nintedanib for Systemic Sclerosis–Associated Interstitial Lung Disease

(2019) Oliver Distler et al.   NEW ENGLAND JOURNAL OF MEDICINE

Performance of the COPD Assessment Test in patients with connective tissue disease-associated interstitial lung disease

(2019) Atsushi Suzuki et al.   RESPIRATORY MEDICINE

Patients’ early engagement in research proposal development (PEER-PD): patients guiding the proposal writing

(2019) Nabil Natafgi et al.   Journal of Comparative Effectiveness Research

Kings Brief Interstitial Lung Disease questionnaire: Responsiveness and minimum clinically important difference

(2019) Claire M. Nolan et al.   EUROPEAN RESPIRATORY JOURNAL

Impact of Psychological Deficits and Pain on Physical Activity of Patients with Interstitial Lung Disease

(2019) Seo Am Hur et al.   LUNG

Nintedanib in Progressive Fibrosing Interstitial Lung Diseases

(2019) Kevin R. Flaherty et al.   NEW ENGLAND JOURNAL OF MEDICINE

Burden, resilience and coping in caregivers of patients with interstitial lung disease

(2018) R.J. Shah et al.   HEART & LUNG

Effect of Recombinant Human Pentraxin 2 vs Placebo on Change in Forced Vital Capacity in Patients With Idiopathic Pulmonary Fibrosis

(2018) Ganesh Raghu et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Impact of Pulmonary Rehabilitation on Exercise Tolerance and Quality of Life in Patients With Idiopathic Pulmonary Fibrosis

(2018) Mansueto Gomes-Neto et al.   Journal of Cardiopulmonary Rehabilitation and Prevention

Comparing the UK EQ-5D-3L and English EQ-5D-5L Value Sets

(2018) Brendan Mulhern et al.   PHARMACOECONOMICS

Performance of the St George’s Respiratory Questionnaire in patients with connective tissue disease-associated interstitial lung disease

(2018) Atsushi Suzuki et al.   RESPIROLOGY

Interstitial lung abnormalities and self-reported health and functional status

(2018) Gisli Thor Axelsson et al.   THORAX

Symptom prevalence of patients with fibrotic interstitial lung disease: a systematic literature review

(2018) Sabrina Carvajalino et al.   BMC Pulmonary Medicine

Telerehabilitation versus traditional centre-based pulmonary rehabilitation for people with chronic respiratory disease: protocol for a randomised controlled trial

(2018) Narelle S. Cox et al.   BMC Pulmonary Medicine

Diagnosis of Idiopathic Pulmonary Fibrosis. An Official ATS/ERS/JRS/ALAT Clinical Practice Guideline

(2018) Ganesh Raghu et al.   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE

Effects of patient satisfaction and confidence on the success of treatment of combined rheumatic disease and interstitial lung disease in a multidisciplinary outpatient clinic

(2018) Shin Ok Jeong et al.   International Journal of Rheumatic Diseases

Effect of ambulatory oxygen on quality of life for patients with fibrotic lung disease (AmbOx): a prospective, open-label, mixed-method, crossover randomised controlled trial

(2018) Dina Visca et al.   Lancet Respiratory Medicine

Equipment, access and worry about running short of oxygen: Key concerns in the ATS patient supplemental oxygen survey

(2018) K.O. Lindell et al.   HEART & LUNG

Marked deterioration in the quality of life of patients with idiopathic pulmonary fibrosis during the last two years of life

(2018) K. Rajala et al.   BMC Pulmonary Medicine

Patient and partner empowerment programme for idiopathic pulmonary fibrosis

(2017) Mirjam J.G. van Manen et al.   EUROPEAN RESPIRATORY JOURNAL

Determinants and outcomes of prolonged anxiety and depression in idiopathic pulmonary fibrosis

(2017) Ian N. Glaspole et al.   EUROPEAN RESPIRATORY JOURNAL

Informal caregivers experience of supplemental oxygen in pulmonary fibrosis

(2017) Bridget A. Graney et al.   Health and Quality of Life Outcomes

Valuing health-related quality of life: An EQ-5D-5L value set for England

(2017) Nancy J. Devlin et al.   HEALTH ECONOMICS

Looking ahead and behind at supplemental oxygen: A qualitative study of patients with pulmonary fibrosis

(2017) Bridget A. Graney et al.   HEART & LUNG

Depression Is Significantly Associated with the Health Status in Patients with Idiopathic Pulmonary Fibrosis

(2017) Toshiaki Matsuda et al.   INTERNAL MEDICINE

Clinical impact of depression and anxiety in patients with idiopathic pulmonary fibrosis

(2017) Ye Jin Lee et al.   PLoS One

A method to create a standardized generic and condition-specific patient-reported outcome measure for patient care and healthcare improvement

(2017) Karen E. Schifferdecker et al.   QUALITY OF LIFE RESEARCH

Physical Activity and Fatigue in Patients with Sarcoidosis

(2017) Thomas Bahmer et al.   RESPIRATION

Pulmonary Rehabilitation Outcomes after Single or Double Lung Transplantation in Patients with Chronic Obstructive Pulmonary Disease or Interstitial Lung Disease

(2017) Tessa Schneeberger et al.   RESPIRATION

Understanding the determinants of health-related quality of life in rheumatoid arthritis-associated interstitial lung disease

(2017) Jake G. Natalini et al.   RESPIRATORY MEDICINE

Health-related quality of life in idiopathic pulmonary fibrosis: Data from the Australian IPF Registry

(2017) Ian N. Glaspole et al.   RESPIROLOGY

Ambulatory oxygen in fibrotic lung disease (AmbOx): study protocol for a randomised controlled trial

(2017) Dina Visca et al.   Trials

Emerging Guidelines for Patient Engagement in Research

(2017) John R. Kirwan et al.   VALUE IN HEALTH

Physical activity and activity space in patients with pulmonary fibrosis not prescribed supplemental oxygen

(2017) Elisabeth Dowling Root et al.   BMC Pulmonary Medicine

Prognosis and longitudinal changes of physical activity in idiopathic pulmonary fibrosis

(2017) Thomas Bahmer et al.   BMC Pulmonary Medicine

Framework for Advancing the Reporting of Patient Engagement in Rheumatology Research Projects

(2017) Clayon B. Hamilton et al.   Current Rheumatology Reports

Palliative care in interstitial lung disease: living well

(2017) Michael Kreuter et al.   Lancet Respiratory Medicine

Psychometric properties of the St George's Respiratory Questionnaire in patients with idiopathic pulmonary fibrosis

(2016) Jeffrey J. Swigris et al.   EUROPEAN RESPIRATORY JOURNAL

"How Can We Talk about Patient-centered Care without Patients at the Table?" Lessons Learned from Patient Advisory Councils

(2016) A. E. Sharma et al.   Journal of the American Board of Family Medicine

Health-Related Quality of Life in Patients with Idiopathic Pulmonary Fibrosis

(2016) Susan E. Yount et al.   LUNG

COPD Assessment Test for measurement of health status in patients with idiopathic pulmonary fibrosis: A cross-sectional study

(2016) Toshiaki Matsuda et al.   RESPIROLOGY

Effect of long-term treatment with corticosteroids on skeletal muscle strength, functional exercise capacity and health status in patients with interstitial lung disease

(2016) Masatoshi Hanada et al.   RESPIROLOGY

Qualitative European survey of patients with idiopathic pulmonary fibrosis: patients’ perspectives of the disease and treatment

(2016) Anne-Marie Russell et al.   BMC Pulmonary Medicine

Seeking and sharing: why the pulmonary fibrosis community engages the web 2.0 environment

(2016) Karen Albright et al.   BMC Pulmonary Medicine

Translation and validation of the King’s Brief Interstitial Lung Disease (K-BILD) questionnaire in French, Italian, Swedish, and Dutch

(2016) Monique Wapenaar et al.   Chronic Respiratory Disease

Mycophenolate mofetil versus oral cyclophosphamide in scleroderma-related interstitial lung disease (SLS II): a randomised controlled, double-blind, parallel group trial

(2016) Donald P Tashkin et al.   Lancet Respiratory Medicine

An Official ATS/ERS/JRS/ALAT Clinical Practice Guideline: Treatment of Idiopathic Pulmonary Fibrosis. An Update of the 2011 Clinical Practice Guideline

(2015) Ganesh Raghu et al.   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE

The need for patient-centred clinical research in idiopathic pulmonary fibrosis

(2015) Anne-Marie Russell et al.   BMC Medicine

Eligibility for Home Oxygen Programs and Funding across Canada

(2015) Yves Lacasse et al.   Canadian Respiratory Journal

Management of patients with idiopathic pulmonary fibrosis in clinical practice: the INSIGHTS-IPF registry

(2015) Jürgen Behr et al.   EUROPEAN RESPIRATORY JOURNAL

Systematic content evaluation and review of measurement properties of questionnaires for measuring self-reported fatigue among older people

(2015) Thorlene Egerton et al.   QUALITY OF LIFE RESEARCH

Clinical Practice Guideline on Adult Domiciliary Oxygen Therapy: Executive summary from the Thoracic Society of Australia and New Zealand

(2015) Christine F. McDonald et al.   RESPIROLOGY

Physical activity in patients with idiopathic pulmonary fibrosis

(2015) Masayuki Nakayama et al.   RESPIROLOGY

Reliability, validity and responsiveness to change of the Saint George’s Respiratory Questionnaire in early diffuse cutaneous systemic sclerosis

(2015) Beth Wallace et al.   RHEUMATOLOGY

Palliative care for patients with advanced fibrotic lung disease: a randomised controlled phase II and feasibility trial of a community case conference intervention

(2015) Sabrina Bajwah et al.   THORAX

British Thoracic Society guidelines for home oxygen use in adults: accredited by NICE

(2015) Maxine Hardinge et al.   THORAX

Be honest and help me prepare for the future

(2015) Anne E Holland et al.   Chronic Respiratory Disease

A Comparison of Health-Related Quality of Life in Idiopathic Pulmonary Fibrosis and Chronic Hypersensitivity Pneumonitis

(2014) Molly Lubin et al.   CHEST

An official European Respiratory Society statement on physical activity in COPD

(2014) Henrik Watz et al.   EUROPEAN RESPIRATORY JOURNAL

Perceptions, experiences and needs of patients with idiopathic pulmonary fibrosis

(2014) Annette Duck et al.   JOURNAL OF ADVANCED NURSING

Reconciling Healthcare Professional and Patient Perspectives in the Development of Disease Activity and Response Criteria in Connective Tissue Disease-related Interstitial Lung Diseases

(2014) L. A. Saketkoo et al.   JOURNAL OF RHEUMATOLOGY

A Phase 3 Trial of Pirfenidone in Patients with Idiopathic Pulmonary Fibrosis

(2014) Talmadge E. King et al.   NEW ENGLAND JOURNAL OF MEDICINE

Efficacy and Safety of Nintedanib in Idiopathic Pulmonary Fibrosis

(2014) Luca Richeldi et al.   NEW ENGLAND JOURNAL OF MEDICINE

The Hospital Anxiety and Depression Scale

(2014) A. F. Stern   OCCUPATIONAL MEDICINE-OXFORD

Dyspnoea and comorbidity contribute to anxiety and depression in interstitial lung disease

(2014) Anne E. Holland et al.   RESPIROLOGY

Patient expectations and experiences in idiopathic pulmonary fibrosis: implications of patient surveys for improved care

(2014) Amanda Belkin et al.   Expert Review of Respiratory Medicine

An Official American Thoracic Society/European Respiratory Society Statement: Update of the International Multidisciplinary Classification of the Idiopathic Interstitial Pneumonias

(2013) William D. Travis et al.   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE

Validation of the Cough Quality-of-Life Questionnaire in Patients With Idiopathic Pulmonary Fibrosis

(2013) Noah Lechtzin et al.   CHEST

Physical Activity in Daily Life of Patients With Fibrotic Idiopathic Interstitial Pneumonia

(2013) Benoit Wallaert et al.   CHEST

Reliability of Pedometers to Measure Step Counts in Patients With Chronic Respiratory Disease

(2013) Laura J. Turner et al.   Journal of Cardiopulmonary Rehabilitation and Prevention

The palliative care needs for fibrotic interstitial lung disease: A qualitative study of patients, informal caregivers and health professionals

(2013) Sabrina Bajwah et al.   PALLIATIVE MEDICINE

Correlations Between Gait Speed, 6-Minute Walk Distance, Physical Activity, and Self-Efficacy in Patients With Severe Chronic Lung Disease

(2013) Z. S. DePew et al.   Respiratory Care

The minimal important difference of the King's Brief Interstitial Lung Disease Questionnaire (K-BILD) and forced vital capacity in interstitial lung disease

(2013) Amit S. Patel et al.   RESPIRATORY MEDICINE

Pulmonary rehabilitation improves long-term outcomes in interstitial lung disease: A prospective cohort study

(2013) Christopher J. Ryerson et al.   RESPIRATORY MEDICINE

Depression in patients with idiopathic pulmonary fibrosis

(2013) Akhtar A. Akhtar et al.   Chronic Respiratory Disease

Sarcoidosis-associated fatigue

(2012) Marjolein Drent et al.   EUROPEAN RESPIRATORY JOURNAL

Long-Term Efficacy of Pulmonary Rehabilitation in Patients with Occupational Respiratory Diseases

(2012) Uta Ochmann et al.   RESPIRATION

The UCSD shortness of breath questionnaire has longitudinal construct validity in idiopathic pulmonary fibrosis

(2012) Jeffrey J. Swigris et al.   RESPIRATORY MEDICINE

A pilot study of an Internet walking program and pedometer in COPD

(2012) Marilyn L. Moy et al.   RESPIRATORY MEDICINE

Evaluation of the chronic obstructive pulmonary disease assessment test for measurement of health-related quality of life in patients with interstitial lung disease

(2012) KAZUMA NAGATA et al.   RESPIROLOGY

The development and validation of the King's Brief Interstitial Lung Disease (K-BILD) health status questionnaire

(2012) Amit S Patel et al.   THORAX

Interventions to improve symptoms and quality of life of patients with fibrotic interstitial lung disease: a systematic review of the literature

(2012) Sabrina Bajwah et al.   THORAX

Burden of illness in idiopathic pulmonary fibrosis

(2012) Harold R. Collard et al.   JOURNAL OF MEDICAL ECONOMICS

Use of Global Positioning Systems to Study Physical Activity and the Environment

(2011) Patricia J. Krenn et al.   AMERICAN JOURNAL OF PREVENTIVE MEDICINE

BUILD-3: A Randomized, Controlled Trial of Bosentan in Idiopathic Pulmonary Fibrosis

(2011) Talmadge E. King et al.   AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE

Dyspnea-12 Is a Valid and Reliable Measure of Breathlessness in Patients With Interstitial Lung Disease

(2011) Janelle Yorke et al.   CHEST

Correlation of Cough With Disease Activity and Treatment With Cyclophosphamide in Scleroderma Interstitial Lung Disease

(2011) Arthur C. Theodore et al.   CHEST

Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L)

(2011) M. Herdman et al.   QUALITY OF LIFE RESEARCH

Benefits of Pulmonary Rehabilitation in Idiopathic Pulmonary Fibrosis

(2011) J. J. Swigris et al.   Respiratory Care

Minimal (clinically) important differences for the Fatigue Assessment Scale in sarcoidosis

(2011) Willemien P.E. de Kleijn et al.   RESPIRATORY MEDICINE

Cough predicts prognosis in idiopathic pulmonary fibrosis

(2011) CHRISTOPHER J. RYERSON et al.   RESPIROLOGY

Depression is a common and chronic comorbidity in patients with interstitial lung disease

(2011) CHRISTOPHER J. RYERSON et al.   RESPIROLOGY

Home-based pulmonary rehabilitation in idiopathic pulmonary fibrosis

(2011) B. Rammaert et al.   REVUE DES MALADIES RESPIRATOIRES

Brief, Valid Measures of Dyspnea and Related Functional Limitations in Chronic Obstructive Pulmonary Disease (COPD)

(2011) Susan E. Yount et al.   VALUE IN HEALTH

Living with idiopathic pulmonary fibrosis

(2011) Gadi Schoenheit et al.   Chronic Respiratory Disease

Depression and Functional Status Are Strongly Associated With Dyspnea in Interstitial Lung Disease

(2010) Christopher J. Ryerson et al.   CHEST

A simple assessment of dyspnoea as a prognostic indicator in idiopathic pulmonary fibrosis

(2010) O. Nishiyama et al.   EUROPEAN RESPIRATORY JOURNAL

Development of the ATAQ-IPF: a tool to assess quality of life in IPF

(2010) Jeffrey J Swigris et al.   Health and Quality of Life Outcomes

Use of pedometer and Internet-mediated walking program in patients with chronic obstructive pulmonary disease

(2010) Marilyn L. Moy et al.   JOURNAL OF REHABILITATION RESEARCH AND DEVELOPMENT

Verbesserung von Nachhaltigkeitseffekten in der ambulanten pneumologischen Rehabilitation unter besonderer Berücksichtigung der Sporttherapie

(2010) S. Dalichau et al.   REHABILITATION

Assessing dyspnea and its impact on patients with connective tissue disease-related interstitial lung disease

(2010) Jeffrey J. Swigris et al.   RESPIRATORY MEDICINE

How common is sleep-disordered breathing in patients with idiopathic pulmonary fibrosis?

(2010) Charalampos Mermigkis et al.   Sleep and Breathing

Development and validity testing of an IPF-specific version of the St George's Respiratory Questionnaire

(2010) J. Yorke et al.   THORAX

Obstructive Sleep Apnea Is Common in Idiopathic Pulmonary Fibrosis

(2009) Lisa H. Lancaster et al.   CHEST

Development and first validation of the COPD Assessment Test

(2009) P. W. Jones et al.   EUROPEAN RESPIRATORY JOURNAL

Impact of a disease-management program on symptom burden and health-related quality of life in patients with idiopathic pulmonary fibrosis and their care partners

(2009) Kathleen Oare Lindell et al.   HEART & LUNG

The SF-36 and SGRQ: Validity and first look at minimum important differences in IPF

(2009) Jeffrey J. Swigris et al.   RESPIRATORY MEDICINE

Minimally important differences in the Mahler's Transition Dyspnoea Index in a large randomized controlled trial--results from the Scleroderma Lung Study

(2009) D. Khanna et al.   RHEUMATOLOGY

Qualitative aspects of breathlessness in health and disease

(2009) J Smith et al.   THORAX

Quantification of dyspnoea using descriptors: development and initial testing of the Dyspnoea-12

(2009) J Yorke et al.   THORAX

Long-term oxygen therapy: review from the patients’ perspective

(2009) DL Cullen et al.   Chronic Respiratory Disease

Use of the 15-steps climbing exercise oximetry test in patients with idiopathic pulmonary fibrosis

(2008) Victorya Rusanov et al.   RESPIRATORY MEDICINE