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Honest, Open, Proud to support disclosure decisions and to decrease stigma's impact among people with mental illness: conceptual review and meta-analysis of program efficacy

Journal

SOCIAL PSYCHIATRY AND PSYCHIATRIC EPIDEMIOLOGY
Volume 56, Issue 9, Pages 1513-1526

Publisher

SPRINGER HEIDELBERG
DOI: 10.1007/s00127-021-02076-y

Keywords

Stigma; Self-stigma; Stigma stress; Disclosure; Honest; Open; Proud; Coming Out Proud; Peer intervention; Meta-analysis

Categories

Funding

  1. Projekt DEAL

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The HOP program aims to support individuals with mental illness in disclosure decisions and coping with stigma. A meta-analysis of five randomized controlled trials found significant positive effects on stigma stress, as well as smaller effects on self-stigma and depression. Long-term effects of the program are still unknown.
Purpose Honest, Open, Proud (HOP; formerly Coming Out Proud/COP) is a peer-led group program to support people with mental illness in their disclosure decisions and in their coping with stigma. The aims of this study were to provide (i) a conceptual review of HOP, including versions for different target groups and issues related to outcome measurement and implementation; and (ii) a meta-analysis of program efficacy. Methods Conceptual and empirical literature on disclosure and the HOP program was reviewed. Controlled trials of HOP/COP were searched in literature databases. A meta-analysis of HOP efficacy in terms of key outcomes was conducted. Results HOP program adaptations for different target groups (e.g. parents of children with mental illness; veterans or active soldiers with mental illness) exist and await evaluation. Recruitment for trials and program implementation may be challenging. A meta-analysis of five HOP RCTs for adults or adolescents with mental illness or adult survivors of suicide attempts found significant positive effects on stigma stress (smd = - 0.50) as well as smaller, statistically non-significant effects on self-stigma (smd = - 0.17) and depression (smd = - 0.11) at the end of the HOP program. At 3- to 4-week follow-up, there was a modest, not statistically significant effect on stigma stress (smd = - 0.40, 95%-CI -0.83 to 0.04), while effects for self-stigma were small and significant (smd = - 0.24). Long-term effects of the HOP program are unknown. Conclusion There is initial evidence that HOP effectively supports people with mental illness in their disclosure decisions and in their coping with stigma. Implementation issues, future developments and public health implications are discussed.

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