Article
Nursing
Maria Cable, Tessa Watts, Carly Reagon, Daniel Kelly
Summary: This study explores the experiences of early-career registered nurses working in specialist adolescent/young adult cancer units. The intensity and complexity of nursing work with young patients and their families over extended periods of time impact the nurses personally and professionally. The similarity in age between patients and nurses has both benefits and risks. The study highlights the complexity of nursing labor and provides justification for specialist training and support.
JOURNAL OF ADVANCED NURSING
(2023)
Review
Oncology
Brooke Cherven, Amani Sampson, Sharon L. Bober, Kristin Bingen, Natasha Frederick, David R. Freyer, Gwendolyn P. Quinn
Summary: This study summarizes the literature on sexual function among adolescent and young adult cancer survivors, finding that they experience a burden of sexual dysfunction and interventions are needed to support sexual health and psychosexual adjustment. Collaboration between organizations is necessary to advance assessment of sexual dysfunction and test interventions to improve sexual health among this population.
CA-A CANCER JOURNAL FOR CLINICIANS
(2021)
Article
Obstetrics & Gynecology
Chelsea Anderson, Victoria Fitz, Allison Deal, Darios Getahun, Marilyn L. Kwan, Jennifer E. Mersereau, Lawrence H. Kushi, Chun R. Chao, Hazel B. Nichols
Summary: This study examines the association between demographic and cancer-related characteristics and factors such as fertility discussion and fertility preservation use with attempting pregnancy after adolescent and young adult cancer. The use of fertility preservation strategies was found to be significantly associated with attempting pregnancy after cancer.
FERTILITY AND STERILITY
(2023)
Review
Oncology
Silvie H. M. Janssen, Winette T. A. van der Graaf, Daniel J. van der Meer, Eveliene Manten-Horst, Olga Husson
Summary: Adolescent and young adult (AYA) cancer patients, aged 15-39 years old, face unique challenges in their disease trajectory. Although the number of AYA cancer survivors has increased, they are at risk of long-term and late effects. Research efforts are needed to inform survivorship care for this growing population.
Review
Nutrition & Dietetics
Callie Ogland-Hand, Timothy H. Ciesielski, Katherine Daunov, Melanie K. Bean, Nora L. Nock
Summary: Advancements in cancer treatments have improved survival in adolescents and young adults (AYAs), but they are still at risk for late effects and nutritional challenges. Understanding and addressing these challenges in AYA cancer survivors is important for improving their overall quality of life and survival.
Article
Public, Environmental & Occupational Health
Eric Adjei Boakye, Katherine M. Polednik, Teresa L. Deshields, Arun Sharma, Yamile Molina, Lidia Schapira, Justin M. Barnes, Nosayaba Osazuwa-Peters
Summary: This study examined emotional distress in cancer survivors diagnosed as adolescents or young adults compared to survivors diagnosed as middle/older adults and the general population without a history of cancer. The findings showed that emotional distress was more prevalent among young adult cancer survivors than middle/older adult survivors. However, there was no difference in emotional distress between young adult cancer survivors and the general population without cancer.
ANNALS OF EPIDEMIOLOGY
(2022)
Article
Obstetrics & Gynecology
Jayeon Kim, Brian W. Whitcomb, Brian Kwan, David Zava, Patrick M. Sluss, Andrew Dietz, Ksenya Shliakhtsitsava, Sally A. D. Romero, Loki Natarajan, H. Irene Su
Summary: There was no association found between psychosocial stress and ovarian function in adolescent and young adult cancer survivors.
HUMAN REPRODUCTION
(2021)
Article
Medicine, General & Internal
Abby R. Rosenberg, Chuan Zhou, Miranda C. Bradford, John M. Salsman, Katie Sexton, Alison O'Daffer, Joyce P. Yi-Frazier
Summary: This study explored the 2-year trajectories of patient-reported well-being among AYA cancer survivors, finding that the PRISM intervention was associated with sustained improvements in psychosocial outcomes reported by adolescents and young adults. Those who initially responded positively to PRISM continued to experience well-being 2 years later.
Article
Oncology
Ursula M. Sansom-Daly, Claire E. Wakefield, Sarah J. Ellis, Brittany C. McGill, Mark W. Donoghoe, Phyllis Butow, Richard A. Bryant, Susan M. Sawyer, Pandora Patterson, Antoinette Anazodo, Megan Plaster, Kate Thompson, Lucy Holland, Michael Osborn, Fiona Maguire, Catherine O'Dwyer, Richard De Abreu Lourenco, Richard J. Cohn
Summary: The study evaluated an online, group-based, videoconferencing-delivered cognitive-behavioral therapy intervention for adolescents and young adult cancer survivors, finding no immediate impact on quality of life post-intervention, but an increase in adaptive coping skills. Participants reported higher negative impact of cancer, anxiety and depression at a 12-month follow-up. Furthermore, different survivor sub-groups may benefit differently from telehealth psychological interventions at different points in survivorship, highlighting the need for tailored support models.
Article
Oncology
Elizabeth J. Siembida, Holli A. Loomans-Kropp, Irene Tami-Maury, David R. Freyer, Lillian Sung, Howland E. Crosswell, Brad H. Pollock, Michael E. Roth
Summary: This study examines the patterns of barriers and facilitators between high- and low-enrolling community-based clinics for AYA patients with cancer. High-enrolling clinics face more barriers downstream in the enrollment process, such as physician gatekeeping, while low-enrolling clinics struggle with earlier steps in the CCT enrollment process, such as identifying eligible trials. These findings highlight the need for multi-level, tailored interventions to improve AYA enrollment in the community setting.
Article
Oncology
Joseph M. Unger, Melissa Beauchemin, Dawn L. Hershman
Summary: Adolescent and young adult (AYA) cancer patients have not experienced the same survival improvements as pediatric or older adult patients, potentially due to lower participation in clinical trials. This study found that AYA patients were well represented in SWOG trials, with a more racially/ethnically diverse population compared to older patients, but less diversity compared to the US AYA cancer population.
Article
Medicine, General & Internal
Carol A. Ford, Andrew C. Pool, Nicole F. Kahn, James Jaccard, Carolyn T. Halpern
Summary: This cohort study suggests that positive parent-adolescent relationships are associated with favorable outcomes in young adulthood. Investments in improving these relationships may have long-term benefits for young adult health.
Article
Medicine, General & Internal
Hena Naz Din, Savitri Singh-Carlson, Heather L. Corliss, Sheri J. Hartman, David Strong, Hala Madanat, H. Irene Su
Summary: In this study, it was found that survivors of adolescent and young adult cancer often overestimate or underestimate their infertility risk, indicating a misalignment between perceptions and actual risk. Counseling on infertility risk throughout survivorship may help reduce this misalignment, decrease psychological distress related to fertility, and inform family planning decisions.
Article
Endocrinology & Metabolism
Alexa C. O. Medica, Brian W. Whitcomb, Ksenya Shliakhsitsava, Andrew C. Dietz, Kelsey Pinson, Christina Lam, Sally A. D. Romero, Patrick Sluss, Mary D. Sammel, H. Irene Su
Summary: This study revealed a novel association between cancer treatments and advanced stages of reproductive aging in AYA survivors, also suggesting a need for modified staging for this population to accurately classify individuals based on endocrine biomarkers and bleeding patterns.
JOURNAL OF CLINICAL ENDOCRINOLOGY & METABOLISM
(2021)
Article
Oncology
Kimberly J. Johnson, Xiaoyan Wang, Justin M. Barnes, Arash Delavar
Summary: The study shows that AYAs living in rural areas and farther from reporting hospitals are more likely to be diagnosed with late-stage cancer and have lower survival rates.
Article
Oncology
Lyndel Moore, Lauren Matheson, Jo Brett, Verna Lavender, Anne Kendall, Bernadette Lavery, Eila Watson
Summary: Most participants had positive views on patient-initiated follow-up (PIFU) pathways, but a significant minority faced uncertainties and difficulties in accessing ongoing care, performing breast self-examination, managing treatment side-effects, and fear of recurrence. The study highlighted the importance of education on BSE and recognizing signs of recurrence, effective information sharing about side effects, personalized care preferences, and emotional wellbeing on PIFU.
EUROPEAN JOURNAL OF ONCOLOGY NURSING
(2022)
Article
Hospitality, Leisure, Sport & Tourism
Peter Lugosi, Colette O'Brien, Hossein Olya, Ryan C. Pink, Verna Lavender
Summary: This study examines the impact of physical servicescape dimensions and ambient conditions on visitor satisfaction in a cancer treatment context. A case study strategy was adopted in a UK hospital's cancer and haematology clinic, using discussions with clinical staff, observations, and a survey. Ambient conditions were found to have a greater influence on satisfaction compared to design and layout. Wayfinding and privacy features were shown to significantly affect satisfaction. Managing these dimensions can compensate for deficiencies in other areas of the physical servicescape.
INTERNATIONAL JOURNAL OF HOSPITALITY MANAGEMENT
(2023)
Article
Medicine, General & Internal
Susie Aldiss, Faith Gibson, Cecilia Vindrola-Padros, Jo Wray, Paula Kelly
Summary: Despite lower rates of illness, morbidity, and mortality in children during the COVID-19 pandemic, their health and well-being have been significantly impacted, especially during hospitalization. This study investigated the perceptions of hospital staff on the impact of COVID-19 on aspects of care delivery, preparedness, and staffing specific to a specialist children's hospital. The findings highlighted the importance of family involvement in children's healthcare during the pandemic.
Review
Medicine, General & Internal
Jenny Harris, Emma Ream, Jo Armes, Faith Gibson, Afrodita Marcu, Catherine Treena Parsons, Ann Robinson, Sherin Varghese, Karen Poole
Summary: This study aimed to investigate the psychosocial issues affecting women with cancer during pregnancy and their partners, determine available supportive care or educational interventions, and identify knowledge gaps for future research. Twelve studies were included, highlighting the need for further research on the long-term psychosocial impact of cancer on women and their families.
Article
Nutrition & Dietetics
James Evans, Dan Green, Faith Gibson, Graeme O'Connor, Julie Lanigan
Summary: This study compared the complications, nutritional and clinical outcomes of gastrostomies and nasogastric tubes in pediatric bone marrow transplant patients, and found that gastrostomies were safe and effective alternatives.
CLINICAL NUTRITION ESPEN
(2023)
Review
Respiratory System
George Peat, Sally-Ann Delaney, Faith Gibson, Lorna K. Fraser, Joe Brierley
Summary: This systematic review and qualitative evidence synthesis aimed to clarify what shared decision-making constitutes in relation to long-term ventilation initiation for children and young people. The findings from 13 studies clarify the components and approaches supportive of shared decision-making in discussions about long-term ventilation. This review provides a valuable resource to implement shared decision-making practices in the context of long-term ventilation decisions for children and young people.
EUROPEAN RESPIRATORY REVIEW
(2023)
Article
Psychology, Educational
Kate Oulton, Faith Gibson, Charlotte Kenten, Jessica Russell, Lucinda Carr, Angela Hassiotis, Paula Kelly, Sam Kerry, Irene Tuffrey-Wijne, Mark Whiting, Jo Wray
Summary: This study aimed to explore the emotional and physical impact on children and young people with intellectual disabilities when coming into the hospital. Through interviews, surveys, and photography, it revealed the challenges and needs they face, highlighting the importance of individualized care.
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES
(2023)
Review
Medicine, General & Internal
Priya Patel, Paula D. Robinson, Patrick van der Torre, Deborah Tomlinson, Jennifer Seelisch, Sapna Oberoi, Jessica E. Morgan, Pamela S. Hinds, Miriam Goette, Faith Gibson, Nathan Duong, Hailey Davis, S. Nicole Culos-Reed, Danielle Cataudella, Vanessa Miranda, L. Lee Dupuis, Lillian Sung
Summary: The objective of this study was to update a clinical practice guideline for the management of fatigue in children and adolescents with cancer or pediatric hematopoietic cell transplant recipients. The results showed that physical activity significantly reduced fatigue, and the panel recommended the use of relaxation, mindfulness, or both to manage fatigue in pediatric patients.
Review
Oncology
Alison Finch, Silvie Cooper, Rosalind Raine, Rachel M. Taylor, Faith Gibson
Summary: Ambulatory Care (AC), introduced in the UK National Health Service in 2004, allows patients to receive inpatient cancer treatment on an outpatient basis. This scoping review aims to understand the origins of the clinical pathway and explore the drivers for the development of AC in the UK. Financial considerations, bed capacity optimization, advances in technology and supportive care, and professional motivation to improve patient experience were identified as the main drivers for AC.
EUROPEAN JOURNAL OF CANCER CARE
(2023)
Review
Oncology
Connor Evans, Lucy Shepherd, Gemma Bryan, Helen Fulbright, Scott Crowther, Sara Wakeling, Andy Stewart, Claire Stewart, Julia Chisholm, Faith Gibson, Bob Phillips, Jessica Morgan
Summary: This systematic review focuses on early phase studies of pediatric relapsed/refractory rhabdomyosarcoma, aiming to provide accurate information for future research and assist families and clinicians in making difficult treatment choices. The review reveals poor outcomes for children participating in early phase studies for relapsed/refractory rhabdomyosarcoma, emphasizing the need for improved reporting quality and consistency.
INTERNATIONAL JOURNAL OF CANCER
(2023)
Meeting Abstract
Oncology
James Evans, Dan Green, Graeme O'Connor, Julie Lanigan, Faith Gibson
PEDIATRIC BLOOD & CANCER
(2022)
Meeting Abstract
Oncology
Faith Gibson, Gemma Bryan, Jess Morgan, Bob Phillips, Susie Aldiss
PEDIATRIC BLOOD & CANCER
(2022)
Meeting Abstract
Oncology
Katie Powers, Jac Airdrie, Sophie Thomas, Faith Gibson, Chloe Geagan, Nic Davies, Sam Malins
Meeting Abstract
Oncology
Jac Airdrie, Chloe Geagan, Nicholas Davies, Katie Powers, Ingram Wright, Heather Borrill, Faith Gibson, Steve Clifford, Stephen Lowis, Simon Bailey, Jennifer Limond, Ray Owen, Richard Grundy, James Lemon, Louise Hayes, Sam Malins, Sophie Thomas
Article
Public, Environmental & Occupational Health
Ana Martins, Susie Aldiss, Rachel M. Taylor, Faith Gibson
Summary: This study aimed to evaluate the key worker role in principal treatment centers for children with cancer in England, Wales, and Scotland. Data was gathered through questionnaires, interviews, focus groups, and reports over a two-year period. The effectiveness of key workers was found to revolve around care coordination, expert knowledge, and relationships, which were vital for improving family experience and delivering individualized care.
INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING
(2022)