Why take part in personalised cancer research? Patients’ genetic misconception, genetic responsibility and incomprehension of stratification-an empirical-ethical examination

“Nudge” in the clinical consultation – an acceptable form of medical paternalism?

(2014) Ajay Aggarwal et al.   BMC Medical Ethics

Rethinking the therapeutic misconception: social justice, patient advocacy, and cancer clinical trial recruitment in the US safety net

(2014) Nancy J Burke   BMC Medical Ethics

Hope for a cure and altruism are the main motives behind participation in phase 3 clinical cancer trials

(2014) T. Godskesen et al.   EUROPEAN JOURNAL OF CANCER CARE

Current understanding of genetics and genetic testing and information needs and preferences of adults with inherited retinal disease

(2014) Martin McKibbin et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Patients' perception of information after completion of adjuvant radiotherapy for breast cancer

(2014) Mia Bergenmar et al.   European Journal of Oncology Nursing

Informed consent for biobanking: consensus-based guidelines for adequate comprehension

(2014) Laura M. Beskow et al.   GENETICS IN MEDICINE

Comparison of Survival Outcomes Among Cancer Patients Treated In and Out of Clinical Trials

(2014) Joseph M. Unger et al.   JNCI-Journal of the National Cancer Institute

Understanding and retention of trial-related information among participants in a clinical trial after completing the informed consent process

(2013) Fernanda Mexas et al.   Clinical Trials

Testing personalized medicine: patient and physician expectations of next-generation genomic sequencing in late-stage cancer care

(2013) Fiona A Miller et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Informed consent as an ethical requirement in clinical trials: an old, but still unresolved issue. An observational study to evaluate patient's informed consent comprehension

(2013) Virginia Sanchini et al.   JOURNAL OF MEDICAL ETHICS

Does Enrollment in Cancer Trials Improve Survival?

(2013) Christopher J. Chow et al.   JOURNAL OF THE AMERICAN COLLEGE OF SURGEONS

Consent Form Heterogeneity in Cancer Trials: The Cooperative Group and Institutional Review Board Gap

(2013) S. A. Koyfman et al.   JNCI-Journal of the National Cancer Institute

The choice of whether to participate in a phase I clinical trial: increasing the awareness of patients with cancer. An exploratory study

(2013) C. Catania et al.   PSYCHO-ONCOLOGY

A deviation from standard design? Clinical trials, research ethics committees, and the regulatory co-construction of organizational deviance

(2013) Adam Hedgecoe   SOCIAL STUDIES OF SCIENCE

Phase 1 clinical trials in end-stage cancer: patient understanding of trial premises and motives for participation

(2013) Tove Godskesen et al.   SUPPORTIVE CARE IN CANCER

Procedure versus process: ethical paradigms and the conduct of qualitative research

(2012) Kristian Pollock   BMC Medical Ethics

Informed consent for clinical treatment

(2012) D. E. Hall et al.   CANADIAN MEDICAL ASSOCIATION JOURNAL

Therapeutic misconception, misestimation, and optimism in participants enrolled in phase 1 trials

(2012) Rebecca D. Pentz et al.   CANCER

Preoperative chemoradiotherapy and postoperative chemotherapy with fluorouracil and oxaliplatin versus fluorouracil alone in locally advanced rectal cancer: initial results of the German CAO/ARO/AIO-04 randomised phase 3 trial

(2012) Claus Rödel et al.   LANCET ONCOLOGY

Lay understanding of common medical terminology in oncology

(2012) Arwen H. Pieterse et al.   PSYCHO-ONCOLOGY

Attitudes of Patients With Cancer About Personalized Medicine and Somatic Genetic Testing

(2012) Stacy W. Gray et al.   Journal of Oncology Practice

The impact of the process of clinical research on health service outcomes

(2011) P. Selby et al.   ANNALS OF ONCOLOGY

Altruism among participants in cancer clinical trials

(2011) Tony H Truong et al.   Clinical Trials

Beneficent Persuasion: Techniques and Ethical Guidelines to Improve Patients' Decisions

(2010) J. S. Swindell et al.   ANNALS OF FAMILY MEDICINE

Towards optimised information about clinical trials; identification and validation of key issues in collaboration with cancer patient advocates

(2010) P. DELLSON et al.   EUROPEAN JOURNAL OF CANCER CARE

What Oncologists Believe They Said and What Patients Believe They Heard: An Analysis of Phase I Trial Discussions

(2010) Valerie Jenkins et al.   JOURNAL OF CLINICAL ONCOLOGY

Misunderstandings Concerning Genetics Among Patients Confronting Genetic Disease

(2010) Robert L. Klitzman   Journal of Genetic Counseling

Early Palliative Care for Patients with Metastatic Non–Small-Cell Lung Cancer

(2010) Jennifer S. Temel et al.   NEW ENGLAND JOURNAL OF MEDICINE

Stage II/III rectal cancer with intermediate response to preoperative radiochemotherapy: Do we have indications for individual risk stratification?

(2010) Thilo Sprenger et al.   World Journal of Surgical Oncology

Characteristics and outcomes of patients with advanced non-small-cell lung cancer who declined to participate in randomised clinical chemotherapy trials

(2009) C Tanai et al.   BRITISH JOURNAL OF CANCER

Therapie beim lokal fortgeschrittenen Rektumkarzinom

(2009) T. Liersch et al.   CHIRURG

Healthcare professionals' and researchers' understanding of cancer genetics activities: a qualitative interview study

(2009) N Hallowell et al.   JOURNAL OF MEDICAL ETHICS

WHAT SHOULD RESEARCH PARTICIPANTS UNDERSTAND TO UNDERSTAND THEY ARE PARTICIPANTS IN RESEARCH?

(2008) DAVID WENDLER et al.   BIOETHICS

Affective Forecasting: An Unrecognized Challenge in Making Serious Health Decisions

(2008) Jodi Halpern et al.   JOURNAL OF GENERAL INTERNAL MEDICINE

Beyond informed consent: the therapeutic misconception and trust

(2008) I de Melo-Martin et al.   JOURNAL OF MEDICAL ETHICS

‘Yours is potentially serious but most of these are cured’: optimistic communication in UK outpatient oncology consultations

(2008) Geraldine M. Leydon   PSYCHO-ONCOLOGY

Managing self-responsibility through other-oriented blame: Family accounts of genetic testing

(2008) Michael Arribas-Ayllon et al.   SOCIAL SCIENCE & MEDICINE