Review
Nursing
Wenxia Wang, Huanhuan Li, Yijing Li, Shuyan Fang, Shuang Zhang, Xu Zhang, Xiangfei Meng, Jianping Su, Jiao Sun
Summary: This study aims to systematically identify, synthesise, and characterise the qualitative evidence on the experience of adult colorectal cancer survivors with continuity of care led by different health professionals. The findings suggest that colorectal cancer survivors have diverse experiences regarding continuity of care led by different providers, and they attach substantial importance to trusted relationships with providers. Therefore, future interventions should include adjusting the percentage of care from different providers to deliver cost-effective and personalised continuity of care.
JOURNAL OF CLINICAL NURSING
(2022)
Review
Public, Environmental & Occupational Health
Grant J. McGeechan, Kate Byrnes, Miglena Campbell, Nikki Carthy, Judith Eberhardt, Wendy Paton, Katherine Swainston, Emma L. Giles
Summary: This study conducted a systematic review and qualitative synthesis on the experiences of living with colorectal cancer as a chronic illness, identifying three prevalent higher order concepts related to the supportive care needs of patients, common physical and psychological late effects of cancer, and methods of psychosocial adjustment to living with and beyond colorectal cancer. It emphasized the importance of developing a theoretical approach that fully encapsulates the experience of living with colorectal cancer as a chronic illness in order to inform interventions to support patient adjustment.
PSYCHOLOGY & HEALTH
(2022)
Review
Oncology
Ana Monteiro Grilo, Barbara Santos, Ines Baptista, Fatima Monsanto
Summary: Through a systematic review, it was found that the subjective experience of adult cancer patients undergoing external radiotherapy is primarily focused on time, physical environment, treatment concerns, and the radiotherapy team. The effectiveness of the radiotherapy team was identified as a facilitator of patient experience, while factors such as waiting time, treatment preparation, and positioning and immobilization may act as barriers.
EUROPEAN JOURNAL OF ONCOLOGY NURSING
(2021)
Review
Clinical Neurology
Mark D. MacKenzie, Holly Scott, Kate Reid, Maria Gardani
Summary: Adolescence is a time of changing sleep patterns, and the use of electronics at bedtime and engagement with social media platforms have been found to impede sufficient and quality sleep in adolescents. Lack of control over social media use and habitual aspects of bedtime social media use were common among adolescents. Intervention strategies should acknowledge the broader social implications of bedtime social media use.
SLEEP MEDICINE REVIEWS
(2022)
Review
Psychology, Multidisciplinary
Malcolm D. Murray, Christopher B. Menadue
Summary: The purpose of this study was to systematically review literature on how individuals with schizophrenia experience the recovery process. The review found that there needs to be a treatment shift focused on personal recovery processes. The theme of connection emerged as a key factor in recovery, with connecting with the self and the social world being important for recovery.
CURRENT PSYCHOLOGY
(2023)
Review
Nursing
Ingrid Muller, Daniela Ghio, Jasmine Mobey, Hannah Jones, Samantha Hornsey, Amy Dobson, Emma Maund, Miriam Santer
Summary: This study systematically reviewed and synthesized qualitative studies on parents/carers' views and experiences of infant crying. The findings suggest that infant crying has a substantial emotional impact on parents/carers, who reported using various soothing techniques but were desperate for effective treatment. Support was often perceived as lacking, and beliefs about maternal diet on breastmilk undermined parents' confidence in breastfeeding.
JOURNAL OF ADVANCED NURSING
(2023)
Review
Public, Environmental & Occupational Health
Robert S. Kerrison, Dahir Sheik-Mohamud, Emily McBride, Katriina L. Whitaker, Colin Rees, Stephen Duffy, Christian von Wagner
Summary: Colonoscopy is the gold standard for diagnosing colorectal cancer, but many people worldwide decline the procedure due to various barriers including fear of pain, discomfort, concerns about bowel preparation, and lack of recommendation from their physician. Practical factors such as cost and insurance coverage also play a significant role in the decision-making process. Further research is needed to understand barriers and facilitators in different contexts beyond the US focus on screening colonoscopy.
PREVENTIVE MEDICINE
(2021)
Review
Public, Environmental & Occupational Health
Alice Le Bonniec, Oonagh Meade, Milou Fredrix, Eimear Morrissey, Ronan E. O. 'Carroll, Patrick J. Murphy, Andrew W. Murphy, Jenny Mc Sharry
Summary: This meta-ethnography analyzed qualitative literature to investigate attitudes towards colorectal cancer screening and reasons for non-participation. The findings revealed that non-participants had a lack of knowledge and varying levels of intention to participate, but they did not perceive screening as personally necessary. Active aversion to screening, expressed through fear, discomfort, disgust, or a desire to avoid knowing, was also observed. Contextual barriers such as practical constraints and poor relationships with healthcare professionals were identified. The study suggests that addressing ambivalence, reassuring individuals about the screening procedures, and enhancing support from healthcare professionals may be effective in increasing screening uptake.
SOCIAL SCIENCE & MEDICINE
(2023)
Review
Oncology
Fiona Menger, Nurul Asyiqin Mohammed Halim, Ben Rimmer, Linda Sharp
Summary: Interest in post-traumatic growth after cancer is increasing due to its positive associations with health-related quality of life. Qualitative research provides valuable insight into survivors' experiences, with findings suggesting that positive health behavior changes may occur post-cancer and warrant further exploration in future research.
SUPPORTIVE CARE IN CANCER
(2021)
Review
Public, Environmental & Occupational Health
Anica Ilic, Yara Sievers, Katharina Roser, Katrin Scheinemann, Gisela Michel
Summary: This study synthesized qualitative research on the information needs of relatives of childhood cancer patients and survivors. Five areas of information needs were identified: treatment, medication, and care; general information about cancer; coping and support; follow-up, late effects, and rehabilitation; and parenting and everyday life. The appropriateness of information depended on various factors, including health care professionals' aptitude, message characteristics, communication setting, and relatives' personal factors.
PATIENT EDUCATION AND COUNSELING
(2023)
Review
Psychiatry
Gabriela Kattan Khazanov, Shimrit Keddem, Katelin Hoskins, Karoline Myhre, Sarah Sullivan, Emily Mitchell, Brooke Dorsey Holliman, Sara J. Landes, Joseph Simonetti
Summary: This systematic review examines the individual and contextual factors that influence lethal means safety counseling (LMSC) and its implementation. The study identifies several key themes, including the impact of firearms culture, the importance of patient understanding and provider cultural competency, and the need for individualization of LMSC. The findings have important implications for improving and promoting LMSC.
FRONTIERS IN PSYCHIATRY
(2022)
Review
Oncology
Ines Semendric, Danielle Pollock, Olivia J. J. Haller, Rebecca P. P. George, Lyndsey E. E. Collins-Praino, Alexandra L. L. Whittaker
Summary: This qualitative systematic review examines the impact of chemotherapy-induced cognitive impairment, known as chemobrain, on children's social, academic, and daily living skills. The study highlights the need to understand the lived experiences of pediatric cancer survivors and the barriers they face following treatment. It also emphasizes the importance of conducting more qualitative research in this area and improving the quality of reporting in the existing literature.
SUPPORTIVE CARE IN CANCER
(2023)
Review
Obstetrics & Gynecology
Mona Al-Mutawtah, Emma Campbell, Hans-Peter Kubis, Mihela Erjavec
Summary: This systematic review explores women's experiences of social support during pregnancy, revealing that pregnant women value a broad variety of emotional support from different sources. Women expressed both satisfaction and dissatisfaction with tangible and intangible support forms. The study also highlighted the essential role of spirituality in reducing stress and offering coping mechanisms for some women.
BMC PREGNANCY AND CHILDBIRTH
(2023)
Article
Oncology
Christine M. Veenstra, Jennifer Acosta, Rebecca Sharar, Sarah T. Hawley, Arden M. Morris
Summary: This study identified three overarching domains of partner engagement in surveillance among survivors of stage III colorectal cancer and their partners. These include psychosocial engagement, information-seeking and dyadic communication, and instrumental engagement. The findings suggest opportunities to develop dyadic interventions to help partners engage most effectively in patients' surveillance.
Review
Oncology
Wendy Gifford, Margo Rowan, Peggy Dick, Shokoufeh Modanloo, Maggie Benoit, Zeina Al Awar, Liquaa Wazni, Viviane Grandpierre, Roanne Thomas, Lindsey Sikora, Ian D. Graham
Summary: The systematic review identified 20 interventions used by Indigenous Peoples living with cancer, aiming to support the healthcare journey, increase knowledge, provide psychosocial support, and promote dialogue about cancer. These interventions included community meetings, patient navigation, arts, and printed/online/audio materials. Predominantly female participants showed positive influences from the interventions evaluated, but none addressed all four dimensions of holistic wellness in Indigenous health.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Oncology
Chloe Yi Shing Lim, Rebekah C. Laidsaar-Powell, Jane M. Young, Daniel Steffens, Nabila Ansari, Grace Joshy, Phyllis Butow, Adv CRC Survivorship Authorship Grp
Summary: This study fills a gap in qualitative research regarding the healthcare experiences and needs of people with advanced colorectal cancer (CRC-A) through interviews with 38 participants. The study identifies six key themes relating to the safety, effectiveness, timeliness, patient-centeredness, efficiency, and equity of CRC-A care. The findings highlight the importance of delivering repeated information, upskilling general practitioners, and implementing survivorship care plans or clinics to improve the healthcare system for CRC-A.
EUROPEAN JOURNAL OF ONCOLOGY NURSING
(2023)
Article
Health Care Sciences & Services
Phyllis Butow, Mona F. Faris, Joanne Shaw, Patrick Kelly, Sharon He, Marnie Harris, Jessica M. Cuddy, Lindy Masya, Liesbeth Geerligs, Brian Kelly, Afaf Girgis, Nicole Rankin, Philip Beale, Thomas Hack, Laura Kirsten, Haryana Dhillon, Peter Grimison, Rosalie Viney, Josephine L. Clayton, Timothy Schlub, Heather L. Shepherd
Summary: This study evaluated two implementation strategies (Core versus Enhanced) to facilitate the implementation of a clinical pathway for anxiety and depression management in cancer patients. The results showed that the implementation strategy did not have a significant effect on adherence to the clinical pathway, but anxiety/depression severity level did have a significant impact on adherence.
IMPLEMENTATION SCIENCE
(2023)
Article
Medicine, General & Internal
Dilanka L. De Silva, Lesley Stafford, Anita R. Skandarajah, Michelle Sinclair, Lisa Devereux, Kirsten Hogg, Maira Kentwell, Allan Park, Luxi Lal, Magnus Zethoven, Madawa W. Jayawardana, Fiona Chan, Phyllis N. Butow, Paul A. James, G. Bruce Mann, Ian G. Campbell, Geoffrey J. Lindeman
Summary: This study aimed to assess the feasibility of universal genetic testing for women with newly diagnosed breast cancer. The study found that 6.5% of participants had pathogenic germline variants, and 18 of them did not meet the current genetic testing eligibility guidelines. Clinical management was changed for 24 women after the identification of pathogenic variants. Acceptance of universal testing was high among both patients and clinicians.
MEDICAL JOURNAL OF AUSTRALIA
(2023)
Review
Public, Environmental & Occupational Health
P. Butow, J. Shaw, N. Bartley, V. Milch, R. Sathiaraj, Scott Turnbull, C. Der Vartanian
Summary: This study aimed to synthesize the literature on COVID-19 vaccine hesitancy in cancer patients and oncology health professionals. Eighteen articles were identified, reporting hesitancy rates ranging from 3.9% to 76.7% with a mean of 38.4%. Six common reasons for hesitancy were identified, and the importance of oncologists in addressing hesitancy and providing personalized advice was emphasized.
PATIENT EDUCATION AND COUNSELING
(2023)
Review
Oncology
Kyra Webb, Louise Sharpe, Phyllis Butow, Haryana Dhillon, Robert Zachariae, Nina Moller Tauber, Mia Skytte O'Toole, Joanne Shaw
Summary: This study compared the levels of fear of cancer recurrence (FCR) between cancer survivors and caregivers through a meta-analysis. It also examined the relationship between caregiver FCR, depression, and anxiety, and evaluated the psychometric properties of caregiver FCR measures. The results showed that caregivers reported FCR levels similar to survivors, with around 48% of caregivers reporting clinically significant FCR levels. There was a strong correlation between anxiety and depression and medium correlation with survivor FCR. The existing measurement tools for caregiver FCR mostly relied on survivor conceptualizations and lacked validation.
Article
Education & Educational Research
Jia Liu, Anastasia Serafimovska, Sharon He, Phyllis Butow, Joanne Shaw, Christopher John McHardy, Georgia Harris, Zoe Butt, Jane Beith
Summary: The study aims to explore the barriers and facilitators to implementing a low-cost brief intervention (CIFeR) to reduce fear of cancer recurrence (FCR) in routine oncology practice in Australia. The primary objective is to assess the adoption of CIFeR in routine clinical practice, while secondary objectives include identifying the uptake and sustainability, acceptability, feasibility, costs, barriers, and facilitators of CIFeR implementation, as well as assessing the impact of CIFeR training on clinicians' self-efficacy in managing FCR.
BMC MEDICAL EDUCATION
(2023)
Review
Oncology
R. King, L. Stafford, P. Butow, S. Giunta, R. Laidsaar-Powell
Summary: This meta-review examines the qualitative evidence-base on breast cancer survivorship experiences and identifies the main themes and areas for further investigation.
JOURNAL OF CANCER SURVIVORSHIP
(2023)
Article
Health Care Sciences & Services
Mona M. N. Faris, Heather L. Shepherd, Phyllis N. Butow, Patrick Kelly, Sharon He, Nicole Rankin, Lindy Masya, ADAPT Program Grp, Joanne Shaw
Summary: This quantitative study examined the level of organisational readiness of cancer services preparing to implement a clinical pathway for the screening, assessment, and management of anxiety and depression in adult cancer patients. Factors such as the number of treatment modalities implemented and staff roles were found to impact organisational readiness. Higher organisational readiness scores were associated with more positive perceptions of the clinical pathway.
BMC HEALTH SERVICES RESEARCH
(2023)
Article
Oncology
Lesley Stafford, Michelle Sinclair, Phyllis Butow, Janemary Hughes, Allan Park, Leslie Gilham, Allison Rose, G. Bruce Mann
Summary: This study investigated the patient experience of de-escalation and its association with fear of cancer recurrence (FCR) in early breast cancer. The results show lower FCR in patients who omitted radiotherapy compared to those who received it. Qualitative analysis suggests that positive perceptions of tailored care, lower treatment burden, and trust in clinicians are protective against FCR.
BREAST CANCER RESEARCH AND TREATMENT
(2023)
Article
Health Care Sciences & Services
Madeleine L. Juhrmann, Phyllis N. Butow, Cara M. Platts, Paul Simpson, Mark Boughey, Josephine M. Clayton
Summary: This qualitative study aimed to explore the experiences, perspectives, and attitudes of paramedics, palliative care doctors and nurses, general practitioners, residential aged care nurses, as well as bereaved families and carers on the role, barriers, and enablers of paramedics delivering palliative and end-of-life care in community-based settings. The results revealed that paramedics were perceived as having a revered public identity but also expressed fear and vulnerability when providing palliative care. Consent may be required for paramedics to move beyond a culture of curative care, however, all participant groups recognized their important adjunct role in supporting community-based palliative care.
PALLIATIVE MEDICINE
(2023)
Article
Public, Environmental & Occupational Health
Camelia Harrison, Nicci Bartley, Chris Jacobs, Megan Best, Sabina Vatter, Bettina Meiser, Mandy L. Ballinger, David M. Thomas, Phyllis Butow
Summary: This study aimed to explore cancer patients' perceived importance of disclosure, predictors of perceptions, and perspectives on family communication of germline genome sequencing results. The results showed that most participants intended to disclose results to their nuclear family, considered the results as family information, and believed it was important to disclose results to family members. Education level and the level of communication within the nuclear and extended family were significantly positively associated with the perceived importance of disclosure. Low health literacy and family conflict can complicate the communication of germline genome sequencing results.
PATIENT EDUCATION AND COUNSELING
(2023)
Article
Oncology
Nina M. M. Tauber, Mia S. S. O'Toole, Anders B. B. Jensen, Phyllis N. N. Butow, Belinda Thewes, Emma Elkjaer, Sofie Knutzen, Annika von Heymann, Christoffer Johansen, Robert Zachariae
Summary: This randomized controlled trial evaluated the efficacy of an online group-based psychological intervention (ConquerFear-Group) for fear of cancer recurrence (FCR). The results showed that ConquerFear-Group significantly reduced the severity of FCR and maintained stable effects over a 6-month period.
Article
Oncology
Rebekah Laidsaar-Powell, Phyllis Butow, Bernadette Bea Brown, Kimberley Mander, Jane Young, Emily Stone, Venessa Chin, Emily Banks, Chloe Yi Shing Lim, Nicole M. Rankin
Summary: This study aimed to understand lung cancer survivors' physical/psychological challenges, experiences of immunotherapy and targeted therapy, and psychological adjustment. The findings showed that many survivors are adapting to issues as they arise and maintaining a sense of hope and optimism.
JOURNAL OF CANCER SURVIVORSHIP
(2023)
Meeting Abstract
Respiratory System
Rebekah Laidsaar-Powell, Phyllis Butow, Bea Brown, Kimberley Mander, Jane Young, Emily Stone, Venessa Chin, Emily Banks, Nicole Rankin
