Opening a “Can of Worms” to Explore the Public's Hopes and Fears About Health Care Data Sharing: Qualitative Study
Published 2021 View Full Article
- Home
- Publications
- Publication Search
- Publication Details
Title
Opening a “Can of Worms” to Explore the Public's Hopes and Fears About Health Care Data Sharing: Qualitative Study
Authors
Keywords
-
Journal
JOURNAL OF MEDICAL INTERNET RESEARCH
Volume 23, Issue 2, Pages e22744
Publisher
JMIR Publications Inc.
Online
2021-01-17
DOI
10.2196/22744
References
Ask authors/readers for more resources
Related references
Note: Only part of the references are listed.- Corrigendum to “Patient perspectives on the linkage of health data for research: Insights from an online patient community questionnaire” [Int. J. Med. Inform. 127 (2019) 9–17]
- (2020) Emily C. O’Brien et al. INTERNATIONAL JOURNAL OF MEDICAL INFORMATICS
- Impact of providing patients access to electronic health records on quality and safety of care: a systematic review and meta-analysis
- (2020) Ana Luisa Neves et al. BMJ Quality & Safety
- Healthcare professionals’ perspectives on the secondary use of health records to improve quality and safety of care: a qualitative study in England (Preprint)
- (2019) Ana Luísa Neves et al. JOURNAL OF MEDICAL INTERNET RESEARCH
- Effect of Public Deliberation on Patient Attitudes Regarding Consent and Data Use in a Learning Health Care System for Oncology
- (2019) Reshma Jagsi et al. JOURNAL OF CLINICAL ONCOLOGY
- Are you ready for General Data Protection Regulation?
- (2018) Bernadette John BMJ-British Medical Journal
- Are you ready for General Data Protection Regulation?
- (2018) Bernadette John BMJ-British Medical Journal
- The Association of Patient Factors, Digital Access, and Online Behavior on Sustained Patient Portal Use: A Prospective Cohort of Enrolled Users
- (2017) Susan S Woods et al. JOURNAL OF MEDICAL INTERNET RESEARCH
- Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies
- (2016) Mhairi Aitken et al. BMC Medical Ethics
- Young people’s views about consenting to data linkage: findings from the PEARL qualitative study
- (2016) Suzanne Audrey et al. BMC Medical Research Methodology
- Patient and public views about the security and privacy of Electronic Health Records (EHRs) in the UK: results from a mixed methods study
- (2015) Chrysanthi Papoutsi et al. BMC Medical Informatics and Decision Making
- Recent trends in the incidence of anxiety and prescription of anxiolytics and hypnotics in children and young people: An e-cohort study
- (2015) A. John et al. JOURNAL OF AFFECTIVE DISORDERS
- Big Data In Health Care: Using Analytics To Identify And Manage High-Risk And High-Cost Patients
- (2014) David W. Bates et al. HEALTH AFFAIRS
- Geographic Health Information Systems: A Platform To Support The ‘Triple Aim’
- (2013) Marie Lynn Miranda et al. HEALTH AFFAIRS
- Concern about security and privacy, and perceived control over collection and use of health information are related to withholding of health information from healthcare providers
- (2013) Israel T Agaku et al. JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION
- Multi-Institutional Sharing of Electronic Health Record Data to Assess Childhood Obesity
- (2013) L. Charles Bailey et al. PLoS One
- ‘Nothing is really safe’: a focus group study on the processes of anonymizing and sharing of health data for research purposes
- (2010) Gill Haddow et al. JOURNAL OF EVALUATION IN CLINICAL PRACTICE
- Challenges to Using an Electronic Personal Health Record by a Low-Income Elderly Population
- (2009) Eung-Hun Kim et al. JOURNAL OF MEDICAL INTERNET RESEARCH
Publish scientific posters with Peeref
Peeref publishes scientific posters from all research disciplines. Our Diamond Open Access policy means free access to content and no publication fees for authors.
Learn MoreAsk a Question. Answer a Question.
Quickly pose questions to the entire community. Debate answers and get clarity on the most important issues facing researchers.
Get Started