Incorporating the Patient Voice in Sarcoma Research: How Can We Assess Health-Related Quality of Life in This Heterogeneous Group of Patients? A Study Protocol

International standards for the analysis of quality-of-life and patient-reported outcome endpoints in cancer randomised controlled trials: recommendations of the SISAQOL Consortium

(2020) Corneel Coens et al.   LANCET ONCOLOGY

Soft-tissue sarcoma in adults: An update on the current state of histiotype-specific management in an era of personalized medicine

(2020) Adriana C. Gamboa et al.   CA-A CANCER JOURNAL FOR CLINICIANS

Immunotherapy in sarcoma

(2020) Armelle Dufresne et al.   CURRENT OPINION IN ONCOLOGY

Development of a patient-reported experience questionnaire for patients with sarcoma: the Sarcoma Assessment Measure (SAM)

(2020) Ana Martins et al.   QUALITY OF LIFE RESEARCH

Patient and diagnostic intervals of survivors of sarcoma: Results from the SURVSARC study

(2020) Vicky L. M. N. Soomers et al.   CANCER

Unravelling the heterogeneity of soft tissue and bone sarcoma patients’ health-related quality of life: a systematic literature review with focus on tumour location

(2020) Dide den Hollander et al.   ESMO Open

The Health-Related Quality of Life of Sarcoma Patients and Survivors in Germany—Cross-Sectional Results of a Nationwide Observational Study (PROSa)

(2020) Martin Eichler et al.   Cancers

International validation of the revised European Organisation for Research and Treatment of Cancer Head and Neck Cancer Module, the EORTC QLQ-HN43: Phase IV

(2019) Susanne Singer et al.   HEAD AND NECK-JOURNAL FOR THE SCIENCES AND SPECIALTIES OF THE HEAD AND NECK

Health-related quality of life, psychosocial functioning, and unmet health needs in patients with sarcoma: A systematic review

(2019) Joshua McDonough et al.   PSYCHO-ONCOLOGY

Public involvement in health outcomes research: lessons learnt from the development of the recovering quality of life (ReQoL) measures

(2019) Andrew Grundy et al.   Health and Quality of Life Outcomes

Cediranib in patients with alveolar soft-part sarcoma (CASPS): a double-blind, placebo-controlled, randomised, phase 2 trial

(2019) Ian Judson et al.   LANCET ONCOLOGY

PCN45 WHAT TO CHOOSE? CREATING A PATIENT-REPORTED OUTCOMES (PRO) ASSESSMENT STRATEGY WITH EORTC MEASURES AND ITEM LIBRARY THAT CAN MEET THE NEEDS OF REGULATORS

(2019) D. Kulis et al.   VALUE IN HEALTH

Current state of quality of life and patient-reported outcomes research

(2019) Andrew Bottomley et al.   EUROPEAN JOURNAL OF CANCER

Survival of adults with cancers of bone or soft tissue in Europe—Report from the EUROCARE-5 study

(2018) Charles A. Stiller et al.   Cancer Epidemiology

Does age matter? A comparison of health-related quality of life issues of adolescents and young adults with cancer

(2018) Samantha C. Sodergren et al.   EUROPEAN JOURNAL OF CANCER CARE

Pazopanib for treatment of advanced malignant and dedifferentiated solitary fibrous tumour: a multicentre, single-arm, phase 2 trial

(2018) Javier Martin-Broto et al.   LANCET ONCOLOGY

Electronic Systems for Patients to Report and Manage Side Effects of Cancer Treatment: Systematic Review

(2018) Lorraine Warrington et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Focusing on Core Patient-Reported Outcomes in Cancer Clinical Trials—Letter

(2016) Mogens Groenvold et al.   CLINICAL CANCER RESEARCH

Focusing on Core Patient-Reported Outcomes in Cancer Clinical Trials: Symptomatic Adverse Events, Physical Function, and Disease-Related Symptoms

(2016) P. G. Kluetz et al.   CLINICAL CANCER RESEARCH

Symptom Monitoring With Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial

(2016) Ethan Basch et al.   JOURNAL OF CLINICAL ONCOLOGY

Health-related quality of life following treatment for extremity soft tissue sarcoma

(2016) Darin Davidson et al.   JOURNAL OF SURGICAL ONCOLOGY

Inclusion of patient-reported outcome measures in registered clinical trials: Evidence from ClinicalTrials.gov (2007–2013)

(2015) E. Vodicka et al.   Contemporary Clinical Trials

Long-Term Outcome of Aromatase Inhibitor Therapy With Letrozole in Patients With Advanced Low-Grade Endometrial Stromal Sarcoma

(2015) Munekage Yamaguchi et al.   INTERNATIONAL JOURNAL OF GYNECOLOGICAL CANCER

Changes in the body image of bone sarcoma survivors following surgical treatment-A qualitative study

(2015) Lena Fauske et al.   JOURNAL OF SURGICAL ONCOLOGY

Quality of life measures in soft tissue sarcoma

(2014) Kenneth R Gundle et al.   Expert Review of Anticancer Therapy

What Is the Value of the Routine Use of Patient-Reported Outcome Measures Toward Improvement of Patient Outcomes, Processes of Care, and Health Service Outcomes in Cancer Care? A Systematic Review of Controlled Trials

(2014) Grigorios Kotronoulas et al.   JOURNAL OF CLINICAL ONCOLOGY

Symptom burden and medication use in adult sarcoma patients

(2014) Alexandre Chan et al.   SUPPORTIVE CARE IN CANCER

Pazopanib for metastatic soft-tissue sarcoma (PALETTE): a randomised, double-blind, placebo-controlled phase 3 trial

(2012) Winette TA van der Graaf et al.   LANCET

Psychometric validation of the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire-Endometrial Cancer Module (EORTC QLQ-EN24)

(2010) Elfriede Greimel et al.   EUROPEAN JOURNAL OF CANCER

Anxiety and depression in sarcoma patients: Emotional adjustment and its determinants in the different phases of disease

(2010) Tiago Paredes et al.   European Journal of Oncology Nursing

“So, are you back to work yet?” Re-conceptualizing ‘work’ and ‘return to work’ in the context of primary bone cancer

(2008) Janet A. Parsons et al.   SOCIAL SCIENCE & MEDICINE