Article
Environmental Sciences
Yossie Susanti Eka Putri, I. Gusti Ngurah Edi Putra, Annida Falahaini, Ice Yulia Wardani
Summary: This study aimed to identify caregiver burden and its determinants in informal caregivers of older patients with dementia in Java, Indonesia. The study found that the gender of the patients, education level of the caregivers, social support, and behavioral and psychological symptoms of dementia (BPSD) were associated with the caregiver burden. Higher burden was reported among caregivers of female patients and patients with higher BPSD scores. On the other hand, caregivers with higher perceived social support and higher education tended to have lower subjective burden scores. These findings suggest that managing BPSD and maintaining social support resources may help reduce caregiver burden and improve the quality of life for both caregivers and patients.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
(2022)
Article
Geriatrics & Gerontology
Innocenzo Rainero, Amalia C. Bruni, Camillo Marra, Annachiara Cagnin, Laura Bonanni, Chiara Cupidi, Valentina Lagana, Elisa Rubino, Alessandro Vacca, Raffaele Di Lorenzo, Paolo Provero, Valeria Isella, Nicola Vanacore, Federica Agosta, Ildebrando Appollonio, Paolo Caffarra, Cinzia Busse, Renato Sambati, Davide Quaranta, Valeria Guglielmi, Giancarlo Logroscino, Massimo Filippi, Gioacchino Tedeschi, Carlo Ferrarese
Summary: The study revealed that during the COVID-19 quarantine, patients with dementia experienced a significant worsening of clinical symptoms, while caregivers also faced increased burden. Physical independence was associated with cognitive and behavioral worsening, while awareness of the pandemic acted as a protective factor against symptom exacerbation.
FRONTIERS IN AGING NEUROSCIENCE
(2021)
Article
Psychiatry
Hideki Kanemoto, Shunsuke Sato, Yuto Satake, Fuyuki Koizumi, Daiki Taomoto, Atsushi Kanda, Tamiki Wada, Kenji Yoshiyama, Manabu Ikeda
Summary: The study classified behavioral and psychological symptoms of dementia (BPSD) in patients with dementia with Lewy bodies (DLB) into four factors, including psychosis, affection, wakefulness, and hyperactivity. It was found that psychosis, affection, and activities of daily living were significantly associated with caregiver burden, with each BPSD factor affecting caregiver burden in a different way in DLB.
FRONTIERS IN PSYCHIATRY
(2021)
Article
Psychiatry
Xuejiao Lu, Rui Ye, Jialan Wu, Dongping Rao, Xiaoyan Liao
Summary: This study investigates the differences in behavioral and psychological symptoms of dementia (BPSD) and caregiver distress between older adults with dementia living in the community and those in nursing homes. It found that clinically significant symptoms were more prevalent among community residents, and caregivers of community residents experienced higher levels of distress. Family caregiving remained an independent risk predictor for clinically significant symptoms and caregiver distress.
FRONTIERS IN PSYCHIATRY
(2022)
Article
Geriatrics & Gerontology
Eunjeong Choi, Hyun-Ju Seo, I. L. Han Choo, Seong Min Kim, Jeong Min Park, Yu Mi Choi, Eun-Young Yang
Summary: Despite the implementation of community-based interventions for family caregivers of people with dementia, a long-term assessment of these programs is lacking. This study aimed to identify the long-term effects of a community-based dementia caregiver intervention on caregiver burden and healthcare utilization, as well as explore predictors of burden and utilization. The findings showed that the intervention group did not experience a reduction in burden or utilization compared to the control group. Predictors of perceived burden included being a spouse caregiver and having multiple comorbidities. These predictors should be considered when implementing public family support programs.
Article
Geriatrics & Gerontology
JoAnna L. Dieker, Stacy W. Yun, Kendall L. Weber, Sara Qualls
Summary: Most caregivers reported conflict with family members over care strategies or illness beliefs. Clinic caregivers reported greater illness beliefs conflict than online caregivers. Adult children reported greater illness beliefs and family care strategies than spouses. Male caregivers were more likely than female caregivers to report care strategies conflict. Caregiver overload was significantly associated with family care strategies conflict. Both conflicts were positively associated with caregiver burden. The findings suggest that family conflicts are a widespread concern among online and help-seeking caregivers, with caregiving relationship type and gender potentially increasing the likelihood of conflicts. The results provide insights for clinical intervention and assessment of family caregivers.
AGING & MENTAL HEALTH
(2023)
Article
Geriatrics & Gerontology
RiYin Tay, Joyce Y. S. Tan, Allyn Y. M. Hum
Summary: This study aimed to explore the factors associated with family caregiver burden in home care for patients with advanced dementia and examine its relationship with end-of-life care treatment decisions. The results showed that younger family caregivers and those without informal paid help experienced greater burden and risk of depression. Additionally, the severity of patients' neuropsychiatric symptoms and clinical instability were also associated with caregiver burden and depression risk.
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
(2022)
Article
Geriatrics & Gerontology
Richard E. Chunga, Kyungmin Kim, Yin Liu, Steven H. Zarit
Summary: This study found that relationship quality can attenuate the impact of daily BPSD on caregiver distress. Future dementia caregiver education and support programs should consider incorporating relationship quality into personalized program design to enhance caregiver mental health and well-being.
INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY
(2021)
Article
Oncology
Naoko Otsuki, Ryohei Yamamoto, Yukihiro Sakaguchi, Kento Masukawa, Tatsuya Morita, Yoshiyuki Kizawa, Satoru Tsuneto, Yasuo Shima, Sakiko Fukui, Mitsunori Miyashita
Summary: The study in Japan on 710 family caregivers of cancer patients found that time-dependent burden was highest among caregivers of patients with moderate care needs. Additionally, older patients and younger caregivers were significantly associated with a time-dependent burden.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Geriatrics & Gerontology
Victoria Garcia-Martin, M. Canto de Hoyos-Alonso, Rosalia Delgado-Puebla, Gloria Ariza-Cardiel, Isabel del Cura-Gonzalez
Summary: This cross-sectional observational study estimated the prevalence of burden among caregivers of dementia patients and its association with neuropsychiatric symptoms (NPSs) and identified NPSs causing greater caregiver distress at different dementia stages. The results showed that caregiver burden is high and associated with the presence and intensity of NPSs, with disinhibition and irritability causing the highest burden. In mild, mild-moderate, and severe dementia, depression, hyperactivity, and psychosis symptoms respectively produce more distress.
Article
Geriatrics & Gerontology
Ulla L. Aalto, H. Finne-Soveri, H. Kautiainen, H. Ohman, H. -M. Roitto, K. H. Pitkala
Summary: The study found an association between anticholinergic burden and HRQoL, which disappeared after considering dementia, nutritional status, and dependency. The reasons behind this interaction concerning dementia or dependency remain unclear and warrant further studies.
JOURNAL OF NUTRITION HEALTH & AGING
(2021)
Article
Geriatrics & Gerontology
Shinya Ishii, Kazutaka Tanabe, Bunji Ishimaru, Kanako Kitahara
Summary: This study aimed to evaluate the impact of the COVID-19 outbreak on the utilization of long-term care services by older adults and identify associated factors. The results showed a decline in service utilization during the state of emergency, with different effects depending on the service type and dementia severity. These findings can help LTC professionals identify vulnerable groups and develop effective infection prevention plans while mitigating the negative impacts of infection prevention measures.
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
(2023)
Article
Geriatrics & Gerontology
Liang-Yu Chen, Ting-Jung Hsu, Li-Ju Ke, Hui-Te Tsai, Wen-Ting Lee, Li-Ning Peng, Ming-Hsien Lin, Liang-Kung Chen
Summary: This study compared the physical and neurocognitive performance of elderly dementia patients receiving PACE services with those in residential dementia care units. The results showed that PACE services significantly reduced hospital admissions, improved physical and cognitive function, and reduced depressive mood among dementia patients. Further randomized controlled studies are needed to determine the most appropriate care model for persons with dementia.
ARCHIVES OF GERONTOLOGY AND GERIATRICS
(2021)
Article
Geriatrics & Gerontology
Jue Hua Lau, Edimansyah Abdin, Anitha Jeyagurunathan, Esmond Seow, Li Ling Ng, Janhavi Ajit Vaingankar, Siow Ann Chong, Mythily Subramaniam
Summary: This study found that caregiver distress and burden were associated with healthcare utilization of persons with dementia, highlighting the importance of providing interventions to support caregivers in managing the care of PWD.
Article
Gerontology
Rachel Zmora, Tamara L. Statz, Robyn W. Birkeland, Hayley R. McCarron, Jessica M. Finlay, Christina E. Rosebush, Joseph E. Gaugler
Summary: The study found that family caregivers place a high value on communication, perceptions of care, and relationships with staff following the transition of a relative with dementia to RLTC.
JOURNAL OF AGING AND HEALTH
(2021)
