4.1 Article

Content analysis of child user and carer perspectives of ankle-foot orthoses

Journal

PROSTHETICS AND ORTHOTICS INTERNATIONAL
Volume 45, Issue 1, Pages 12-19

Publisher

WOLTERS KLUWER HEALTH
DOI: 10.1177/0309364620952906

Keywords

Lower limb orthotics; qualitative methods; ankle-foot orthosis; lower extremity; adolescent; user-driven

Funding

  1. Sydney Musculoskeletal, Bone and Joint Health Alliance
  2. Australian Department of Health (Medical Research Future Fund)
  3. US National Institutes of Health
  4. Charcot-MarieTooth Association of Australia
  5. Charcot-Marie-Tooth Association (USA)
  6. Diabetes Australia
  7. Elizabeth Lottie May Rosenthal Bone Bequest
  8. Perpetual Limited
  9. Humpty Dumpty Foundation

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The study conducted inductive content analysis of child user, parent/carer, and practitioner perspectives to explore how child users perceive the acquisition and use of ankle-foot orthoses. Five key themes were identified: materials, structure, aesthetics, service, and impact. Child users had mixed opinions on ankle-foot orthoses, with satisfaction from functional improvements but negative feelings from the acquisition and use process.
Background: The evaluation of ankle-foot orthoses is primarily focused on biomechanical performance, with comparatively less studies pertaining to users' quality of life and experiential factors. Objectives: To investigate how child users regard acquisition and use of ankle-foot orthoses through the perspectives of child users, parents/carers and practitioners. Study design: Inductive content analysis of secondary data. Methods: Child user and parent/carer perspectives, as communicated by them and by practitioners, were collected from online platforms and formal publications. Data and themes were analysed through an inductive approach. Investigator triangulation was used to increase trustworthiness and reduce bias. Results: We found and analysed 223 data points from 30 informal online platforms and 15 formal publications. These data clustered into five key themes relating to user experience with ankle-foot orthoses, including materials, structure, aesthetics, service and impact. Child users had mixed opinions about ankle-foot orthoses, reporting satisfaction with the functional improvements resulting from ankle-foot orthosis wear, while noting negative feelings from the experience of acquiring and using the device. Conclusion: This research suggests that considering the five themes in ankle-foot orthosis provision could improve the child user experience, inform future ankle-foot orthosis design, and improve clinical outcomes.

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