The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: A scoping review

Factor structure of the Quality of Children’s Palliative Care Instrument (QCPCI) when completed by parents of children with cancer

(2019) Kimberley Widger et al.   BMC Palliative Care

Family caregivers of children and adolescents with rare diseases: a novel palliative care intervention

(2019) Maureen E Lyon et al.   BMJ Supportive & Palliative Care

Achieving beneficial outcomes for children with life-limiting and life-threatening conditions receiving palliative care and their families: A realist review

(2019) Sarah Mitchell et al.   PALLIATIVE MEDICINE

Visualizing social support in home pediatric palliative care using network maps

(2019) Daniela Lindemann et al.   PALLIATIVE MEDICINE

EVERYDAY LIFE EXPERIENCES IN FAMILIES WITH A CHILD WITH KIDNEY DISEASE

(2019) Hanne Agerskov et al.   Journal of Renal Care

Parent Perspectives of Receiving Early Information About Palliative and End-of-Life Care Options From Their Child’s Pediatric Providers

(2018) Verna L. Hendricks-Ferguson et al.   CANCER NURSING

Development and Assessment of a Measure of Parent and Child Needs in Pediatric Palliative Care

(2018) James P. Donnelly et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation

(2018) Andrea C. Tricco et al.   ANNALS OF INTERNAL MEDICINE

Supporting parental caregivers of children living with life‐threatening or life‐limiting illnesses: A Delphi study

(2018) Nicole R. Smith et al.   Journal for Specialists in Pediatric Nursing

Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review

(2018) Poh Heng Chong et al.   JOURNAL OF PALLIATIVE MEDICINE

Instruments to Measure Outcomes in Pediatric Palliative Care: A Systematic Review

(2018) Marie Friedel et al.   PEDIATRICS

Aims and tasks in parental caregiving for children receiving palliative care at home: a qualitative study

(2017) Lisa M. Verberne et al.   EUROPEAN JOURNAL OF PEDIATRICS

Maintaining family life balance while facing a child's imminent death-A mixed methods study

(2017) Katri Eskola et al.   JOURNAL OF ADVANCED NURSING

Parental experiences with a paediatric palliative care team: A qualitative study

(2017) Lisa M Verberne et al.   PALLIATIVE MEDICINE

Lived experiences of parents caring for a child with a life-limiting condition in Australia: A qualitative study

(2016) Anna Collins et al.   PALLIATIVE MEDICINE

“Hope for the best, prepare for the worst”: A qualitative interview study on parents’ needs and fears in pediatric advance care planning

(2016) Julia Desiree Lotz et al.   PALLIATIVE MEDICINE

When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child’s end-of life care

(2016) Karin Zimmermann et al.   BMC Palliative Care

Development and initial validation of the Parental PELICAN Questionnaire (PaPEQu) - an instrument to assess parental experiences and needs during their child's end-of-life care

(2015) Karin Zimmermann et al.   JOURNAL OF ADVANCED NURSING

Experiences of Pediatric Oncology Patients and Their Parents at End of Life

(2015) Kathleen Montgomery et al.   Journal of Pediatric Oncology Nursing

A pre-test and post-test study of the physical and psychological effects of out-of-home respite care on caregivers of children with life-threatening conditions

(2015) Cheryl Remedios et al.   PALLIATIVE MEDICINE

Supporting family caregivers to identify their own needs in end-of-life care: Qualitative findings from a stepped wedge cluster trial

(2015) Samar Aoun et al.   PALLIATIVE MEDICINE

Enabling a family caregiver-led assessment of support needs in home-based palliative care: Potential translation into practice

(2015) Samar Aoun et al.   PALLIATIVE MEDICINE

Differences in end-of-life communication for children with advanced cancer who were referred to a palliative care team

(2015) Alisha Kassam et al.   PEDIATRIC BLOOD & CANCER

Digital storytelling: An innovative legacy-making intervention for children with cancer

(2015) Terrah Foster Akard et al.   PEDIATRIC BLOOD & CANCER

The Impact of the Carer Support Needs Assessment Tool (CSNAT) in Community Palliative Care Using a Stepped Wedge Cluster Trial

(2015) Samar M. Aoun et al.   PLoS One

The supportive care needs of parents caring for a child with a rare disease: A scoping review

(2015) Lemuel J. Pelentsov et al.   Disability and Health Journal

A Longitudinal, Randomized, Controlled Trial of Advance Care Planning for Teens With Cancer: Anxiety, Depression, Quality of Life, Advance Directives, Spirituality

(2014) Maureen E. Lyon et al.   JOURNAL OF ADOLESCENT HEALTH

Patterns of diagnoses among children and young adults with life-limiting conditions: A secondary analysis of a national dataset

(2014) Lorna K Fraser et al.   PALLIATIVE MEDICINE

The Duty of the Physician to Care for the Family in Pediatric Palliative Care: Context, Communication, and Caring

(2014) B. L. Jones et al.   PEDIATRICS

Bereaved Parents and Siblings Offer Advice to Health Care Providers and Researchers

(2013) Amii C. Steele et al.   JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY

Preferred place of death for children and young people with life-limiting and life-threatening conditions: A systematic review of the literature and recommendations for future inquiry and policy

(2013) Myra Bluebond-Langner et al.   PALLIATIVE MEDICINE

Parent and clinician preferences for location of end-of-life care: Home, hospital or freestanding hospice?

(2013) Alisha Kassam et al.   PEDIATRIC BLOOD & CANCER

The Carer Support Needs Assessment Tool (CSNAT) for Use in Palliative and End-of-life Care at Home: A Validation Study

(2012) Gail Ewing et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Rising National Prevalence of Life-Limiting Conditions in Children in England

(2012) Lorna K. Fraser et al.   PEDIATRICS

“That must be so hard”- Examining the impact of children’s palliative care services on the psychological well-being of parents

(2012) Vineeta Gupta et al.   Clinical Child Psychology and Psychiatry

Chemotherapy versus supportive care alone in pediatric palliative care for cancer: comparing the preferences of parents and health care professionals

(2011) D. Tomlinson et al.   CANADIAN MEDICAL ASSOCIATION JOURNAL

Absorbing Information about a Child’s Incurable Cancer

(2010) Patrizia Lannen et al.   ONCOLOGY

Information seeking behaviors of parents whose children have life-threatening illnesses

(2010) Caprice Knapp et al.   PEDIATRIC BLOOD & CANCER

Quality of care at the end of life in children with cancer

(2009) John A Heath et al.   JOURNAL OF PAEDIATRICS AND CHILD HEALTH

The supportive and palliative care needs of Australian families of children who die from cancer

(2009) L Monterosso et al.   PALLIATIVE MEDICINE

Impact of a pediatric palliative care program

(2009) Johannes Wolff et al.   PEDIATRIC BLOOD & CANCER

Parental experience at the end-of-life in children with cancer: ‘preservation’ and ‘letting go’ in relation to loss

(2009) Marijke C. Kars et al.   SUPPORTIVE CARE IN CANCER

Supportive and palliative care needs of families of children who die from cancer: an Australian study

(2008) Leanne Monterosso et al.   PALLIATIVE MEDICINE