Journal
CLEFT PALATE-CRANIOFACIAL JOURNAL
Volume 58, Issue 6, Pages 736-745Publisher
SAGE PUBLICATIONS INC
DOI: 10.1177/1055665620964124
Keywords
patient-reported outcomes; cleft lip and; or cleft palate; CHASQ; CLEFT-Q
Categories
Funding
- Foundation for Research in Plastic and Reconstructive Surgery at Skane University Hospital in Malmo
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The primary aim of the study was to compare the scores of two existing cleft-specific patient-reported outcome measures (PROMs) - CHASQ and CLEFT-Q, and to investigate patient opinions on these measures. The results showed a significant correlation between CHASQ and CLEFT-Q scores in appearance but not in speech. The majority of participants preferred CLEFT-Q, found CHASQ easier to complete, and believed that CLEFT-Q would better inform healthcare professionals.
Objective: The primary aim of this study was to compare corresponding scores between 2 existing cleft-specific patient-reported outcome measures (PROMs)-Cleft Hearing Appearance and Speech Questionnaire (CHASQ) and CLEFT-Q. The second aim of the study was to investigate patient opinion on the 2 PROMs. Design: Cross-sectional questionnaire study. Setting: Participants were recruited from a University Hospital. They answered CHASQ and CLEFT-Q either in the hospital or at home. Participants: Thirty-three participants with cleft lip and/or palate, aged 10 to 19 years. Main Outcome Measure: CHASQ and CLEFT-Q. Results: The CHASQ scores and the corresponding CLEFT-Q scores on appearance correlated significantly. Corresponding scores regarding speech did not correlate significantly. A majority, 15 (58%) participants, answered that they liked CLEFT-Q more than CHASQ, 18 participants (69%) thought CHASQ was easier to complete, and 19 (76%) thought CLEFT-Q would better inform health care professionals. Conclusion: Both instruments showed strengths and limitations. Clinicians will have to consider each instrument's respective qualities when choosing to implement either PROM.
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