4.5 Review

Implementing advance directives-An international literature review of important considerations for nurses

Journal

JOURNAL OF NURSING MANAGEMENT
Volume 28, Issue 6, Pages 1177-1190

Publisher

WILEY
DOI: 10.1111/jonm.13097

Keywords

advance care planning; advance directives; decision-making; living wills; paternalism

Funding

  1. Nursing and Midwifery Planning and Development Unit South East
  2. Health Service Executive
  3. Waterford Institute of Technology

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Aim(s) To review the global literature on the implementation of advance health care directives to date, and the experiences of the health care professionals who must initiate the discussions around advance care planning, as well as support patients' ultimate decisions. Background Ireland's Assisted Decision-Making (Capacity) Act 2015 legalizes advance health care directives. It promotes the autonomy of the person and enables them to have treatment in accordance with their will and preferences. However, there is professional uncertainty on how to support and integrate assisted decision-making. Evaluation 16 studies featuring the views of health care professionals are included and evaluated using a framework of 'benefits versus challenges'. Key issue(s) Four themes clearly emerge during the review process: the concept of capacity and who decides; autonomy versus paternalism-conflict among the health care professional/patient/family caregiver triad; barriers to advance directives; and timing issues. Conclusion(s) Significant benefits of advance health care directives exist for all parties including less stress for patients and families alike, less burden and less residual guilt for surviving relatives, and an over-arching prevention of 'crisis' decision-making. Implications for Nursing Management This review highlights the central role of the nurse in empowering patients to express their wills and preferences, supporting patients' capacity to make decisions about their own care, initiating end-of-life care discussions and advocating to have advance health care directives acknowledged. Moreover, it identifies the challenges ahead for all nurse managers in implementing this new mandate.

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