A Lifespan Approach to Patient‐Reported Outcomes and Quality of Life for People on the Autism Spectrum

Predictors of quality of life for autistic adults

(2018) David Mason et al.   Autism Research

Qualitative Development and Content Validation of the PROMIS Pediatric Sleep Health Items

(2018) Katherine B. Bevans et al.   Behavioral Sleep Medicine

Development and validation of the PROMIS Pediatric Sleep Disturbance and Sleep-Related Impairment item banks

(2018) Christopher B Forrest et al.   SLEEP

Development and validation of the PROMIS Pediatric Sleep Disturbance and Sleep-Related Impairment item banks

(2018) Christopher B Forrest et al.   SLEEP

Considerations from the 2017 IMFAR Preconference on Measuring Meaningful Outcomes from School-Age to Adulthood

(2018) Vanessa H. Bal et al.   Autism Research

Children’s family experiences: development of the PROMIS® pediatric family relationships measures

(2017) Katherine B. Bevans et al.   QUALITY OF LIFE RESEARCH

Development and psychometric evaluation of the PROMIS Pediatric Life Satisfaction item banks, child-report, and parent-proxy editions

(2017) Christopher B. Forrest et al.   QUALITY OF LIFE RESEARCH

Development and Validation of Patient-Reported Outcome Measures for Sleep Disturbance and Sleep-Related Impairments

(2017) Daniel J. Buysse et al.   SLEEP

PROMIS measures of pain, fatigue, negative affect, physical function, and social function demonstrated clinical validity across a range of chronic conditions

(2016) Karon F. Cook et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

A comparison of children and adolescent’s self-report and parental report of the PedsQL among those with and without autism spectrum disorder

(2016) M. A. Stokes et al.   QUALITY OF LIFE RESEARCH

Concurrent validity of the PROMIS® pediatric global health measure

(2015) Christopher B. Forrest et al.   QUALITY OF LIFE RESEARCH

Sex and gender differences in autism spectrum disorder: summarizing evidence gaps and identifying emerging areas of priority

(2015) Alycia K Halladay et al.   Molecular Autism

Using item response theory to enrich and expand the PROMIS® pediatric self report banks

(2014) Hally Quinn et al.   Health and Quality of Life Outcomes

New English and Spanish social health measures will facilitate evaluating health determinants.

(2014) Elizabeth A. Hahn et al.   HEALTH PSYCHOLOGY

Validation of the depression item bank from the Patient-Reported Outcomes Measurement Information System (PROMIS®) in a three-month observational study

(2014) Paul A. Pilkonis et al.   JOURNAL OF PSYCHIATRIC RESEARCH

Patient-Reported Outcomes Measurement Information System (PROMIS): Efficient, standardized tools to measure self-reported health and quality of life

(2014) Margaret Bevans et al.   NURSING OUTLOOK

Self-reported cognitive concerns and abilities: two sides of one coin?

(2014) Jin-Shei Lai et al.   PSYCHO-ONCOLOGY

Self-reported Pediatric Measures of Physical Activity, Sedentary Behavior, and Strength Impact for PROMIS

(2014) Carole A. Tucker et al.   Pediatric Physical Therapy

Self-reported Pediatric Measures of Physical Activity, Sedentary Behavior, and Strength Impact for PROMIS

(2014) Carole A. Tucker et al.   Pediatric Physical Therapy

Quality of life: A case-controlled long-term follow-up study, comparing young high-functioning adults with autism spectrum disorders with adults with other psychiatric disorders diagnosed in childhood

(2013) Petra S. Barneveld et al.   COMPREHENSIVE PSYCHIATRY

PROMIS Pediatric Peer Relationships Scale: Development of a peer relationships item bank as part of social health measurement.

(2013) Darren A. DeWalt et al.   HEALTH PSYCHOLOGY

Subjective well-being measures for children were developed within the PROMIS project: presentation of first results

(2013) Ulrike Ravens-Sieberer et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Parent-reported cognition of children with cancer and its potential clinical usefulness

(2013) Jin-Shei Lai et al.   QUALITY OF LIFE RESEARCH

Development of the PROMIS® pediatric global health (PGH-7) measure

(2013) Christopher B. Forrest et al.   QUALITY OF LIFE RESEARCH

Assessing psychological well-being: self-report instruments for the NIH Toolbox

(2013) John M. Salsman et al.   QUALITY OF LIFE RESEARCH

Patient reported outcome measures could help transform healthcare

(2013) N. Black   BMJ-British Medical Journal

Development of Short Forms From the PROMIS™ Sleep Disturbance and Sleep-Related Impairment Item Banks

(2012) Lan Yu et al.   Behavioral Sleep Medicine

Quality of life of adolescents with autism spectrum disorders: comparison to adolescents with diabetes

(2012) Hélène Cottenceau et al.   EUROPEAN CHILD & ADOLESCENT PSYCHIATRY

Development of six PROMIS pediatrics proxy-report item banks

(2012) Debra E Irwin et al.   Health and Quality of Life Outcomes

Shared Decision Making — The Pinnacle of Patient-Centered Care

(2012) Michael J. Barry et al.   NEW ENGLAND JOURNAL OF MEDICINE

Quality of life of adolescents with autism spectrum disorders: concordance among adolescents’ self-reports, parents’ reports, and parents’ proxy reports

(2011) R. Christopher Sheldrick et al.   QUALITY OF LIFE RESEARCH

Accuracy of phenotyping of autistic children based on internet implemented parent report

(2010) Hane Lee et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART B-NEUROPSYCHIATRIC GENETICS

Representativeness of the Patient-Reported Outcomes Measurement Information System Internet panel

(2010) Honghu Liu et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Relative to the general US population, chronic diseases are associated with poorer health-related quality of life as measured by the Patient-Reported Outcomes Measurement Information System (PROMIS)

(2010) Nan E. Rothrock et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008

(2010) David Cella et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Measuring social health in the patient-reported outcomes measurement information system (PROMIS): item bank development and testing

(2010) Elizabeth A. Hahn et al.   QUALITY OF LIFE RESEARCH

Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey

(2010) Debra E. Irwin et al.   QUALITY OF LIFE RESEARCH

Gender differences in health-related quality-of-life are partly explained by sociodemographic and socioeconomic variation between adult men and women in the US: evidence from four US nationally representative data sets

(2010) Dasha Cherepanov et al.   QUALITY OF LIFE RESEARCH

Psychiatric Disorders in Children With Autism Spectrum Disorders: Prevalence, Comorbidity, and Associated Factors in a Population-Derived Sample

(2009) Emily Simonoff et al.   JOURNAL OF THE AMERICAN ACADEMY OF CHILD AND ADOLESCENT PSYCHIATRY

Age and gender differences in health-related quality of life of children and adolescents in Europe: a multilevel analysis

(2009) Gisela Michel et al.   QUALITY OF LIFE RESEARCH

Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items

(2009) Ron D. Hays et al.   QUALITY OF LIFE RESEARCH

Research electronic data capture (REDCap)—A metadata-driven methodology and workflow process for providing translational research informatics support

(2008) Paul A. Harris et al.   JOURNAL OF BIOMEDICAL INFORMATICS

Using patient-reported outcomes in clinical practice: challenges and opportunities

(2008) Kathleen N. Lohr et al.   QUALITY OF LIFE RESEARCH