Article
Oncology
Ola A. Abdelhadi, Brad H. Pollock, Jill G. Joseph, Theresa H. M. Keegan
Summary: Psychological distress in AYA cancer survivors is associated with additional medical expenses and healthcare utilization, highlighting the need for interventions to address the psychological needs of these individuals.
Article
Oncology
Eunju Choi, Amy M. Berkman, Christabel K. Cheung, Andrea C. Betts, John M. Salsman, Clark R. Andersen, Carol Yesenia Ochoa-Dominguez, Kimberly Miller, Joel Milam, Ashna Shah, Susan K. Peterson, Qian Lu, J. Andrew Livingston, Michelle A. T. Hildebrandt, Susan K. Parsons, David Freyer, Michael E. Roth
Summary: This study looked at the disparities in psychological health outcomes between Hispanic/Latino survivors of AYA cancer and controls. They found that survivors were more likely to report moderate/severe distress, use mental health care, and be unable to afford mental health care compared to controls.
Review
Pediatrics
Laura Reinman, Helen L. Coons, Jenna Sopfe, Robert Casey
Summary: In order to best support the diverse needs of adolescent and young adult cancer survivors, healthcare providers should assess and support them using a biopsychosocial and contextual framework. Building a trusting relationship with patients to openly discuss the physical and psychosocial aspects of sexual health is key to providing optimal care and outcomes.
Article
Pediatrics
Melissa M. Hudson, Smita Bhatia, Jacqueline Casillas, Wendy Landier
Summary: Advancements in cancer therapy have improved survival rates for children, adolescents, and young adults with cancer, but they are still at risk for long-term therapy-related complications. Therefore, ongoing systematic follow-up and health counseling are crucial to early detection and intervention for potential late-onset complications, as well as promoting healthy lifestyles to reduce risks for common adult health problems. Healthcare providers play a key role in the ongoing care of childhood cancer survivors, beyond routine preventive care, health supervision, and guidance.
Review
Oncology
Brooke Cherven, Amani Sampson, Sharon L. Bober, Kristin Bingen, Natasha Frederick, David R. Freyer, Gwendolyn P. Quinn
Summary: This study summarizes the literature on sexual function among adolescent and young adult cancer survivors, finding that they experience a burden of sexual dysfunction and interventions are needed to support sexual health and psychosexual adjustment. Collaboration between organizations is necessary to advance assessment of sexual dysfunction and test interventions to improve sexual health among this population.
CA-A CANCER JOURNAL FOR CLINICIANS
(2021)
Article
Oncology
Austin R. Waters, Sara Bybee, Echo L. Warner, Heydon K. Kaddas, Erin E. Kent, Anne C. Kirchhoff
Summary: In the United States, the cost of cancer treatment can lead to severe financial burden for cancer survivors, which has been exacerbated by the economic impacts of the COVID-19 pandemic. LGBTQIA+ adolescent and young adult (AYA) survivors may face elevated financial burden due to their multiple intersecting identities. Research shows that LGBTQIA+ AYAs reported worse financial toxicity, perceived stress, anxiety, and depression compared to non-LGBTQIA+ AYAs.
FRONTIERS IN ONCOLOGY
(2022)
Article
Pediatrics
Glynnis A. McDonnell, Beth N. Peshkin, Tiffani A. DeMarco, Susan K. Peterson, Banu K. Arun, Susan Miesfeldt, Suzanne C. O'Neill, Katherine Schneider, Judy Garber, Claudine Isaacs, George Luta, Kenneth P. Tercyak
Summary: The long-term effects of disclosing maternal BRCA1 status on children's lifestyle behavior and quality of life were found to be minimal. However, children of BRCA1 mothers showed greater awareness and interest in genetic risk information. These families may benefit from support to promote open communication regarding genetic testing choices.
Review
Psychiatry
Nutthaporn Chandeying, Therdpong Thongseiratch
Summary: The study conducted a systematic review and meta-analysis of 13 randomized controlled trials of online interventions aimed at improving mental health among PAYA cancer survivors. Results showed that online interventions were more effective in improving sleep and psychological well-being, but had no significant effect on reducing symptoms of depression, anxiety, and pain.
FRONTIERS IN PSYCHIATRY
(2021)
Article
Psychology, Developmental
Lisa Lestishock, Sandra Nova, Jennifer Disabato
Summary: The purpose of this project was to improve engagement of adolescents and young adults, as well as parents/caregivers, in the process of transitioning from pediatric to adult care using clinical readiness assessment tools and the Institute for Healthcare Improvement Model. Results showed improved readiness assessment scores among participants, as well as some improvements in the implementation of transition policies at the public health center, although patient portal enrollment did not meet the expected goal.
JOURNAL OF ADOLESCENT HEALTH
(2021)
Article
Oncology
William C. Chen, Lauren Boreta, Steve E. Braunstein, Michael W. Rabow, Lawrence E. Kaplan, Jessica D. Tenenbaum, Olivier Morin, Catherine C. Park, Julian C. Hong
Summary: This study found that early diagnosis of mental health disorders with psychotropic medication treatment in cancer patients was associated with a higher risk of early mortality. Minority cancer patients were less likely to receive mental health diagnoses or treatment, indicating missed opportunities to identify and treat cancer-related mental health conditions.
Article
Public, Environmental & Occupational Health
Natalie Bradford, Christine Cashion, Lucy Holland, Rosyln Henney, Rick Walker
Summary: This study explored coping strategies of young people with cancer and found that seeking support, focusing on the present, distraction, and avoidance were commonly used during treatment, while planning for the future, avoiding re-traumatising situations, and meaning making were used following treatment.
PATIENT EDUCATION AND COUNSELING
(2022)
Article
Family Studies
Jasmine Fledderjohann, Jayne Erlam, Bran Knowles, Karen Broadhurst
Summary: A scoping literature review of 51 UK-based research articles on mental health of children and young people aged 6-17 years since 2004 revealed socioeconomic disadvantage, family instability, and parental distress as key factors. Emotional, conduct, and hyperactivity difficulties were commonly researched, while the needs of migrant, BAME, physically disabled, and LGBTQ children were underrepresented. The study highlighted a reliance on clinic-based convenience samples, urging for further research using inclusive, population-based samples and diverse methods.
CHILDREN AND YOUTH SERVICES REVIEW
(2021)
Article
Psychology, Developmental
Kerry Joan Gordon, Catherine E. Martin, Alison Kutywayo, Laura Ashleigh Cox, Pelisa Nongena, Saiqa Mullick
Summary: This study examines the prevalence and severity of depression among adolescents and young people accessing sexual and reproductive health services in South Africa. The findings highlight the importance of integrating mental health screening into programs for youth, as depression is associated with various risk factors.
JOURNAL OF ADOLESCENT HEALTH
(2023)
Review
Sport Sciences
Ryan Benoy, Cesar Ramirez, Mary Hitchcock, Claudia Reardon
Summary: The popularity of cannabis has led to its use among young athletes, but scientific evidence suggests that it has negative effects on athletic performance and overall health.
SPORTS HEALTH-A MULTIDISCIPLINARY APPROACH
(2023)
Article
Oncology
Ursula M. Sansom-Daly, Claire E. Wakefield, Christina Signorelli, Mark W. Donoghoe, Antoinette Anazodo, Susan M. Sawyer, Michael Osborn, Rosalie Viney, Nicholas Daniell, Kate Faasse, Richard J. Cohn
Summary: Adolescent and young adult cancer survivors face significant physical/mental health late effects following cancer treatment, which can be minimized through tailored healthcare use. A cross-sectional study found that cancer survivors reported greater use of medical and mental health services, particularly females, those diagnosed with brain/solid tumors, and those more recently finished treatment. Further research is needed to determine if the healthcare accessed by these survivors is appropriate and meets their needs.
Article
Oncology
Echo L. Warner, Austin R. Waters, Kristin G. Cloyes, Lee Ellington, Anne C. Kirchhoff
Summary: This study aimed to explore young adult cancer caregivers' exposure to cancer misinformation on social media. Caregivers evaluate information quality through crosschecking online sources and consulting trusted individuals, and may feel uncertain in their caregiving ability when confronted with misinformation. Therefore, promoting digital literacy to combat cancer misinformation on social media could enhance young cancer caregivers' access to credible information.
Article
Public, Environmental & Occupational Health
Miriam Mutambudzi, Claire Niedwiedz, Ewan Beaton Macdonald, Alastair Leyland, Frances Mair, Jana Anderson, Carlos Celis-Morales, John Cleland, John Forbes, Jason Gill, Claire Hastie, Frederick Ho, Bhautesh Jani, Daniel F. Mackay, Barbara Nicholl, Catherine O'Donnell, Naveed Sattar, Paul Welsh, Jill P. Pell, Srinivasa Vittal Katikireddi, Evangelia Demou
Summary: The study revealed that healthcare workers, social and education workers, and other essential workers were at a higher risk of severe COVID-19 compared to non-essential workers. Within different occupational groups, medical support staff, social care workers, and transport workers had the highest risk. Non-white essential workers had the highest risk of severe COVID-19.
OCCUPATIONAL AND ENVIRONMENTAL MEDICINE
(2021)
Editorial Material
Oncology
Anne Kirchhoff, Salene Jones
JNCI-JOURNAL OF THE NATIONAL CANCER INSTITUTE
(2021)
Correction
Geriatrics & Gerontology
Maria T. Brown, Miriam Mutambudzi
JOURNALS OF GERONTOLOGY SERIES B-PSYCHOLOGICAL SCIENCES AND SOCIAL SCIENCES
(2022)
Article
Environmental Sciences
Echo L. Warner, Andrew R. Wilson, Jessica G. Rainbow, Lee Ellington, Anne C. Kirchhoff
Summary: Young adults in the United States are increasingly taking on caregiving roles, with cancer caregivers often experiencing a greater burden than others, leading to employment challenges. Female cancer caregivers, those with lower education, and those earning below USD 20,000 annually may be at greater risk for employment detriments.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
(2021)
Article
Gerontology
Miriam Mutambudzi, Kene Henkens
Summary: Both prevalent and newly diagnosed arthritis were found to be associated with increased odds of perceived work stress and high physical demands. Particularly, manual workers with newly diagnosed arthritis showed a significant increase in odds of physical demands. Arthritis in three body extremities was differentially associated with increased odds of work stress and physical demands in manual and non-manual workers.
JOURNAL OF AGING AND HEALTH
(2022)
Article
Psychology, Social
Echo L. as Warner, Andrew Wilson, Lee Ellington, Ye Sun, Kristin G. Cloyes, Austin R. Waters, Taylor Nelson, Anne C. Kirchhoff
Summary: Studying the association between social media platforms and cancer content with social support in responses provides insights for intervention development. Emphasizing the suitability of different social media platforms for specific support seeking behaviors is crucial for psychosocial providers.
JOURNAL OF PSYCHOSOCIAL ONCOLOGY
(2022)
Article
Public, Environmental & Occupational Health
Miriam Mutambudzi, Paul Flowers, Evangelia Demou
Summary: The study found that job insecurity and chronic health conditions have different effects on retirement decisions among older workers in the UK and the USA. Job insecurity was associated with retirement in the UK cohort, while chronic health conditions had a more significant impact on retirement factors in the UK cohort compared to the US cohort.
EUROPEAN JOURNAL OF PUBLIC HEALTH
(2022)
Article
Oncology
Renata Abrahao, Elysia M. Alvarez, Austin R. Waters, Crystal C. Romero, Melissa M. Gosdin, Hiba Naz, Brad H. Pollock, Anne C. Kirchhoff, Theresa H. M. Keegan
Summary: Efforts to increase participation of adolescents and young adults (AYAs) in cancer clinical trials (CTs) have been met with low enrollment rates. Barriers identified by oncologists include lack of available CTs, strict eligibility criteria, lack of awareness of open CTs, and poor communication between pediatric and adult oncologists. AYAs report financial and psychosocial barriers, lack of understanding of CTs, and their benefits as obstacles to enrollment. Improved availability of CTs, increased awareness, better communication, and comprehensive support are seen as key strategies to enhance AYA enrollment in CTs.
PEDIATRIC BLOOD & CANCER
(2022)
Article
Geriatrics & Gerontology
Maria T. Brown, Miriam Mutambudzi
Summary: This study examined the associations between psychiatric history and cognitive functioning in a sample of 20,155 Health and Retirement Study participants aged 65 or older. The results showed that a history of psychiatric problems was significantly related to lower cognition scores and faster rates of decline. Hispanic and Black participants had lower cognition scores at age 75 and steeper rates of decline compared to White females. The protective effects of being female were erased by the interaction between race/ethnicity and sex.
AGING & MENTAL HEALTH
(2023)
Article
Oncology
Paul C. Nathan, I-Chan Huang, Yan Chen, Tara O. Henderson, Elyse R. Park, Anne C. Kirchhoff, Leslie L. Robison, Kevin Krull, Wendy Leisenring, Gregory T. Armstrong, Rena M. Conti, Yutaka Yasui, K. Robin Yabroff
Summary: This study aimed to estimate the prevalence of financial hardship among adult survivors of childhood cancer compared with siblings and identify the correlates of hardship. The results showed that survivors were more likely to experience financial hardship compared to siblings.
JOURNAL OF CLINICAL ONCOLOGY
(2023)
Article
Oncology
Morgan M. Millar, Kimberly A. Herget, Blessing Ofori-Atta, Rachel R. Codden, Sandra L. Edwards, Marjorie E. Carter, Brad Belnap, Anne C. Kirchhoff, Carol Sweeney
Summary: This study surveyed Utah cancer survivors diagnosed between 2012 and 2019 to evaluate their survivorship experiences and analyze disparities among different demographic subgroups. The results showed that most respondents reported their pain was under control, but a significant proportion experienced physical, mental, or emotional limitations. Additionally, age and education level were found to be associated with levels of physical activity and the likelihood of receiving a survivorship care plan.
CANCER CAUSES & CONTROL
(2023)
Article
Oncology
Judy Y. Ou, Natalie Bennion, Kellee Parker, Douglas Fair, Heidi A. Hanson, Deanna Kepka, Echo L. Warner, Joemy M. Ramsay, Heydon K. Kaddas, Anne C. Kirchhoff
Summary: Subsequent malignant neoplasms (SMN) after an original cancer diagnosis contribute to premature mortality among young cancer survivors. This study identifies demographic and clinical risk factors for HPV-associated SMNs (HPV-SMN) among adolescent and young adult (AYA) cancer survivors. The results show that AYA survivors have increased risk for any HPV-SMN and oropharyngeal-SMN, while the risk for cervical-SMN is generally lower but higher among Hispanic AYA survivors. The use of chemotherapy and radiation is associated with HPV-SMN among survivors with first HPV-related cancers.
CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION
(2023)
Article
Oncology
Susan K. Parsons, Theresa H. M. Keegan, Anne C. Kirchhoff, Helen M. Parsons, K. Robin Yabroff, Simon J. Davies
Summary: The purpose of this report commissioned by Teen Cancer America was to estimate the total costs incurred by adolescent and young adults (AYAs) after cancer diagnosis in the United States. The incidence of cancer and relative survival rates were estimated, and cost domains including health system, productivity, and well-being costs were examined. The results showed that the economic and human costs of cancer in AYAs are substantial, with the majority of costs borne by the survivors themselves.
JOURNAL OF CLINICAL ONCOLOGY
(2023)
Article
Oncology
Justin M. Barnes, Anne C. Kirchhoff, K. Robin Yabroff, Fumiko Chino
Summary: Short-term limited duration insurance plans may not adequately protect cancer patients and can disrupt insurance markets. A study analyzed data from 11 states and found that states prohibiting these plans had an increase in early-stage cancer diagnoses compared to states that did not regulate them.
JNCI CANCER SPECTRUM
(2023)