Article
Public, Environmental & Occupational Health
Danielle Barry-Hickey, Crystal Aultman, Gerilyn Danischewsky, Christine Occhipinti, Gabriela Lima de Melo Ghisi
Summary: This study aimed to determine the information needs of women with a history of breast cancer attending a cardiovascular rehabilitation (CR) program. A mixed-methods approach was used, including an online survey and virtual focus group sessions. The findings revealed that participants had the highest information needs regarding the presence and recurrence of cancer, prevention of treatment side effects, and the impact of the illness on their future. These findings can inform personalized care for these patients to support their adherence to the program.
PATIENT EDUCATION AND COUNSELING
(2023)
Article
Medicine, General & Internal
Lisa Crowe, Morven Brown, Andy Bojke, Rona Bojke, Alastair Greystoke, Jan Lecouturier, James Richardson, Mary Wells, Adam Todd, Linda Sharp
Summary: The TARGET study aims to explore the needs of patients treated with biological and precision therapies in order to develop an unmet needs assessment instrument. The study includes systematic review, qualitative interviews, and a large-scale patient survey, covering various types of cancer. The research findings will be disseminated in multiple formats to reach different audiences.
Article
Medicine, General & Internal
Vita Christie, MacKenzie Rice, Jocelyn Dracakis, Deb Green, Janaki Amin, Karen Littlejohn, Christopher Pyke, Debbie McCowen, Kylie Gwynne
Summary: Breast cancer is the most commonly diagnosed cancer in Australian women, and the mortality rate is higher among Aboriginal women. This study aims to improve breast cancer outcomes for Aboriginal women using co-design methods.
Article
Health Care Sciences & Services
Elizabeth J. Adams, David Tallman, Marcy L. Haynam, Larissa Nekhlyudov, Maryam B. Lustberg
Summary: This study presents a unique methodology to analyze the psychosocial experiences of survivors of gynecological cancer using large amounts of data from internet-based platforms. The study found that survivors frequently discussed the role of friends and family in care, fatigue, the effect of cancer on interpersonal relationships, and health insurance status. The findings contribute valuable insights into the experiences of patients and can be applied to other patient populations.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2022)
Article
Medicine, General & Internal
Jing Liu, Sharyn Hunter, Dongmei Guo, Qin Lin, Jiemin Zhu, Regina Lai-Tong Lee, Sally Wai-Chi Chan
Summary: This study aims to provide an in-depth understanding of decision-making about mastectomy among Chinese women with breast cancer. It uses a mixed-methods design, including retrospective analysis, a cross-sectional survey, and individual interviews. The findings of this study will contribute to the understanding of decision-making processes among breast cancer patients.
Article
Health Care Sciences & Services
Patrick Cheong-Iao Pang, Megan Munsie, Shanton Chang, Claire Tanner, Christine Walker
Summary: This study focuses on redesigning a website in Australia to provide reliable information about stem cell research and combat misinformation. The participatory design approach was used to identify user needs and rebuild the website accordingly. The results show significant improvements in user engagement and performance with the redesigned website.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2023)
Article
Obstetrics & Gynecology
Sophie Peloquin, Juan A. Garcia-Velasco, Christophe Blockeel, Laura Rienzi, Guy de Mesmaeker, Patrice Lazure, Fabiola Beligotti, Suzanne Murray
Summary: This study used mixed methods to investigate the educational needs of fertility healthcare professionals in assisted reproductive technologies (ART). Findings revealed knowledge gaps, skills gaps, and attitude issues in areas such as ovarian stimulation, embryo culture, embryo assessment, luteal phase support, and communication with patients. The study calls for the development of educational programmes and interprofessional training to improve care for patients with fertility issues.
REPRODUCTIVE BIOMEDICINE ONLINE
(2021)
Article
Oncology
Verena Ehrbar, Larissa Scherzinger, Corinne Urech, Christoph Rochlitz, Sibil Tschudin, Gideon Sartorius
Summary: The study found that cancer patients value counseling on fertility preservation highly and the majority expressed willingness to use an additional support tool designed for male cancer patients. This tool should include information on fertility preservation, sexuality, virility, consequences for partners, and experience reports from other patients. Professional, individualized information and a well-organized fertility preservation process improve the subjective experience of cancer patients.
UROLOGIC ONCOLOGY-SEMINARS AND ORIGINAL INVESTIGATIONS
(2022)
Article
Medicine, General & Internal
Andrea Zueger, Sabine Fischbeck, Martin Weber, Sandra Mai
Summary: This study aimed to revise the 37-item Advanced Cancer Patients' Distress Scale (ACPDS) by evaluating its content, comprehensibility, applicability, and relevance to enhance its suitability for patients with advanced cancer in palliative care. The revised 17-item version of the ACPDS seems to be appropriate for the needs of patients in a palliative care setting.
Article
Psychology, Social
Adeola Bamgboje-Ayodele, Janelle V. Levesque, Martha Gerges, Afaf Girgis
Summary: This study explored the emotional impact, unmet needs, and challenges experienced by male caregivers when caring for women with breast cancer. Findings indicate that male caregivers face diverse challenges and require psychological support and practical information to help them fulfill their caregiving responsibilities.
JOURNAL OF PSYCHOSOCIAL ONCOLOGY
(2021)
Article
Nursing
Soraia Teles, Constanca Paul, Milaydis Sosa Napolskij, Ana Ferreira
Summary: This study examines how informal caregivers of persons with dementia perceive their training needs and preferences in the context of online training and support interventions. The findings show that caregivers prioritize training in care interactions and value features such as plain language and easy communication with professionals. These results support the importance of delivering comprehensive interventions that address the multiple needs of caregivers.
JOURNAL OF CLINICAL NURSING
(2022)
Article
Oncology
Ginny Jacobs, Deborah A. Boyle, Hashem B. El-Serag, Robert J. Lewandowski, Stacey M. Stein, Patrice Lazure, Pam McFadden
Summary: This study aims to understand the challenges in hepatocellular carcinoma (HCC) care and provide educational opportunities for healthcare providers. The findings reveal issues in screening, diagnosing, and treating HCC, including applying appropriate guidelines, making decisions on diagnostic imaging and biopsy, using existing HCC guidelines, managing risk/benefit ratios of different treatment regimens, sequencing therapies, and educating patients about HCC.
Article
Medicine, General & Internal
Renato A. Errea, Patricia J. Garcia, Lydia E. Pace, Jerome T. Galea, Molly F. Franke
Summary: This study investigated the effectiveness of biopsy and treatment in women with high-risk mammography results in a national telemammography program and explored their experiences during this process. The results showed that not all women received timely biopsy and treatment, and factors such as living in remote areas, administrative factors, and misconceptions about breast cancer affected the continuity of breast cancer care. Therefore, it is necessary to strengthen breast cancer care capacity, improve referral pathways, provide financial support for travel expenses, and enhance patient education.
Article
Medicine, General & Internal
Anwen Williams, Hayley Anne Hutchings, Dean Anthony Harris, Martyn Evans, Deena Harji
Summary: This study aims to develop a validated patient decision aid (PtDA) to assist patients considering radical pelvic exenteration for locally advanced and locally recurrent rectal cancer. The study is designed in line with international patient decision aid standards and consists of four stages: development of the PtDA, assessment of its content and face validity, assessment of its feasibility and efficacy, and identification of barriers and facilitators to its use in the outpatient setting.
Article
Public, Environmental & Occupational Health
Svenja Hummel, Ina Michelsen, Ali Zafar, Steffen Moritz, Charles Benoy, Cedric Lemogne, Rosa Almeida, Raquel Losada, Oscar Ribeiro, Vincenza Frisardi, Ilaria Tarricone, Silvia Ferrari, Frieder Dechent, Christian G. Huber, Steffi Weidt, Gwendolyn Mayer, Jobst-Hendrik Schultz
Summary: The COVID-19 pandemic has had a severe impact on the lives and work conditions of Europeans, especially healthcare professionals. This study aimed to examine the job-related stressors and coping strategies of physicians, nurses, and nonmedical staff during the pandemic. The results revealed the most significant stressors and common coping strategies for healthcare professionals in two periods. Additionally, the study identified the psychosocial stressors and unmet needs of individuals.
JMIR PUBLIC HEALTH AND SURVEILLANCE
(2023)
Letter
Critical Care Medicine
K. C. Baran, I. G. van Munster, A. Meij-de Vries, K. L. M. Gardien, T. van Trier, A. Pijpe
Article
Critical Care Medicine
Inge Spronk, Nancy E. E. Van Loey, Cornelis H. van der Vlies, Juanita A. Haagsma, Suzanne Polinder, Margriet E. van Baar
Summary: This study found that a significant portion of burn patients experienced activity impairment and work productivity loss even 5-7 years post-injury, particularly those with severe burns. Factors such as burn-related work problems and lower mood were associated with these impairments.
JOURNAL OF BURN CARE & RESEARCH
(2022)
Article
Immunology
Patrick P. G. Mulder, Marcel Vlig, Bouke K. H. L. Boekema, Matthea M. Stoop, Anouk Pijpe, Paul P. M. van Zuijlen, Evelien de Jong, Bram van Cranenbroek, Irma Joosten, Hans J. P. M. Koenen, Magda M. W. Ulrich
Summary: Severe burn injury induces persistent systemic inflammation marked by continuous release of immature neutrophils and shifts in T cell composition toward a more pro-inflammatory phenotype.
FRONTIERS IN IMMUNOLOGY
(2021)
Article
Critical Care Medicine
K. J. Zheng, E. Middelkoop, M. Stoop, P. P. M. van Zuijlen, A. Pijpe
Summary: This study assessed the validity of Laser Speckle Contrast Imaging (LSCI) for measuring burn wound healing potential (HP) in comparison to the reference standard of Laser Doppler Imaging (LDI). The results showed that LSCI was able to accurately discriminate between burn wounds with different healing potentials.
Article
Oncology
Tom I. Bootsma, Melanie P. J. Schellekens, Rosalie A. M. van Woezik, Jenny Slatman, Marije L. van der Lee
Summary: This study examines how patients respond to chronic cancer-related fatigue, identifying five interrelated themes of responses and emphasizing the importance of developing new habits and positive beliefs in the coping process. This experiential knowledge on helpful responses can be used to inform patients and improve self-efficacy.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Critical Care Medicine
Eva E. van Zoonen, Anouk Pijpe, Margriet E. van Baar, Marianne K. Nieuwenhuis, Carine H. M. van Schie, Nicole Trommel, Gera Hartlief, Marleen G. Beemsterboer-Haagsman, Annebeth Meij-de Vries
Summary: This study aimed to identify the risk factors and mechanisms of severe burn injury in children under 5 years of age in the Netherlands. The results showed that boys around 18 months of age who pulled down a cup of hot tea while in an upright position were overrepresented. Children from families with more children, migration background, living in urbanized neighborhoods, or low socioeconomic status were at increased risk for severe burn injury.
Review
Surgery
Jaco Suijizer, Kang Jing Zheng, Anoulz Pijpe, Farha Nasroe, Annebeth Meij-de Vries
Summary: The aim of this review was to assess whether skin-sparing debridement (SSd) is noninferior to en bloc debridement (EBd) regarding general outcomes. Results showed that patients treated with SSd did not have increased mortality rate, length of stay (LOS), or complication rate compared to those treated with EBd. However, the current available evidence is of insufficient quality to conclude whether SSd is noninferior to EBd for all assessed outcomes.
JOURNAL OF SURGICAL RESEARCH
(2021)
Article
Cell Biology
Inge Spronk, Anniek Stortelers, Cornelis H. van der Vlies, Paul P. M. van Zuijlen, Anouk Pijpe
Summary: Long-term scar quality in children with burns 5-7 years after injury is evaluated, showing that most children’s scars differ from normal skin, especially in color. Children with severe burns have significantly poorer scar quality compared to those with mild/intermediate burns, with the number of surgeries predicting scar quality. Parents tend to rate scars higher than observers, indicating the importance of counseling children and parents on scar expectations and prevention strategies.
WOUND REPAIR AND REGENERATION
(2021)
Article
Public, Environmental & Occupational Health
Tom Bootsma, Melanie P. J. Schellekens, Rosalie A. M. van Woezik, Marije L. van der Lee, Jenny Slatman
Summary: This article presents a phenomenological study on the embodied experiences of patients with Chronic Cancer-Related Fatigue (CCRF), aiming to better understand this complex phenomenon. Through individual interviews with 25 participants, it explores the themes of worn out, diminishment of one's 'I can', invisibility, and regaining one's 'I can' in the post-cancer experience. The results suggest the importance of considering the role of the body and limitations of one's 'I can' in clinical practice and provide insights for personalized and optimized treatment of CCRF.
PSYCHOLOGY & HEALTH
(2023)
Letter
Oncology
Deborah van de Wal, Silvie H. M. Janssen, Daniel J. van der Meer, Carla C. P. Vlooswijk, Danielle C. Roos, Tom I. Bootsma, Renske Fles, Vivian W. G. Burgers, Olga Husson
Article
Oncology
Lieske H. Schrijver, Thea M. Mooij, Anouk Pijpe, Gabe S. Sonke, Marian J. E. Mourits, Nadine Andrieu, Antonis C. Antoniou, Douglas F. Easton, Christoph Engel, David Goldgar, Esther M. John, Karin Kast, Roger L. Milne, Hakan Olsson, Kelly-Anne Phillips, Mary Beth Terry, John L. Hopper, Flora E. van Leeuwen, Matti A. Rookus
Summary: In BRCA1 and BRCA2 mutation carriers, the use of combined-type oral contraceptive preparation (COCP) initially increases the risk of breast, ovarian, and endometrial cancer, but in the long term, it significantly decreases the lifetime cancer risk. Risk-reducing bilateral salpingo-oophorectomy and menopausal hormone therapy counteract the long-term benefits of COCP use.
JNCI-JOURNAL OF THE NATIONAL CANCER INSTITUTE
(2022)
Review
Critical Care Medicine
M. L. Dijkerman, M. L. Breederveld-Walters, A. Pijpe, R. S. Breederveld
Summary: This study aims to develop a treatment guideline for pregnant patients with burns, in order to optimize the treatment of both the mother and the fetus. A systematic review was conducted, revealing that the clinical outcomes of pregnant burn patients seemed similar to non-pregnant patients, although the mortality rate might be higher in pregnant individuals. Predictive factors for maternal and fetal mortality include total burned surface area and inhalation injury. A comprehensive guideline on the management of pregnant burn patients is provided, and international burn organizations and guideline committees are encouraged to use and evaluate this guideline.
Article
Critical Care Medicine
Paul P. M. van Zuijlen, H. Ibrahim Korkmaz, Vivek M. Sheraton, Tsjitske M. Haanstra, Anouk Pijpe, Annebeth de Vries, Cornelis H. van der Vlies, Eelke Bosma, Evelien de Jong, Esther Middelkoop, Fred J. Vermolen, Peter M. A. Sloot
Summary: Healthcare is undergoing a technological transformation, and professionals in burn care need to adapt to these changes with new thinking and strategies. Complexity science provides direction for the future of burn care by studying the interactions between different components and their environment, helping to manage complex situations.
JOURNAL OF BURN CARE & RESEARCH
(2022)
Article
Dermatology
H. Ibrahim Korkmaz, Frank B. Niessen, Anouk Pijpe, Vivek M. Sheraton, Fred J. Vermolen, Paul Aj Krijnen, Hans Wm Niessen, Peter Ma Sloot, Esther Middelkoop, Susan Gibbs, Paul Pm van Zuijlen
Summary: This article discusses the complexity of scar formation after burn injury and introduces the potential of complexity science in this field. Current understanding of scar formation is limited to small parts of the process, hindering the comprehension of underlying mechanisms and system behavior. Complexity science can integrate relevant biological mechanisms and data, providing a better understanding of the complexity of scar formation as a whole, and advancing research and treatment approaches.
JOURNAL OF WOUND CARE
(2022)
Article
Surgery
Catherine M. Legemate, Kelly A. A. Kwa, Harold Goei, Anouk Pijpe, Esther Middelkoop, Paul P. M. van Zuijlen, Gerard I. J. M. Beerthuizen, Marianne K. Nieuwenhuis, Margriet E. van Baar, Cornelis H. van der Vlies
Summary: Hydrosurgical debridement showed better scar quality and pliability compared to conventional debridement one year post-surgery, likely due to enhanced histological preservation of dermis. Complication rates did not differ between the two treatments.
BRITISH JOURNAL OF SURGERY
(2022)
