Article
Oncology
David Hui, Allison De La Rosa, Joseph Chen, Marvin Delgado Guay, Yvonne Heung, Seyedeh Dibaj, Diane Liu, Eduardo Bruera
Summary: The study compared the state of palliative care (PC) education and research between National Cancer Institute (NCI)-designated and nondesignated cancer centers in the US. Results showed that NCI-designated centers had more developed PC education and research programs compared to nondesignated centers. Progress in PC education and research has been slow and suboptimal overall, with few significant improvements observed between 2009 and 2018.
Article
Oncology
Michelle Doose, Michelle A. Mollica, Deanna J. Attai, Shelley Fuld Nasso, Joanne W. Elena, Paul B. Jacobsen, Emily S. Tonorezos, Larissa Nekhlyudov
Summary: This study examined survey questions used to identify and describe cancer survivors in national cross-sectional studies in the US over the past 15 years. It found that there is no standard method for assessing self-reported cancer history, which limits the ability to distinguish important subgroups of survivors. Future surveys capturing detailed data on cancer types, stages/subtypes, metastatic/recurrent status, and treatments received could help fill important gaps in cancer survivorship research and clinical care.
Review
Education, Scientific Disciplines
Monica Lopez-Garcia, Leticia Rubio, Stella Martin-de-las-Heras, Juan Suarez, Maria D. Perez-Carceles, Jaime Martin-Martin
Summary: This study evaluates the psychometric properties of knowledge and skills questionnaires used in palliative care and recommends PEACE-Q and PCKT as the preferred choice for assessing palliative care knowledge and skills in physicians.
Article
Geriatrics & Gerontology
Fiona Runacres, Peter Poon, Scott King, Julie Lustig, Anna Ugalde
Summary: Geriatricians generally believe that providing palliative care is important for patients, but there is potential for improved collaboration with specialist palliative care services. An evidence base is needed to determine which geriatric patients benefit most from specialist palliative care services, in order to improve resource allocation and collaborative practice in palliative care delivery.
Article
Education, Scientific Disciplines
G. Ottoboni, I. Chirico, P. Povolna, V. Dostalova, I. Holmerova, N. Janssen, F. Dassen, M. de Vugt, Ma. C. Sanchez-Gomez, F. Garcia-Penalvo, M. A. Franco-Martin, R. Chattat
Summary: Psychosocial interventions in dementia care can enhance the quality of life for patients and caregivers, but face challenges in systematic implementation. This study evaluates the inclusion of teaching activities on psychosocial care of dementia in European higher education programs, highlighting the need for more systematic and comprehensive approaches. International higher education systems are urged to consider expanding psychosocial care topics to better prepare professionals in responding to the needs of dementia patients and their caregivers.
NURSE EDUCATION TODAY
(2021)
Article
Economics
Derya Yakar, Yfke P. Ongena, Thomas C. Kwee, Marieke Haan
Summary: This study investigated the general population's view on artificial intelligence (AI) in medicine, with a focus on radiology, robotic surgery, and dermatology. The results showed that the overall trust in AI was higher in dermatology compared to radiology and surgery. Higher education, male gender, employment or student status, Western background, and no recent hospitalization were associated with higher levels of trust in AI. Overall, the general population is more distrustful of AI in medicine.
Review
Medicine, General & Internal
Caleb Hanson Gage, Charnelle Stander, Liz Gwyther, Willem Stassen
Summary: This study aimed to map the existing literature on emergency medical services (EMS) and palliative care by answering the question of what literature exists in this field. Through literature review and analysis, it was found that EMS have a role in out-of-hospital palliative care, but there are also many challenges that need to be addressed. Recommendations and solutions have been proposed to overcome these challenges.
Article
Health Care Sciences & Services
Vinicio dos Santos Barros, Daniela Bassi-Dibai, Andre Pontes-Silva, Laila Silva Linhares Barros, Adriana Sousa Rego, Cid Andre Fidelis-de-Paula-Gomes, Almir Vieira Dibai-Filho
Summary: The study aimed to translate, adapt, and validate the QCQ-PC into Brazilian Portuguese for cancer patients in palliative care. The short version of SF-QCQ-PC was found to have acceptable psychometric properties for use in Brazil, with good reliability and internal consistency.
BMC PALLIATIVE CARE
(2021)
Review
Medicine, General & Internal
Caleb Hanson Gage, Charnelle Stander, Liz Gwyther, Willem Stassen
Summary: The aim of this scoping review is to map existing literature concerning EMS and palliative care by identifying literature types, extracting key findings, and noting limitations using descriptive analysis. It seeks to explore the relationship between EMS and palliative care through collecting and analyzing relevant literature, and identify their integration points and limitations.
Article
Health Care Sciences & Services
Jason W. Boland, Monisha Kabir, Edward G. Spilg, Colleen Webber, Shirley H. Bush, Fliss Murtagh, Peter G. Lawlor
Summary: During the COVID-19 pandemic, palliative medicine physicians in the UK and Ireland are at higher risk of burnout. Factors influencing burnout include working hours, level of clinical support, and depressive symptoms. Enhanced organizational and colleague support is crucial in managing the current and future pandemics.
PALLIATIVE MEDICINE
(2023)
Article
Medicine, General & Internal
Luke J. Burchill, Aneta Kotevski, Daniel Duke, Jeanette E. Ward, Megan Prictor, Karen E. Lamb, Michelle Kennedy
Summary: The survey shows that Indigenous health research in Australia is primarily led and conducted by non-Indigenous individuals and organizations. There is a need for reorientation and investment to give control of the framing, design, and conduct of Indigenous health research to Indigenous people.
MEDICAL JOURNAL OF AUSTRALIA
(2023)
Article
Rehabilitation
Gaetano J. Forte, Margaret Langelier, Shen Wang, Timothy M. Dall, Ryan L. Reynolds, Ritashree Chakrabarti, John Whyte, Nethra Sridhara Ankam, Thiru M. Annaswamy, Michael Fredericson, Nitin B. Jain, Danielle Perret Karimi, David C. Morgenroth, Chloe Slocum, Eric Wisotzky
Summary: This study aimed to describe the current physiatrist workforce in the United States through an online survey of board-certified physiatrists. Different practice patterns were identified, with variations in primary practice setting and utilization of healthcare staff noted. The findings can inform policy discussions and further research on the impact of trends on physiatrists and physiatry practice in the future.
AMERICAN JOURNAL OF PHYSICAL MEDICINE & REHABILITATION
(2021)
Article
Nursing
Gursharan K. Singh, Caleb Ferguson, Patricia M. Davidson, Phillip J. Newton
Summary: The study found that most cardiovascular nurses and physicians are comfortable providing end of life care for heart failure patients, but referrals to palliative care in the later stages of the disease persist. The service name 'supportive care' was more favorable than 'palliative care'.
CONTEMPORARY NURSE
(2021)
Article
Health Care Sciences & Services
Alyson Gundry, Norah Elvidge, Leigh Donovan, Kristy Bunker, Anthony Herbert, Natalie Bradford
Summary: This study evaluated a Bereavement Support Program and explored the experiences and perspectives of both families and service providers. Most interactions and program components were reported helpful by parents and service providers. Bereavement care is of paramount importance and can offer significant and beneficial resources, especially for families in regional and rural locations.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Respiratory System
Malgorzata Krajnik, Nilay Hepgul, Andrew Wilcock, Ewa Jassem, Tomasz Bandurski, Silvia Tanzi, Steffen T. Simon, Irene J. Higginson, Caroline J. Jolley
Summary: Respiratory medicine and palliative care physicians have different approaches in managing chronic breathlessness, with PC physicians more likely to use opioids and benzodiazepines, while RM physicians focus more on exercise training. Physicians who have read non-cancer palliative care guidelines tend to adopt certain treatment methods more frequently.
BMC PULMONARY MEDICINE
(2022)
Article
Oncology
Melanie Powis, Rinku Sutradhar, Aditi Patrikar, Matthew Cheung, Inna Gong, Abi Vijenthira, Lisa K. Hicks, Drew Wilton, Monika K. Krzyzanowska, Simron Singh
Summary: A population-based study in Ontario, Canada found that cancer patients who were recent or nonrecent immigrants and marginalized individuals had lower rates of COVID-19 vaccination. This difference is likely due to the interplay between systemic barriers to access and cultural or social influences.
JNCI-JOURNAL OF THE NATIONAL CANCER INSTITUTE
(2023)
Article
Oncology
Simon Cook, Cosmin Munteanu, Efthymios Papadopoulos, Howard Abrams, Jennifer N. Stinson, Eric Pitters, Douglas Stephens, Margaret Lumchick, Urban Emmenegger, Rama Koneru, Janet Papadakos, Armin Shahrokni, Sara Durbano, Ines Menjak, Rajin Mehta, Kristen Haase, Raymond Jang, Monika K. Krzyzanowska, Craig Dale, Jennifer Jones, Manon Lemonde, Shabbir Alibhai, Martine Puts
Summary: Researchers developed a self-reported electronic geriatric assessment tool called CHAMP to improve feasibility and accuracy of assessment and treatment decision making for older adults with cancer. The tool was tested and approved by both older adults and oncology clinicians. The CHAMP tool includes questions and recommendations in various health domains.
JOURNAL OF GERIATRIC ONCOLOGY
(2023)
Article
Oncology
Milothy Parthipan, Gregory Feng, Nelly Toledano, Valentina Donison, Henriette Breunis, Abirami Sudharshan, Urban Emmenegger, Antonio Finelli, Padraig Warde, Enrique Soto-Perez-de-Celis, Monika Krzyzanowska, Andrew Matthew, Hance Clarke, Daniel Santa Mina, Shabbir M. H. Alibhai, Martine Puts
Summary: Studying the symptom experiences of older men with metastatic prostate cancer during treatment can help identify unmet supportive care needs and improve patient wellbeing. Previous research has focused on the psychological experience rather than the overall symptom experience. The objective of this study was to understand the lived experience of symptoms and supportive care needs in older men undergoing treatment for metastatic prostate cancer.
JOURNAL OF GERIATRIC ONCOLOGY
(2023)
Article
Oncology
Martine Puts, Naser Alqurini, Fay Strohschein, Rama Koneru, Ewa Szumacher, Caroline Mariano, Johanne Monette, Tina Hsu, Sarah Brennenstuhl, Bianca McLean, Aria Wills, Arielle Berger, Eitan Amir, Lindy Romanovsky, Anson Li, Rajin Mehta, Monika Krzyzanowska, Christine Elser, Raymond Jang, Anca Prica, Doreen Wan-Chow-Wah, Eric Pitters, Urban Emmenegger, Ines B. Menjak, Simon Bergman, Manon Lemonde, Henriette Breunis, Francois Beland, Shabbir M. H. Alibhai
Summary: The American Society of Clinical Oncology recommends geriatric assessment and management for older adults with cancer considering chemotherapy, but there is limited evidence on its impact on quality of life.
JOURNAL OF CLINICAL ONCOLOGY
(2023)
Article
Health Care Sciences & Services
Camilla Zimmermann, Mary K. Buss, Michael W. Rabow, Breffni Hannon, David Hui
Summary: Outpatient palliative care provides timely symptom management, psychosocial care, and care planning. Stand-alone and embedded outpatient palliative care clinics are both options for cancer centers. Different groups suggest different clinic models and stress the importance of future research. Factors like cancer center size, team composition, space availability, and financial considerations influence the decision-making process. Documentation of referral and patient outcomes is needed as outpatient clinic models evolve.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Review
Health Care Sciences & Services
Daniel Z. Buchman, Samantha Lo, Philip Ding, Naheed Dosani, Rouhi Fazelzad, Andrea D. Furlan, Sarina R. Isenberg, Sheryl Spithoff, Alissa Tedesco, Camilla Zimmermann, Jenny Lau
Summary: This scoping review explores the impact of communicable disease epidemics and pandemics on palliative care for people who use drugs. The findings indicate limited knowledge about palliative care for this population during epidemics and pandemics other than HIV/AIDS. Further research is needed to provide optimal palliative care for people who use drugs during future epidemics and pandemics, along with suggestions for better preparedness.
PALLIATIVE MEDICINE
(2023)
Review
Health Care Sciences & Services
Mohamed Abdelaal, Jonathan Avery, Ronald Chow, Nasreen Saleem, Rouhi Fazelzad, Pamela Mosher, Breffni Hannon, Camilla Zimmermann, Ahmed Al-Awamer
Summary: This scoping review examined the palliative and end-of-life care needs and experiences of adolescents and young adults with advanced life-limiting illnesses. The findings highlight the differences in palliative care experiences and knowledge gaps for this underserved patient population, emphasizing the need for further research and tailored palliative care programs.
PALLIATIVE MEDICINE
(2023)
Article
Oncology
Ronald Chow, Jean J. Mathews, Emily YiQin Cheng, Samantha Lo, Joanne Wong, Sorayya Alam, Breffni Hannon, Gary Rodin, Rinat Nissim, Sarah Hales, Dio Kavalieratos, Kieran L. Quinn, George Tomlinson, Camilla Zimmermann
Summary: This study examined the effectiveness of interventions offering support for caregivers of patients with advanced cancer on caregiver quality of life (QOL) and mental health outcomes. The findings suggest that interventions targeting caregivers, dyads, or patients and families can lead to improvements in caregiver QOL and mental health.
JNCI-JOURNAL OF THE NATIONAL CANCER INSTITUTE
(2023)
Article
Oncology
Camilla Zimmermann, Ashley Pope, Breffni Hannon, Philippe L. Bedard, Gary Rodin, Neesha Dhani, Madeline Li, Leonie Herx, Monika K. Krzyzanowska, Doris Howell, Jennifer J. Knox, Natasha B. Leighl, Srikala Sridhar, Amit M. Oza, Stephanie Lheureux, Christopher M. Booth, Geoffrey Liu, Jacqueline Alcalde Castro, Nadia Swami, Rachel Sue-A-Quan, Anne Rydall, Lisa W. Le
Summary: This study reports preliminary findings of a mixed methods study involving a randomized controlled trial (RCT) of Symptom screening with Targeted Early Palliative care (STEP) and qualitative interviews. The results showed that STEP was more effective in providing palliative care and improving patient-reported outcomes of quality of life, symptom control, and satisfaction with care compared to usual care.
SUPPORTIVE CARE IN CANCER
(2023)
Article
Oncology
Rui Fu, Rinku Sutradhar, Qing Li, Pabiththa Kamalraj, Anna Dare, Timothy P. Hanna, Kelvin K. W. Chan, Jonathan C. Irish, Natalie Coburn, Julie Hallet, Simron Singh, Ambica Parmar, Craig C. Earle, Lauren Lapointe-Shaw, Monika K. Krzyzanowska, Alexander V. Louie, Alyson Mahar, David R. Urbach, Daniel I. McIsaac, Danny Enepekides, David Gomez, Nicole J. Look Hong, Jill Tinmouth, Antoine Eskander
Summary: This study investigated the association between the COVID-19 pandemic and early survival among newly diagnosed cancer patients. It found that there was no difference in one-year overall survival between patients diagnosed during the pandemic and those diagnosed in the previous two years. This study highlights the complex impact of the COVID-19 pandemic on cancer care.
Article
Health Care Sciences & Services
James H. B. Im, Ronald Chow, Madison Novosel, Jenny Xiang, Michael Strait, Vinay Rao, Jennifer Kapo, Camilla Zimmermann, Elizabeth Prsic
Summary: This study aimed to explore the association between receiving an inpatient palliative care consultation and hospital outcomes, including in-hospital death, ICU use, discharge to hospice, 30-day readmissions, and 30-day ED visits. A retrospective chart review was conducted on medical oncology admissions at Yale New Haven Hospital, with and without palliative care consultations. The results showed that receiving more palliative care consultations was associated with higher odds of hospital death and discharge to hospice, and lower odds of ICU admission, but had no significant association with 30-day readmissions or ED visits.
BMJ SUPPORTIVE & PALLIATIVE CARE
(2023)
Article
Health Care Sciences & Services
Mirza Jacqueline Alcalde Castro, Shenhab Zaig, Rinat Nissim, Brenda O'Connor, Jenny Lau, Ernie Mak, Camilla Zimmermann, Breffni Hannon
Summary: This study aimed to explore the most appropriate model of care for in-person versus telehealth visits in outpatient palliative care settings from the perspective of patients. The results indicated that participants endorsed a flexible hybrid approach that incorporates both in-person and telehealth visits.
BMJ SUPPORTIVE & PALLIATIVE CARE
(2023)
Letter
Oncology
Lawson Eng, Rinku Sutradhar, Monika K. Krzyzanowska
JOURNAL OF CLINICAL ONCOLOGY
(2023)
Review
Oncology
Jean Jacob Mathews, Ronald Chow, Erica Wennberg, Jenny Lau, Breffni Hannon, Camilla Zimmermann
Summary: This study aims to describe the components of telehealth palliative care interventions for patients with advanced cancer before the COVID-19 pandemic, identify any intervention components associated with improvements in outcomes, and evaluate reporting of interventions. The findings showed that although telehealth interventions improved patient and caregiver-reported outcomes, no study provided complete reporting on all intervention components.
SUPPORTIVE CARE IN CANCER
(2023)