Article
Clinical Neurology
Jenny T. van der Steen, Miharu Nakanishi, Lieve van den Block, Paola Di Giulio, Silvia Gonella, Juergen In Der Schmitten, Rebecca L. Sudore, Karen Harrison Dening, Deborah Parker, Ninoslav Mimica, Iva Holmerova, Philip Larkin, Sandra Martins Pereira, Judith A. C. Rietjens, Ida J. Korfage
Summary: This study aimed to conceptualize advance care planning for dementia through a Delphi study, focusing on defining the concept and identifying key issues such as capacity, family, and engagement. The results highlighted the importance of communication and relationship-centered approach for ACP in dementia.
ALZHEIMERS & DEMENTIA
(2023)
Article
Geriatrics & Gerontology
Terri R. Fried, Andrew B. Cohen, Joanna E. Harris, Laura Moreines
Summary: The study found that most patients with early cognitive impairment and their caregivers were unaware of the decisions they could face, and there were many barriers to planning for these decisions.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2021)
Article
Geriatrics & Gerontology
Yu Kyung Lee, Terri R. Fried, Darce M. Costello, Alexandra M. Hajduk, John R. O'Leary, Andrew B. Cohen
Summary: This study aimed to explore the association between perceived dementia risk and participation in advance care planning (ACP) among older adults. The results showed that older adults who perceived no risk of developing dementia were less likely to engage in ACP activities. However, a significant number of older adults with high levels of perceived risk had not completed ACP activities, suggesting the need for additional efforts to increase engagement.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2022)
Review
Nursing
Hyejin Kim, Jeonghyun Cho, Won Seok Park, Sang Suk Kim
Summary: The study aimed to compare characteristics of ACP interventions across dementia stages, finding major differences in intervention recipients between mild and advanced dementia stages. Most interventions included structured discussions on life goals, values, care preferences, but lacked designs to promote ongoing discussions and documentation. Nurses played important roles in implementing ACP interventions.
JOURNAL OF NURSING SCHOLARSHIP
(2021)
Review
Oncology
Adela Wu, Gabriela Ruiz Colon, Rebecca Aslakson, Erqi Pollom, Chirag B. Patel
Summary: Glioblastoma is the most common primary brain malignancy in adults, with a devastating prognosis despite standard treatments. Advance care planning and palliative care are critical for these patients, yet many do not pursue it or have access to these services. More focused and high-quality studies on end-of-life care are needed to address gaps in palliative care resource utilization for glioblastoma patients.
Editorial Material
Geriatrics & Gerontology
Suzanne Timmons, Siobhan Fox, Jonathan Drennan, Suzanne Guerin, W. George Kernohan
Summary: Older people with dementia have multiple palliative care needs, including pain, agitation, dyspnoea, aspiration, and pressure ulcers. Anticipating the person's possible symptoms requires knowledge of the whole person, but often the dementia type is not documented. In dealing with dementia, we tend to focus too much on physical and psychological symptoms, neglecting the spiritual and emotional needs, especially during the time of diagnosis.
Article
Geriatrics & Gerontology
Annika Tetrault, Maj-Helen Nyback, Lisbeth Fagerstrom, Heli Vaartio-Rajalin
Summary: This study aimed to investigate the views of dementia nurses and geriatricians on Advance Care Planning in dementia care. Using semi-structured focus group interviews with dementia care professionals in Western Finland, it was found that they recognize the importance of advance directives and hold a generally positive view of Advance Care Planning in dementia care. However, they also identified several factors that affect the conditions for conducting Advance Care Planning.
Article
Health Care Sciences & Services
Hiroshi Gotanda, Teryl K. Nuckols, Marie Lauzon, Yusuke Tsugawa
Summary: Individuals with dementia complete advanced care planning less frequently and may receive higher-intensity end-of-life care.
JOURNAL OF GENERAL INTERNAL MEDICINE
(2022)
Article
Geriatrics & Gerontology
Samir K. Shah, Adoma Manful, Amanda J. Reich, Robert S. Semco, Jennifer Tjia, Keren Ladin, Joel S. Weissman
Summary: The study found low utilization of ACP billing codes among Medicare patients with ADRD undergoing surgery, with a reactive pattern of ACP occurring most commonly after surgery and in association with postoperative mortality and complications. Further research is needed to understand barriers to the use of ACP.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2021)
Article
Geriatrics & Gerontology
Andrew J. E. Harding, Julie Doherty, Laura Bavelaar, Catherine Walshe, Nancy Preston, Sharon Kaasalainen, Tamara Sussman, Jenny T. van der Steen, Nicola Cornally, Irene Hartigan, Martin Loucka, Karolina Vlckova, Paola Di Giulio, Silvia Gonella, Kevin Brazil
Summary: This study aims to adopt and apply the Family Carer Decisional Support intervention internationally and train nursing home staff to deliver the intervention. The multiple case study design allows for evaluation of the intervention in different contexts. The goal is to have a lasting impact and significance for future advance care planning practice.
Review
Critical Care Medicine
Emily K. Rose, James O'Connor
Summary: COPD is a progressive disease that affects patients' quality of life, and it is crucial to discuss patients' care goals before the disease becomes refractory. Advance Care Planning (ACP) is a comprehensive approach to discussing goals with patients. Existing research has shown that ACP improves communication, reduces hospital admissions, and enhances quality of life, although most studies have focused on cancer patients. Without further research and guidance, obtaining funding for ACP programs dedicated to COPD may be challenging. There are currently no guidelines for addressing ACP in patients with COPD, and barriers exist that hinder meaningful discussions between patients, families, and healthcare providers. Research has also indicated that multidisciplinary teams can improve care and quality of life. Therefore, dedicated research should investigate the effects of ACP initiatives on outcomes in COPD patients, particularly in reducing hospital admissions and improving quality of life.
Article
Geriatrics & Gerontology
Dallas Mindo-Panusis, Rebecca. L. L. Sudore, Irena Cenzer, Alexander. K. K. Smith, Ashwin. A. A. Kotwal
Summary: Despite known racial disparities, little is known about ACP disparities experienced by US immigrants. This study found that US immigrants have lower ACP engagement compared to US-born older adults, especially for recent immigrants.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2023)
Article
Public, Environmental & Occupational Health
Djin L. Tay, Lee Ellington, Gail L. Towsley, Katherine Supiano, Cynthia A. Berg
Summary: This study examined emotional expression differences between patients and caregivers during collaborative ACP discussions, identifying topics associated with emotion. Findings suggest that collaboration in ACP can have positive relational aspects for patient-caregiver dyads, while negative emotions can also be distressing. Practice and clinical implications for caregiver support and decision-making dynamics are discussed.
PATIENT EDUCATION AND COUNSELING
(2021)
Article
Oncology
Michael G. Cohen, Andrew D. Althouse, Robert M. Arnold, Hailey W. Bulls, Douglas B. White, Edward Chu, Margaret Q. Rosenzweig, Kenneth J. Smith, Yael Schenker
Summary: This study found that engagement in advance care planning (ACP) did not decrease hope in patients with advanced cancer, and may even increase hope. These results may provide reassurance to clinicians who are apprehensive about having these important and difficult conversations.
Review
Pediatrics
Nadine Lusney, Camara van Breemen, Edlyn Lim, Colleen Pawliuk, Zahra Hussein
Summary: To assess pediatric advance care planning (pACP) documentation and implementation, clinicians at a Canadian pediatric hospice conducted a scoping review. Sixty-four articles and fifteen pACP forms/tools were reviewed, highlighting the importance of a structured, collaborative, and iterative process between families and healthcare providers. No single ACP tool was identified as the gold standard, and implementation strategies included a structured pACP tool, ongoing training, mentorship, and organizational structures.