Article
Health Care Sciences & Services
Paige Crompvoets, Jane M. Cramm, Elisabeth F. C. van Rossum, Anna P. Nieboer
Summary: This study aimed to explore the viewpoints of patients with obesity on the importance of different aspects of person-centred care. Five distinct viewpoints were identified, highlighting the need for tailored care in obesity treatment.
HEALTH EXPECTATIONS
(2022)
Article
Nursing
Ye-Na Lee, Sung Ok Chang
Summary: Palliative wound care is crucial in terminal care, as it can improve patient outcomes and quality of life. This study used Q-methodology to identify four subjective frames of palliative wound care. The findings can be applied to the development of nursing education to enhance competencies in palliative care.
Article
Health Care Sciences & Services
Vicent Blanes-Selva, Sabina Asensio-Cuesta, Ascension Donate-Martinez, Felipe Pereira Mesquita, Juan M. Garcia-Gomez
Summary: The objective of this study was to design and validate The Aleph palliative care CDSS using a user-centered method. The results showed that the machine learning predictive models performed better than the participants in the predictive tasks. The system had good usability and user experience ratings.
Article
Medicine, General & Internal
Sarah Mitchell, Isabel Leach, Nicola Turner, C. R. Mayland
Summary: This research aims to provide new understanding of patient perspectives regarding the experience of having their palliative care needs identified and its impact on their healthcare. Qualitative interviews will be conducted with 10-12 adults with advanced serious illness who have been identified as needing palliative care. The findings will have important implications for clinical practice and policy.
Article
Health Care Sciences & Services
Felicity Dewhurst, Louise Tomkow, Marie Poole, Emma Mclellan, Tafadzwa Patience Kunonga, Efioanwan Damisa, Melanie Stowell, Chris Todd, Barbara Hanratty
Summary: This qualitative interview study explored the palliative care experiences of people of African and Caribbean descent during and prior to the pandemic. The study identified three themes: representation, personalization, and awareness and education. The findings highlight the lack of person-centred, culturally-competent care for this population and the widespread expectation of inequitable treatment.
PALLIATIVE MEDICINE
(2023)
Article
Computer Science, Information Systems
Shirley Burton, Annette L. Valenta, Justin Starren, Joanna Abraham, Therese Nelson, Karl Kochendorfer, Ashley Hughes, Bhrandon Harris, Andrew Boyd
Summary: This study identified factors influencing the adoption and use of patient-reported outcomes in the electronic health record (EHR), including eight factors. It emphasized the importance of not applying a one size fits all strategy for implementing PROs in the EHR in clinical settings, suggesting a sociotechnical approach may be beneficial for improving success and sustainability.
JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION
(2022)
Article
Gastroenterology & Hepatology
Shiv K. Sarin, Mohammed Eslam, Jian-Gao Fan, Han-Chieh Lin, Jacob George, Masao Omata
Summary: Asian-Pacific nations, home to over half the world's population, are facing the challenge of metabolic dysfunction associated fatty liver disease (MAFLD). The Asian Pacific Association for the Study of the Liver (APASL) has taken the lead in redefining the disease and adopting the term MAFLD along with positive diagnostic criteria. Their efforts aim to advance the science and practice of Hepatology, incorporate MAFLD in multidisciplinary care teams, and improve patient-centered care in the region.
HEPATOLOGY INTERNATIONAL
(2022)
Article
Public, Environmental & Occupational Health
A. H. Rotteveel, V. T. Reckers-Droog, M. S. Lambooij, G. A. de Wit, N. J. A. van Exel
Summary: This study identified four societal viewpoints in the Netherlands regarding active disinvestment of healthcare interventions, including maintaining reimbursement for necessary healthcare, objectively determining necessity, disinvesting unnecessary healthcare, and emphasizing transparency and consistency in disinvestment decision-making processes. Public support is crucial for successful disinvestment, but varying viewpoints make it challenging to obtain consensus.
SOCIAL SCIENCE & MEDICINE
(2021)
Article
Health Care Sciences & Services
Lilisbeth Perestelo-Perez, Amado Rivero-Santana, Ana Isabel Gonzalez-Gonzalez, Carlos Jesus Bermejo-Caja, Vanesa Ramos-Garcia, Debora Koatz, Alezandra Torre-Castano, Marta Ballester, Marcos Munoz-Balsa, Yolanda del Rey-Granado, Francisco Javier Perez-Rivas, Yolanda Canellas-Criado, Ana Belen Ramirez-Puerta, Valeria Pacheco-Huergo, Carola Orrego
Summary: This study aimed to translate, adapt, and validate the Patient-Practitioner Orientation Scale (PPOS) using a sample of primary care health-care professionals in Spain. The results showed that Spanish primary care health-care professionals generally have a patient-oriented attitude, but less so in issues such as patients' need for and management of medical information.
HEALTH EXPECTATIONS
(2021)
Article
Education & Educational Research
David A. Mahoney, Divya Gopisetty, Lars Osterberg, Matthew J. R. Nudelman, Rebecca Smith-Coggins
Summary: The study focused on how healthcare professionals can address mistreatment by patients through a multi-modal curriculum including didactics, simulation videos, and role-play. After the workshops, participants were more willing to speak up and felt they could take action in response to mistreatment. This curriculum effectively increased participants' familiarity and confidence in responding to patient mistreatment.
BMC MEDICAL EDUCATION
(2022)
Article
Computer Science, Information Systems
Marco Rodriguez, Ancu Feng, Cecilia Menjivar, Mario Lopez-Saca, Carlos Centeno, Maria Arantzamendi
Summary: Members of a patient's family highly value the professional and humane support provided by medical teams in the care of patients with advanced diseases. The use of communication technologies like WhatsApp can facilitate expressions of gratitude and enhance the perception of the professional's availability and closeness.
INTERNATIONAL JOURNAL OF MEDICAL INFORMATICS
(2022)
Article
Health Care Sciences & Services
Ulrike Spary-Kainz, Nicole Posch, Muna Paier-Abuzahra, Melanie Lieb, Alexander Avian, Erika Zelko, Andrea Siebenhofer
Summary: There is a certain level of awareness and knowledge of palliative care in Styria, Austria, but there is still room for improvement in public education. People generally believe that terminally ill patients need a reduction in physical suffering, and relatives need round-the-clock specialized care. Home pain management and time off for family caregivers are the most desired services for patients and relatives.
Article
Education, Scientific Disciplines
Jennifer Coventry, Jennifer May Hampton, Esther Muddiman, Alison Bullock
Summary: This study explores the perceptions of what makes a 'good' doctor among medical students and doctors. The findings suggest that a patient-centered approach and generalist skills are valued by the majority, aligning with the curricula adaptions made by Royal Colleges. However, the implications of a generalist approach on doctors' professional identities should be acknowledged.
Article
Oncology
Stephanie White, Jane Phillips, Erin Turbitt, Chris Jacobs
Summary: Palliative care clinicians are uncertain about addressing genetics, weighing the benefits against potential harms. Responsibility to address genetic issues depends on perceptions of relevance and the scope of palliative care. Suggestions to overcome practice barriers include building genetic-palliative care relationships, multi-layered genetics education, developing clinical resources, and increasing organizational support.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Public, Environmental & Occupational Health
S. I. van Dongen (Sophie), R. Stoevelaar, L. W. Kranenburg (Leonieke), H. W. Noorlandt (Hanna), F. E. Witkamp (Erica), C. C. D. van der Rijt (Karin), A. van der Heide (Agnes), J. A. C. Rietjens (Judith)
Summary: The study found that healthcare professionals have different views and approaches regarding self-management and self-management support for patients with advanced cancer. They adopt instructive, collaborative, and advisory roles in supporting this population, which can be useful in different situations.
PATIENT EDUCATION AND COUNSELING
(2022)
Article
Public, Environmental & Occupational Health
Sebastian Himmler, Marcel Jonker, Frederique van Krugten, Mariska Hackert, Job van Exel, Werner Brouwer
Summary: This study established a utility tariff for the Well-being of Older People measure (WOOP), to better evaluate the full relevant benefits of health and social care interventions targeted at older people.
SOCIAL SCIENCE & MEDICINE
(2022)
Article
Multidisciplinary Sciences
Charlotte M. Dieteren, Merel A. J. van Hulsen, Kirsten I. M. Rohde, Job van Exel
Summary: The study found that in the Netherlands, the majority of respondents prefer to involve physicians and/or expert committees in the decision-making of ICU bed allocation. They tend to prioritize vulnerable patients and those with the best prospects of full recovery, while not supporting the consideration of personal characteristics such as age in decision-making.
Article
Public, Environmental & Occupational Health
Thomas H. G. Bongaerts, Frederike L. Buchner, Matty R. Crone, Job van Exel, Onno R. Guicherit, Mattijs E. Numans, Vera Nierkens
Summary: The Netherlands has seen a decrease in the overall uptake of cancer screening programmes (CSPs) in recent years. Particularly in highly urbanized regions, the participation rates fall below the minimum effective rate set by the World Health Organization. This study aims to explore the various perspectives on cancer screening among inhabitants of The Hague, a highly urbanized region in the Netherlands.
Article
Public, Environmental & Occupational Health
Leonoor Graler, Leonarda Bremmers, Pieter Bakx, Job van Exel, Marianne van Bochove
Summary: In the Netherlands, about one-third of the adult population provides unpaid care. This study found that the subjective burden of caregivers slightly increased during the COVID-19 pandemic, and certain groups of caregivers, such as women, those with low income, and those with childcare responsibilities, were more affected. Reducing objective burden may not necessarily lead to a reduction in subjective burden for all caregivers.
HEALTH & SOCIAL CARE IN THE COMMUNITY
(2022)
Article
Economics
Meg Perry-Duxbury, Sebastian Himmler, Job van Exel, Werner Brouwer
Summary: This paper examines the willingness to pay for health gains due to an international early warning system for outbreaks in six European countries. The study finds that the willingness to pay is higher for greater risk reduction, but the changes in willingness to pay are not proportional to the magnitude of the risk reduction. The study provides estimates of the monetary value of health gains in seven different scenarios of a pandemic outbreak.
EUROPEAN JOURNAL OF HEALTH ECONOMICS
(2023)
Article
Health Care Sciences & Services
Hans-Helmut Koenig, Sebastian Neumann-Boehme, Iryna Sabat, Jonas Schreyoegg, Aleksandra Torbica, Job van Exel, Pedro Pita Barros, Tom Stargardt, Andre Hajek
Summary: This study investigated the health-related quality of life (HRQoL) during the COVID-19 pandemic in seven European countries and its association with sociodemographic and COVID-19-related variables. The findings showed that a large proportion of respondents reported problems in HRQoL dimensions throughout the pandemic, especially for anxiety/depression. Various sociodemographic and COVID-19-related variables were associated with HRQoL. Rating: 8/10
QUALITY OF LIFE RESEARCH
(2023)
Article
Economics
C. M. Dieteren, I. Bonfrer, W. B. F. Brouwer, J. van Exel
Summary: This study used a discrete choice experiment to investigate public preferences for policies promoting a healthy diet in the Netherlands. The results showed that positive financial incentives and lower tax rates received more support, but there were significant variations in preferences among the public. This highlights the challenges in selecting and implementing a policy package that has wide public support.
EUROPEAN JOURNAL OF HEALTH ECONOMICS
(2023)
Article
Economics
Werner Brouwer, Kaya Verbooy, Renske Hoefman, Job van Exel
Summary: This study found that compensation mechanisms and multiplier effects play important roles in reducing or increasing productivity losses. Survey data showed that among a sample of individuals in Amsterdam aged 15-65 years who worked at least 12 hours per week and experienced absenteeism and/or presenteeism in the past 4 weeks, 45.5% reported absenteeism (average 6.5 days), resulting in an average loss of 48.7 working hours, while 75.9% reported presenteeism, with an average loss of 10.7 working hours. Compensation mechanisms were reported by 76.9% of respondents, compensating nearly 80% of their lost production, while multiplier effects were reported by 23.6% of respondents, reducing the productivity of 4.2 colleagues by an average of 27.8%, implying a multiplier of 2.1 in that subgroup.
Article
Public, Environmental & Occupational Health
Merel A. J. van Hulsen, Kirsten I. M. Rohde, Job van Exel
Summary: Policy makers need to consider preferences from both societal and individual perspectives when making decisions about healthcare resource allocation. Preferences for investment in healthcare capacity and allocation between regions were studied through an online survey, revealing that preferences were influenced by initial waiting times and varied between individuals. It was found that both egalitarian and individualistic preferences were present, but the focus should be on the effect on final waiting time rather than the reduction of waiting time.
SOCIAL SCIENCE & MEDICINE
(2023)
Article
Economics
J. Veldwijk, J. van Exel, E. W. de Bekker-Grob, N. Mouter
Summary: This study investigated public preferences for COVID-19 certificates in the Netherlands and examined whether these preferences varied among different subgroups. The results showed that respondents aged > 65 years and those planning to get vaccinated were more likely to support the certificate. The ability to shop without appointment and visit bars and restaurants were the most important factors for respondents.
APPLIED HEALTH ECONOMICS AND HEALTH POLICY
(2023)
Article
Economics
Aemiro Melkamu Daniel, Job van Exel, Caspar G. Chorus
Summary: This study empirically investigates the influence of self-interest, positional concerns, and distributional considerations on individual healthcare decision making. The results show that distributional considerations are the most important factor, followed by self-interest and positional concerns. Furthermore, decision makers in the United States and the United Kingdom display different tendencies when making choices for themselves or for their close relatives or friends. The method used in this study helps healthcare decision makers understand the relative importance of these three motivations.
EUROPEAN JOURNAL OF HEALTH ECONOMICS
(2023)
Article
Public, Environmental & Occupational Health
Jannis Stockel, Job van Exel, Werner B. F. Brouwer
Summary: Experiencing deteriorating health can impact quality of life. The theory of adaptation suggests that individuals can adapt to living with poor health, leading to stable or improving quality of life despite continuing health decline. This has implications for measuring the impact of health changes or new medical technologies using subjective quality of life indicators. However, the existence and magnitude of adaptation vary among different diseases and subgroups, raising ethical concerns. This study used data from the UK Understanding Society survey to examine the effects of long-standing illness or disability on self-assessed health and life satisfaction. The findings indicate that disability onset is associated with significant decreases in subjective health and well-being, but these initial declines attenuate over time. The magnitude and patterns of adaptation differ across demographic and severity groups. These results have important implications for future studies on quality of life outcomes and highlight the need for careful consideration of adaptation in observational datasets.
SOCIAL SCIENCE & MEDICINE
(2023)
Article
Social Sciences, Interdisciplinary
Willem van der Deijl, Werner Brouwer, Job van Exel
Summary: This study examined conceptions of a good life among adult people in the Netherlands and identified five distinct viewpoints on well-being. The findings have significant implications for the development of well-being measures and policies.
APPLIED RESEARCH IN QUALITY OF LIFE
(2023)
Meeting Abstract
Health Care Sciences & Services
Daphne Voormolen, Judith Bom, Werner Brouwer, Esther De Bekker-Grob, Job Van Exel
QUALITY OF LIFE RESEARCH
(2022)
Meeting Abstract
Health Care Sciences & Services
Daphne Voormolen, Judith Bom, Werner Brouwer, Esther de Bekker-Grob, Job van Exel
QUALITY OF LIFE RESEARCH
(2022)
