Journal
HEALTH INFORMATICS JOURNAL
Volume 26, Issue 2, Pages 1237-1252Publisher
SAGE PUBLICATIONS INC
DOI: 10.1177/1460458219876188
Keywords
chronic disease; kidney transplantation; participatory design; telehealth; user involvement
Funding
- EWII Group
- Danish Kidney Association
- Region of Southern Denmark
- Odense University Hospital
- Danish Council of Nurses
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Kidney transplantation is the treatment of choice for patients with end-stage renal disease, and leads to everyday self-management of this chronic condition. This article aims to provide documentation for a participatory design study of a telehealth solution to improve the kidney transplantation process, and to identify the impact from the different participants in the participatory design study. Through a participatory design approach, a smartphone application (app) was developed for the entire kidney transplantation process together with a workflow for post-transplantation follow-up. A core element in participatory design is user involvement. By way of workshops and laboratory tests, the telehealth solution was developed in close cooperation with patients, their families, healthcare professionals, kidney association representatives, and Information Technology designers. The participatory design approach means that the telehealth solution was designed to be functional in a clinical setting, address patients' needs, and support their self-management.
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