Trials need participants but not their feedback? A scoping review of published papers on the measurement of participant experience of taking part in clinical trials

Identifying trial recruitment uncertainties using a James Lind Alliance Priority Setting Partnership – the PRioRiTy (Prioritising Recruitment in Randomised Trials) study

(2018) Patricia Healy et al.   Trials

Trial Forge Guidance 1: what is a Study Within A Trial (SWAT)?

(2018) Shaun Treweek et al.   Trials

PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation

(2018) Andrea C. Tricco et al.   ANNALS OF INTERNAL MEDICINE

Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis

(2018) Joanna C Crocker et al.   BMJ-British Medical Journal

Understanding and Improving Recruitment to Randomised Controlled Trials: Qualitative Research Approaches

(2017) Daisy Elliott et al.   EUROPEAN UROLOGY

Theory-based and evidence-based design of audit and feedback programmes: examples from two clinical intervention studies

(2017) Sylvia J Hysong et al.   BMJ Quality & Safety

Strategy for recruitment and factors associated with motivation and satisfaction in a randomized trial with 210 healthy volunteers without financial compensation

(2015) Quentin Luzurier et al.   BMC Medical Research Methodology

Consent revisited: the impact of return of results on participants' views and expectations about trial participation

(2015) Carolyn Tarrant et al.   HEALTH EXPECTATIONS

A systematic review of training programmes for recruiters to randomised controlled trials

(2015) Daisy Townsend et al.   Trials

A little more conversation please? Qualitative study of researchers’ and patients’ interview accounts of training for patient and public involvement in clinical trials

(2015) Louise Dudley et al.   Trials

What Difference Does Patient and Public Involvement Make and What Are Its Pathways to Impact? Qualitative Study of Patients and Researchers from a Cohort of Randomised Clinical Trials

(2015) Louise Dudley et al.   PLoS One

Impact of patient involvement in mental health research: longitudinal study

(2013) Liam Ennis et al.   BRITISH JOURNAL OF PSYCHIATRY

Assessing Participant-Centered Outcomes to Improve Clinical Research

(2013) Rhonda G. Kost et al.   NEW ENGLAND JOURNAL OF MEDICINE

Evidence base for patient and public involvement in clinical trials (EPIC)

(2013) Carrol Gamble et al.   Trials

A reinvestigation of recruitment to randomised, controlled, multicenter trials: a review of trials funded by two UK funding agencies

(2013) Ben G O Sully et al.   Trials

Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences

(2013) Maarten de Wit et al.   BMJ Open

Development of a Research Participants’ Perception Survey to Improve Clinical Research

(2012) Jennifer L. Yessis et al.   CTS-Clinical and Translational Science

Should measures of patient experience in primary care be adjusted for case mix? Evidence from the English General Practice Patient Survey

(2012) Charlotte Paddison et al.   BMJ Quality & Safety

Exploring treatment preferences facilitated recruitment to randomized controlled trials

(2011) Nicola Mills et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Experiences of families with a child, adolescent, or young adult with neurofibromatosis type 1 and plexiform neurofibroma evaluated for clinical trials participation at the National Cancer Institute

(2010) Staci Martin et al.   Contemporary Clinical Trials

Scoping studies: advancing the methodology

(2010) Danielle Levac et al.   Implementation Science

Factors influencing the participation of older people in clinical trials — data analysis from the MAVIS trial

(2010) P. Fearn et al.   Journal of Nutrition Health & Aging

How much loss to follow-up is acceptable in long-term randomised trials and prospective studies?

(2008) M. S Fewtrell et al.   ARCHIVES OF DISEASE IN CHILDHOOD

Development of a complex intervention improved randomization and informed consent in a randomized controlled trial

(2008) Jenny L. Donovan et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY