Research involving adults lacking capacity to consent: a content analysis of participant information sheets for consultees and legal representatives in England and Wales

Informed Consent Documents Used in Critical Care Trials Often Do Not Implement Recommendations*

(2018) Pearl Atwere et al.   CRITICAL CARE MEDICINE

Healthcare professionals’ understanding of the legislation governing research involving adults lacking mental capacity in England and Wales: a national survey

(2018) Victoria Shepherd et al.   JOURNAL OF MEDICAL ETHICS

How do clinical genetics consent forms address the familial approach to confidentiality and incidental findings? A mixed-methods study

(2017) Sandi Dheensa et al.   Familial Cancer

Research involving adults lacking capacity to consent: the impact of research regulation on ‘evidence biased’ medicine

(2016) Victoria Shepherd   BMC Medical Ethics

Sense and readability: Participant information sheets for research studies

(2016) Liam Ennis et al.   BRITISH JOURNAL OF PSYCHIATRY

Good eggs? Evaluating consent forms for egg donation

(2016) Alana Rose Cattapan   JOURNAL OF MEDICAL ETHICS

Contextualising consent

(2016) Michael Dunn   JOURNAL OF MEDICAL ETHICS

Cognitive Fluctuations as a Challenge for the Assessment of Decision-Making Capacity in Patients With Dementia

(2014) Manuel Trachsel et al.   American Journal of Alzheimers Disease and Other Dementias

How are we communicating about clinical trials?

(2014) Daniela B. Friedman et al.   Contemporary Clinical Trials

Probiotics for Antibiotic-Associated Diarrhoea (PAAD): a prospective observational study of antibiotic-associated diarrhoea (including Clostridium difficile-associated diarrhoea) in care homes

(2014) Kerenza Hood et al.   HEALTH TECHNOLOGY ASSESSMENT

Participant Comprehension of Research for Which They Volunteer: A Systematic Review

(2014) Wanda Montalvo et al.   JOURNAL OF NURSING SCHOLARSHIP

Patient information leaflets (PILs) for UK randomised controlled trials: a feasibility study exploring whether they contain information to support decision making about trial participation

(2014) Katie Gillies et al.   Trials

World Medical Association Declaration of Helsinki

(2013)   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

The Disappearing Subject: Exclusion of People with Cognitive Impairment and Dementia from Geriatrics Research

(2012) Janelle S. Taylor et al.   JOURNAL OF THE AMERICAN GERIATRICS SOCIETY

Assessing the quality of democratic deliberation: A case study of public deliberation on the ethics of surrogate consent for research

(2010) Raymond De Vries et al.   SOCIAL SCIENCE & MEDICINE

Research involving adults who lack capacity: how have research ethics committees interpreted the requirements?

(2009) M Dixon-Woods et al.   JOURNAL OF MEDICAL ETHICS

LASTING POWERS OF ATTORNEY FOR HEALTHCARE UNDER THE MENTAL CAPACITY ACT 2005: ENHANCED PROSPECTIVE SELF-DETERMINATION FOR FUTURE INCAPACITY OR A SIMULACRUM?

(2009) J. Samanta   Medical Law Review