Return of individual genomic research results: are laws and policies keeping step?

Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance

(2018) Wylie Burke et al.   JOURNAL OF LAW MEDICINE & ETHICS

Personal utility in genomic testing: a systematic literature review

(2017) Jennefer N Kohler et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

The Continuing Evolution of Ethical Standards for Genomic Sequencing in Clinical Care: Restoring Patient Choice

(2017) Susan M. Wolf   JOURNAL OF LAW MEDICINE & ETHICS

Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?

(2016) Isabelle Budin-Ljøsne et al.   BIOPRESERVATION AND BIOBANKING

Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics

(2016) Sarah S. Kalia et al.   GENETICS IN MEDICINE

Comparative Approaches to Biobanks and Privacy

(2016) Mark A. Rothstein et al.   JOURNAL OF LAW MEDICINE & ETHICS

Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?

(2016) Isabelle Budin-Ljøsne et al.   Biopreservation and Biobanking

Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents

(2015) Jeffrey R. Botkin et al.   AMERICAN JOURNAL OF HUMAN GENETICS

Guidelines for diagnostic next-generation sequencing

(2015) Gert Matthijs et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists

(2015) Kym Boycott et al.   JOURNAL OF MEDICAL GENETICS

Return of genetic testing results in the era of whole-genome sequencing

(2015) Bartha Maria Knoppers et al.   NATURE REVIEWS GENETICS

Controlled Access under Review: Improving the Governance of Genomic Data Access

(2015) Mahsa Shabani et al.   PLOS BIOLOGY

International ethics harmonization and the global alliance for genomics and health

(2014) Bartha M Knoppers   Genome Medicine

Whole-genome sequencing in health care

(2013) Carla G van El et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

(2013) Robert C. Green et al.   GENETICS IN MEDICINE

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

(2012) Susan M. Wolf et al.   GENETICS IN MEDICINE

Points to consider in the clinical application of genomic sequencing

(2012)   GENETICS IN MEDICINE