Article
Gastroenterology & Hepatology
Roberta Jordan, Yousuf ElMokhallalati, Lynsey Corless, Michael Bennett
Summary: Patients with liver disease face difficulties in accessing end-of-life care, with a higher percentage of them dying in hospitals and receiving less specialized palliative care compared to those with malignant liver disease. Caregivers of patients with non-malignant liver disease were less likely to rate the quality of end-of-life care as outstanding/excellent.
LIVER INTERNATIONAL
(2023)
Article
Oncology
Sarah J. Mah, Hsien Seow, Kara Schnarr, Clare J. Reade, Anastasia Gayowsky, Kelvin K. W. Chan, Aynharan Sinnarajah
Summary: The quality of end-of-life care for gynecologic cancer patients in Ontario has shown improvement over time, with fewer patients dying in hospitals and an increased utilization of supportive care. However, a significant proportion of patients still receive aggressive care in the final 30 days of life.
GYNECOLOGIC ONCOLOGY
(2022)
Article
Medicine, General & Internal
Christian Volberg, Pauline Fleck, Paula Vradelis, Astrid Morin, Martin Gschnell, Anna Elisabeth Pape
Summary: This study describes the work and problems of occupational therapists in palliative care in Germany. The findings show that there are various possible applications and approaches for occupational therapy in palliative care, and highlight the need for improving the status of occupational therapists in practice, as well as research and training in this area.
JOURNAL OF CLINICAL MEDICINE
(2023)
Article
Public, Environmental & Occupational Health
J. Jeba, C. Taylor, V O'Donnell
Summary: This study used three different methods to estimate palliative care needs in 2017 and projected an increase in demand by 2040 in Chorley & South Ribble and Greater Preston. The results highlight the practical application and importance of public health data in supporting the development of locally responsive palliative care services.
Article
Education, Scientific Disciplines
Lis Heath, Richard Egan, Jean Ross, Ella Iosua, Robert Walker, Rod MacLeod
Summary: Palliative and end of life care teaching in undergraduate nurse education in New Zealand lacks consistency and standardization. Limited teaching time and clinical placements are major barriers to providing comprehensive education in this area.
NURSE EDUCATION TODAY
(2021)
Article
Public, Environmental & Occupational Health
Kuai In Tam, Sok Leng Che, Mingxia Zhu, Sok Man Leong
Summary: This study explored the preferred place of care and death for Chinese residents in Macao. The majority of respondents preferred to be cared for at home in the last 6 months, but only a small proportion preferred to die at home. A significant number of respondents chose hospices or hospitals as their preferred place of death. The study suggests the need for palliative home care services in Macao and emphasizes the importance of education for healthcare professionals.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Health Care Sciences & Services
Andrew Papworth, Julia Hackett, Bryony Beresford, Fliss Murtagh, Helen Weatherly, Sebastian Hinde, Andre Bedendo, Gabriella Walker, Jane Noyes, Sam Oddie, Chakrapani Vasudevan, Richard G. Feltbower, Bob Phillips, Richard Hain, Gayathri Subramanian, Andrew Haynes, Lorna K. Fraser
Summary: This qualitative study explores regional perspectives on the successes and challenges of coordinating and delivering end-of-life care for children in the UK. The findings highlight the importance of collaborative and network approaches, as well as effective communication, in facilitating good end-of-life care. However, consistent funding and staff education and training need to be addressed to improve the delivery and experiences of care.
BMC PALLIATIVE CARE
(2023)
Article
Education & Educational Research
Lis Heath, Richard Egan, Ella Iosua, Robert Walker, Jean Ross, Rod MacLeod
Summary: Palliative and end of life care is included in undergraduate teaching in all medical schools in New Zealand, but there are gaps in content, minimal formal assessment, and limited contact with specialist palliative care services. Lack of teaching staff and pressure on curriculum time are the main barriers to further curriculum development.
BMC MEDICAL EDUCATION
(2022)
Article
Health Care Sciences & Services
Leena K. Surakka, Minna M. Peake, Minna M. Kiljunen, Pekka Mantyselka, Juho T. Lehto
Summary: This study evaluated a protocol for end-of-life care at home in North Karelia, Finland, and found that the involvement of paramedics is reasonable, especially in rural areas without 24/7 palliative care services and outside of office hours. The majority of patients can be managed at home or with the help of an end-of-life care ward, reducing the need for emergency department visits.
PALLIATIVE MEDICINE
(2021)
Article
Infectious Diseases
Douglas H. Crispim, Ivaldo Olimpio da Silva, Ricardo Tavares de Carvalho, Anna S. Levin
Summary: This survey evaluated how doctors use antibiotics in palliative care. Most doctors decided to initiate and maintain/extend antibiotics in end-of-life situations, and the duration of antibiotics was often inadequate. Longer time since graduation and lack of formal specialization in palliative care were associated with inadequate maintenance/extention of antibiotics.
INTERNATIONAL JOURNAL OF INFECTIOUS DISEASES
(2022)
Article
Oncology
Mellar P. Davis, Erin A. Vanenkevort, Alexander Elder, Amanda Young, Irina D. Correa Ordonez, Mark J. Wojtowicz, Halle Ellison, Carlos Fernandez, Zankhana Mehta, Bertrand Behm, Glen Digwood, Rajiv Panikkar
Summary: Early palliative care improves patient quality of life and reduces aggressive care at the end of life. Completed advance directives and palliative care consultation initiated at least 90 days prior to death are associated with reduced aggressive care indicators.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Public, Environmental & Occupational Health
Andy Bradshaw, Sophia Ostler, Claire Goodman, Izabele Batkovskyte, Clare Ellis-Smith, India Tunnard, Anna E. Bone, Stephen Barclay, Martin Vernon, Irene J. Higginson, Catherine J. Evans, Katherine E. Sleeman
Summary: This study investigated the impact of COVID-19 on the provision of palliative and end-of-life care in UK care homes. The results emphasize the importance of relationship-centered care and highlight the need for policy priorities such as integration, digital inclusivity, workforce development, and support for care home managers. These findings contribute to the broader discussions and initiatives on improving palliative care globally.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Multidisciplinary Sciences
Helena Ullgren, Per Fransson, Anna Olofsson, Ralf Segersvard, Lena Sharp
Summary: The study revealed an increase in several aspects of intensity of care at the end-of-life, stressing the need for further exploration of the optimal organization of end-of-life care. The results indicate fragmentation of care and the necessity to better organize and coordinate care for vulnerable patients.
Article
Health Care Sciences & Services
Lucy Ellen Selman, D. J. J. Farnell, M. Longo, S. Goss, K. Seddon, A. Torrens-Burton, C. R. Mayland, D. Wakefield, B. Johnston, A. Byrne, E. Harrop
Summary: This study aimed to understand the risk factors for end-of-life care and early bereavement experiences during the COVID-19 pandemic. The results suggest that deaths in hospitals or care homes, deaths from COVID-19, and the relationship to the deceased all impact the quality of end-of-life care and bereavement experiences.
PALLIATIVE MEDICINE
(2022)
Article
Health Care Sciences & Services
Leena K. Surakka, Minna Hokka, Kari Torronen, Pekka Mantyselka, Juho T. Lehto
Summary: Paramedics involved in end-of-life care reported that the protocol helped them take care of patients and improve the quality of care. They found visiting patients and providing end-of-life care to be meaningful work. Paramedics expressed challenges in psychosocial aspects, communication, symptom management, and their role in end-of-life care. There was a need for more education and training in supporting and communicating with families and managing common symptoms.
PALLIATIVE MEDICINE
(2022)
Meeting Abstract
Medicine, General & Internal
Libby Sallnow, Heather Richardson, Scott Murray, Allan Kellehear
Review
Medicine, General & Internal
Joseph M. Sawyer, Libby Sallnow, Nuriye Kupeli, Patrick Stone, Elizabeth L. Sampson
Review
Health Care Sciences & Services
Janet Hardy, Alison Haywood, Kirsty Rickett, Libby Sallnow, Phillip Good
Summary: Evidence supporting common practice in the use of corticosteroids is lacking for most indications, amidst significant potential toxicity and poor quality use of medicine. Guidelines recommending the widespread use of corticosteroids should acknowledge the poor evidence base supporting much current practice, and quality research is essential to define the role of corticosteroids in this context.
PALLIATIVE MEDICINE
(2021)
Review
Multidisciplinary Sciences
Laura del Carpio, Sally Paul, Abigail Paterson, Susan Rasmussen
Summary: This study aimed to systematically review the evidence on adolescent bereavement experiences by different causes to address the gap in knowledge. The findings suggest that suicide bereavement is associated with subsequent suicide, while self-harm outcomes show mixed evidence. Understanding the risk and protective factors surrounding suicide bereavement among young people is crucial for suicide prevention efforts.
Editorial Material
Medicine, General & Internal
William E. Rosa, Liz Grant, Felicia Marie Knaul, Joan Marston, Hector Arreola-Ornelas, Olena Riga, Roman Marabyan, Andriy Penkov, Libby Sallnow, M. R. Rajagopal
Article
Health Care Sciences & Services
Aline De Vleminck, Sally Paul, Maria Reinius, Libby Sallnow, Carol Tishelman, Joachim Cohen
Summary: This study investigates the views and actual involvement of palliative care services in Belgium, Sweden, and the UK regarding community engagement activities. The results show that UK services more frequently engage with the general public to develop knowledge and skills compared to Belgian and Swedish services. UK services also extend their focus beyond the clinical mandate to a greater extent. Additionally, services' dependency on charitable donations is strongly associated with increased engagement with the general public.
PALLIATIVE MEDICINE
(2022)
Article
Health Care Sciences & Services
Bert Quintiens, Tinne Smets, Kenneth Chambaere, Lieve Van den Block, Luc Deliens, Libby Sallnow, Joachim Cohen
Summary: This study explores the discomfort that the general public feels towards the suffering and dying of others. It finds that factors such as gender, mourning, religious beliefs, knowledge about palliative care, healthcare experience, personal experiences with death, and cultural exposure to death are associated with varying levels of discomfort.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Psychology, Multidisciplinary
Louise D'Eer, Kenneth Chambaere, Lieve van den Block, Sarah Dury, Libby Sallnow, Luc Deliens, Tinne Smets, Joachim Cohen
Summary: This study conducted a survey to measure the extent and nature of neighborhood participation regarding serious illness, death, and loss, and found a positive association with perceived neighborhood social cohesion and previous experiences with these topics. Future research should explore strategies to transform death literacy into neighborhood participation.
Review
Medicine, General & Internal
Libby Sallnow, Richard Smith, Sam H. Ahmedzai, Afsan Bhadelia, Charlotte Chamberlain, Yali Cong, Brett Doble, Luckson Dullie, Robin Durie, Eric A. Finkelstein, Sam Guglani, Melanie Hodson, Bettina S. Husebo, Allan Kellehear, Celia Kitzinger, Felicia Marie Knaul, Scott A. Murray, Julia Neuberger, Seamus O'Mahony, M. R. Rajagopal, Sarah Russell, Eriko Sase, Katherine E. Sleeman, Sheldon Solomon, Ros Taylor, Mpho Tutu van Furth, Katrina Wyatt, Jane Blazeby, Tracey Bleakley, Nahla Gafer, Malcolm Johnson, Jenny Kitzinger, Arnoldo Kraus
Article
Social Work
Tia Simanovic, Ionut Cioarta, Cara Jardine, Sally Paul
Summary: Educators have needed to quickly adapt ways of delivering study materials in order to facilitate learning for university students during the COVID-19 pandemic. Findings from focus groups with social work students reveal apprehensions about the move toward online and blended learning, particularly in terms of interactions with staff, a sense of community, assessments, and opportunities for growth. This highlights the importance of ongoing considerations for creating a sense of community in an inclusive, supportive, and sustainable way in social work education.
INTERSECTIONALITIES-A GLOBAL JOURNAL OF SOCIAL WORK ANALYSIS RESEARCH POLITY AND PRACTICE
(2021)
Editorial Material
Public, Environmental & Occupational Health
John P. Rosenberg, Debbie Horsfall, Libby Sallnow, Merryn Gott
PROGRESS IN PALLIATIVE CARE
(2020)
Article
Social Work
Sally Paul
CHILDREN & SOCIETY
(2019)
Article
Education & Educational Research
Elaine McManus, Sally Paul
Article
Psychology, Multidisciplinary
Laura del Carpio, Susan Rasmussen, Sally Paul
FRONTIERS IN PSYCHOLOGY
(2020)
