Article
Oncology
Jiaoli Cai, Li Zhang, Denise Guerriere, Hongli Fan, Peter C. Coyte
Summary: This study examined the congruence between preferred and actualized home death among cancer patients receiving home-based palliative care in Canada. The study found that home was the most preferred place of death and increasing the intensity of home-based nursing visits and hours of care provided by personal support workers contributed to achieving a preferred home death. Conversely, a higher intensity of emergency department visits was associated with a lower likelihood of achieving a preferred home death.
Review
Medicine, General & Internal
Sasha Shepperd, Daniela C. Goncalves-Bradley, Sharon E. Straus, Bee Wee
Summary: The evidence suggests that home-based end-of-life care programs can increase the likelihood of patients dying at home. However, the impact of home-based end-of-life care on patient outcomes, symptom control, caregiver satisfaction, and healthcare costs remains uncertain.
COCHRANE DATABASE OF SYSTEMATIC REVIEWS
(2021)
Article
Oncology
Amandine Bertrand, Veronique Veyet, Florence Goy, Marie Cervos, Matthias Schell
Summary: The study found that home nurses play a crucial role in pediatric palliative care, with most of them having reservations about accepting these duties but also showing significant personal involvement in the cases. Key influencing factors include the availability and proactiveness of the HCU team, as well as communication and planning with the families.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Medicine, General & Internal
Bradley Quach, Danial Qureshi, Robert Talarico, Amy T. Hsu, Peter Tanuseputro
Summary: This study compared places of care among recent immigrants and long-standing residents in Canada in the last 90 days of life, finding that recent immigrants were more likely to receive inpatient and intensive care services, while long-standing residents were more likely to spend their last days in long-term care settings.
Article
Health Care Sciences & Services
Debra Lotstein, Margaret J. Klein, Lisa C. Lindley, Joanne Wolfe
Summary: This study investigated the referral practices of a hospital-based pediatric palliative care team to community-based programs. It found that only a minority of patients received referrals, and those in the ICU and with neurologic conditions may be at higher risk of missing appropriate referrals.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Health Care Sciences & Services
Hsien Seow, Pallavi Dutta, Miriam J. Johnson, Kayla McMillan, Dawn M. Guthrie, Andrew P. Costa, David C. Currow
Summary: The study found that the prevalence of breathlessness was higher in home care than in nursing home populations, with a 10% increase in the former over the past decade. The presence of breathlessness was associated with decline in social activities and caregiver distress, highlighting the need for enhanced support to meet increasing patient needs in the community.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2021)
Article
Oncology
Maryam Qureshi, Maggie C. Robinson, Aynharan Sinnarajah, Srini Chary, Janet M. de Groot, Andrea Feldstain
Summary: Studies have found integrated interdisciplinary care to be a key aspect of effective palliative care. Clinicians emphasized the benefits of formalized relationships and collaboration pathways with other services, as well as the need for better training of residents and primary care physicians in the community.
Article
Multidisciplinary Sciences
Susitha A. Wanigaratne, Jennifer Rayner, Richard Glazier, Therese R. Stukel, Hong Lu, Sima Gandhi, Natasha Saunders, Michaela Hynie, Anja Kilibarda, Astrid Guttmann
Summary: Canada has different approaches to refugee resettlement, including government sponsorship, private sponsorship, and a blended approach. This study examines how well private sponsors facilitate primary care navigation for resettled refugees, particularly during the large-scale Syrian resettlement initiative. The findings show that private sponsors had less timely primary care outcomes, while the Syrian resettlement initiative demonstrated successful engagement with the healthcare system.
Article
Multidisciplinary Sciences
Susitha Wanigaratne, Jennifer Rayner, Richard H. Glazier, Therese A. Stukel, Hong Lu, Sima Gandhi, Natasha R. Saunders, Michaela Hynie, Anja Kilibarda, Astrid Guttmann
Summary: This study examines the primary care navigation outcomes among different resettlement models (government-sponsored refugees, privately-sponsored refugees, and blended-visa office referred refugees) in Ontario, Canada. The results suggest that Syrian refugees had slightly earlier primary care visits compared to pre-Syrian era privately-sponsored refugees. Furthermore, Syrian government-sponsored refugees and blended-visa office referred refugees had significantly earlier primary care visits and higher odds of community health center visits compared to pre-Syrian privately-sponsored refugees.
Article
Public, Environmental & Occupational Health
Kuai In Tam, Sok Leng Che, Mingxia Zhu, Sok Man Leong
Summary: This study explored the preferred place of care and death for Chinese residents in Macao. The majority of respondents preferred to be cared for at home in the last 6 months, but only a small proportion preferred to die at home. A significant number of respondents chose hospices or hospitals as their preferred place of death. The study suggests the need for palliative home care services in Macao and emphasizes the importance of education for healthcare professionals.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Public, Environmental & Occupational Health
Jiaoli Cai, Li Zhang, Denise Guerriere, Peter C. Coyte
Summary: Informal care, provided by both primary and non-primary caregivers, plays a crucial role in the care of care-recipients. Primary caregivers, typically spouses and children, bear the main responsibility for care, while non-primary caregivers, comprising others, contribute significantly as well. Suitable interventions are encouraged to balance the work of primary caregivers, promote non-primary care-giving, and effectively arrange formal home-based palliative care services.
HEALTH & SOCIAL CARE IN THE COMMUNITY
(2021)
Article
Oncology
Mathilde Adsersen, Lau Caspar Thygesen, Maria Kristiansen, Maiken Bang Hansen, Mette Asbjoern Neergaard, Morten Aagaard Petersen, Mogens Groenvold
Summary: The ageing population of immigrants in Europe will result in an increased demand for specialised palliative care. However, the admittance of immigrants to specialised palliative care in Europe has not been well studied.
SUPPORTIVE CARE IN CANCER
(2023)
Review
Health Care Sciences & Services
Nanna Maria Hammer, Pernille Envold Bidstrup, Jesper Brok, Minna Devantier, Per Sjogren, Kjeld Schmiegelow, Anders Larsen, Geana Paula Kurita, Marianne Olsen, Hanne Baekgaard Larsen
Summary: This systematic review examined the impact of home-based specialized pediatric palliative care (SPPC) and found that receiving home-based SPPC was associated with an increased likelihood of home death, potentially improved quality of life, and reduced symptom burden. However, the limited number of studies and a high risk of bias in the included studies contribute to a low overall strength of evidence.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Health Policy & Services
Jingjie Xiao, Carleen Brenneis, Konrad Fassbender
Summary: This analysis aims to collectively identify, classify, and prioritize stakeholders who have contributed to national palliative care policies in Canada over the past two decades. The results show that stakeholders from various societal sectors have played a role in national palliative care conversations, but not all organizations have engaged to the same extent. The information gathered can be useful for increasing collaboration between stakeholders and developing more effective engagement strategies.
HEALTH RESEARCH POLICY AND SYSTEMS
(2022)
Article
Health Care Sciences & Services
Bardo Driller, Bente Talseth-Palmer, Torstein Hole, Kjell Erik Stromskag, Anne-Tove Brenne
Summary: In palliative care, having advance care planning (ACP) conversations with cancer patients in primary health care can lead to more days spent at home and a higher likelihood of dying at home. This study found that patients who had ACP conversations in primary health care had more days at home and were four times more likely to die at home. Contact with a hospital-based palliative care team did not have the same effect.
BMC PALLIATIVE CARE
(2022)
Article
Obstetrics & Gynecology
S. Lisonkova, N. Razaz, Y. Sabr, G. M. Muraca, A. Boutin, C. Mayer, K. S. Josep, M. S. Kramer
BJOG-AN INTERNATIONAL JOURNAL OF OBSTETRICS AND GYNAECOLOGY
(2020)
Editorial Material
Public, Environmental & Occupational Health
Marian Knight, K. S. Joseph
PAEDIATRIC AND PERINATAL EPIDEMIOLOGY
(2020)
Editorial Material
Public, Environmental & Occupational Health
K. S. Joseph
PAEDIATRIC AND PERINATAL EPIDEMIOLOGY
(2020)
Article
Multidisciplinary Sciences
K. S. Joseph
Article
Public, Environmental & Occupational Health
Shiliang Liu, Jane Evans, Amelie Boutin, Wei Luo, Mihaela Gheorghe, Nathalie Auger, Laura Arbour, Aideen Moore, K. S. Joseph, Julian Little
Summary: Recent studies have shown that the prevalence rates of gastroschisis in Canada have stabilized compared to previous years. There are significant geographic variations in prevalence rates, with a North-to-South difference. Risk factors for gastroschisis include age, substance misuse, and hypothyroidism.
PAEDIATRIC AND PERINATAL EPIDEMIOLOGY
(2021)
Article
Public, Environmental & Occupational Health
Neda Razaz, Giulia M. Muraca, Katharina Fink, Amelie Boutin, Sid John, Sarka Lisonkova, Olof Stephansson, Sven Cnattingius, K. S. Joseph
Summary: In low-risk pregnancies, birth at 37 or 38 completed weeks' gestation is associated with increased risks of stillbirth, infant mortality, and neurological morbidity, while birth at 39-40 completed weeks is associated with reduced risks compared with births at later gestation.
PAEDIATRIC AND PERINATAL EPIDEMIOLOGY
(2022)
Article
Medicine, General & Internal
Rohan D'Souza, Rebecca J. Seymour, Marian Knight, Susie Dzakpasu, K. S. Joseph, Sara Thorne, Maria B. Ospina, Jon Barrett, Jocelynn Cook, Deshayne B. Fell, Heather Scott, Amy Metcalfe, Thomas van den Akker, Stephen Lapinsky, Leslie Skeith, Beth Murray-Davis, Prakesh Shah, Milena Forte, Rizwana Ashraf, Josie Chundamala, Sarah A. Hutchinson, Kenneth K. Chen, Isabelle Malhame
Summary: This study aims to assess the feasibility of gathering data on severe maternal morbidity (SMM) from maternity units across Canadian provinces and territories, with the goal of establishing a national obstetric survey system for SMM in Canada.
Article
Medicine, General & Internal
Giulia Muraca, K. S. Joseph, Neda Razaz, Linnea Ladfors, Sarka Lisonkova, Olof Stephansson
Summary: This study revealed that factors not included in the Robson classification explain a significant proportion of spatiotemporal differences in CD rates in some Robson groups. Incorporating these factors into explanatory models using the Robson classification may be useful for informing evidence-based public health initiatives regarding CD rates.
Article
Obstetrics & Gynecology
Yasser Sabr, Sarka Lisonkova, Amanda Skoll, Rollin Brant, Maria P. Velez, K. S. Joseph
Summary: The use of assisted reproductive technologies (ART) is associated with an increased risk of severe maternal morbidity and mortality (SMM), including conditions such as severe preeclampsia, HELLP syndrome, eclampsia, severe hemorrhage, and acute renal failure.
JOURNAL OF OBSTETRICS AND GYNAECOLOGY CANADA
(2022)
Article
Public, Environmental & Occupational Health
Sarka Lisonkova, Jeffrey N. Bone, Giulia M. Muraca, Neda Razaz, Amelie Boutin, Justin S. Brandt, Mohamed A. Bedaiwy, Cande Ananth, K. S. Joseph
Summary: The closure of ART clinics during the early pandemic resulted in a significant decline in ART-conceived live births and multiple births, as well as an increase in stillbirths among ART-conceived births. Women who conceived during the early pandemic period also had a higher prevalence of obesity and chronic hypertension.
PAEDIATRIC AND PERINATAL EPIDEMIOLOGY
(2023)
Article
Public, Environmental & Occupational Health
Sid John, K. S. Joseph, John Fahey, Shiliang Liu, Michael S. Kramer
Summary: The assessment of birthweight for gestational age and the identification of small-and large-for-gestational age infants remain contentious. Reference and standard-based birthweight-for-gestational age indices and centiles perform poorly in predicting adverse neonatal outcomes in individual infants, and have limited population impact.
PAEDIATRIC AND PERINATAL EPIDEMIOLOGY
(2023)
Letter
Public, Environmental & Occupational Health
Sarka Lisonkova, Jeffrey N. N. Bone, Giulia M. M. Muraca, Neda Razaz, Amelie Boutin, Justin S. S. Brandt, Mohamed A. A. Bedaiwy, Cande V. V. Ananth, K. S. Joseph
PAEDIATRIC AND PERINATAL EPIDEMIOLOGY
(2023)
Article
Public, Environmental & Occupational Health
Neda Razaz, Sven Cnattingius, Sarka Lisonkova, Shahrzad Nematollahi, Maryam Oskoui, K. S. Joseph, Michael Kramer
Summary: Cerebral palsy (CP) is the most common cause of childhood physical disability, and the causes are largely unknown. Maternal pre-existing chronic disorders and pregnancy complications increase the risk of CP in offspring. Pre-term delivery plays a significant mediating role in the association between maternal disorders and CP.
INTERNATIONAL JOURNAL OF EPIDEMIOLOGY
(2023)
Article
Obstetrics & Gynecology
K. S. Joseph, Sid John, Amelie Boutin, Natalie Scime, Kathleen H. Chaput, Giulia M. Muraca, Neda Razaz, Yasser Sabr, Sarka Lisonkova, Nandini Dendukuri
Summary: The results of a randomized trial comparing induction and expectant management at 39 weeks' gestation suggest that induction may lower adverse perinatal outcomes for low-risk nulliparous women. However, a Bayesian analysis supports this finding and challenges the current obstetric paradigm. Obstetricians need to carefully consider the balance of risks and benefits when deciding between induction and expectant management, with patient autonomy playing a vital role in decision-making.
AMERICAN JOURNAL OF OBSTETRICS & GYNECOLOGY MFM
(2021)
Letter
Obstetrics & Gynecology
Catherine Smith, Flora Teng, Emma Branch, Scally Chu, K. S. Joseph
OBSTETRICS AND GYNECOLOGY
(2020)