Article
Clinical Neurology
Roshaan Salie, Maaike M. Eken, Kirsten A. Donald, A. Graham Fieggen, Nelleke G. Langerak
Summary: The study found that adolescents and adults with CP in urban South Africa have different levels of physical activity compared to typically developing peers, with activity levels associated with GMFCS levels. Those who are more mobile dependent (higher GMFCS level) are less active. Additionally, even ambulant individuals with CP and TD cohorts were relatively inactive. Intervention programs for CP and TD adolescents should focus on strategies to promote lifelong physical activity.
FRONTIERS IN NEUROLOGY
(2021)
Article
Rehabilitation
Ronit Aviram, Natalia Khvorostianov, Netta Harries, Simona Bar-Haim
Summary: The study identified various factors impacting physical activity among individuals with cerebral palsy, including musculoskeletal pain, life skills, availability, and social support. Different attitudes and uses of physical activity were observed among patients from different schools and with varying degrees of learning disabilities.
DISABILITY AND REHABILITATION
(2022)
Article
Pediatrics
Gaela Kilgour, Ngaire Susan Stott, Michael Steele, Brooke Adair, Amy Hogan, Christine Imms
Summary: This study aimed to understand the perspectives of adolescents and their parents on 'being active'. The findings revealed that adolescents and their parents highly value being active in the present and in adulthood. Sustainable participation in physical activity requires adolescents and families to navigate complex environments. The core themes identified in this study were 'Just Doing it', 'Getting the Mix Right', 'Balancing the Continua', and 'Navigating the Systems'. The study concludes that experiences of successful journeys are needed to help adolescents with CP stay on track to sustainable participation.
Article
Rehabilitation
Stephen Leb, Christina Marciniak, Deborah Gaebler-Spira, Liqi Chen, Ariane Garrett
Summary: This study aimed to describe the relationship between activity level and cardiovascular risk measures, as well as the general activity patterns of adults with cerebral palsy. The study found that adults with GMFCS levels I or II who engaged in more activity tended to have more favorable anthropometric profiles, while those with GMFCS levels III, IV, or V did not show a similar trend.
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION
(2022)
Article
Multidisciplinary Sciences
Gerson Ferrari, Leandro F. M. Rezende, Alex A. Florindo, Gregore I. Mielke, Maria Fernanda Tourinho Peres
Summary: The study found that physical activity facilities and school environment are associated with total physical activity and domain-specific physical activity in adolescents. Schools with more sports courts, swimming pools, running tracks, and bike racks were more positively associated with adolescents' total physical activity levels.
SCIENTIFIC REPORTS
(2021)
Article
Rehabilitation
Gaela Kilgour, Ngaire Susan Stott, Michael Steele, Brooke Adair, Amy Hogan, Christine Imms
Summary: This study explores the experiences of adolescents living with cerebral palsy and their parents while participating in physical activity. The perceptions of involvement varied between adolescents and parents, and enjoyment was not always the key attribute of involvement. Optimizing the individuals' involvement continuum is essential for promoting lifelong participation.
DISABILITY AND REHABILITATION
(2023)
Article
Psychology, Multidisciplinary
Jose Manuel Delfa-De-La-Morena, Daniel Bores-Garcia, Adrian Solera-Alfonso, Nuria Romero-Parra
Summary: This study aimed to identify gender and educational stage differences in meeting physical activity requirements and international guidelines among Spanish children and adolescents. The results showed that females and secondary school students reported higher barriers in disliking and time constraints for physical activity compared to males and primary school students.
FRONTIERS IN PSYCHOLOGY
(2022)
Article
Medicine, General & Internal
Jinuk Lee, Min-Hwa Suk, Soojin Yoo, Jeong-Yi Kwon
Summary: This study examines the relationship between the intensity of habitual physical activity (HPA) and health-related quality of life (HRQOL) in school-age children with cerebral palsy (CP). The results showed that physical activity energy expenditure (PAEE) significantly predicted various domains of HRQOL in children with CP.
JOURNAL OF CLINICAL MEDICINE
(2022)
Article
Pediatrics
Carlos Mata, Marcos Onofre, Joao Martins
Summary: During the COVID-19 pandemic, adolescents' routines were significantly impacted, leading to a decrease in their physical activity levels. This study aimed to analyze and compare the barriers perceived by adolescents during the pandemic based on sex, education level, physical activity level, and BMI. It was found that girls, younger individuals, and inactive participants perceived more barriers to physical activity. The study highlights the negative effects of restrictive measures on adolescents' physical activity levels during the pandemic.
Article
Public, Environmental & Occupational Health
Richard Moore, Tim Vernon, Maxine Gregory, Elizabeth Louise Freeman
Summary: This study investigated the barriers to physical activity among inactive English adolescents in secondary schools. Psychological and social barriers were found to affect all activity levels, genders, and ethnic groups. The study also revealed that girls were more likely to experience main barriers compared to boys, while inactive boys were more likely to encounter these barriers compared to active boys. The findings suggest the need to address common barriers and provide personalized support while recognizing demographic differences.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Engineering, Biomedical
Priscilla Lightsey, Yonghee Lee, Nancy Krenek, Pilwon Hur
Summary: Physical therapy treatments incorporating equine movement can help improve functional mobility and balance in children with cerebral palsy. This pilot study found that the movements of children with CP synchronized with the vertical movement of the horse over time, indicating potential benefits for neuromuscular development. The results suggest that equine movement-based therapy can be an effective tool to enhance functional mobility and may offer a unique opportunity for individuals with CP to experience a typical gait pattern.
JOURNAL OF NEUROENGINEERING AND REHABILITATION
(2021)
Article
Pediatrics
Cecilie Schmidt ostergaard, Nanna Sofie Astrup Pedersen, Anne Thomasen, Inger Mechlenburg, Kirsten Nordbye-Nielsen
Summary: The study aimed to identify the prevalence of long-lasting pain among children with cerebral palsy and its association with participation in physical leisure activities. Results showed that a significant proportion of children with CP reported pain, which appeared to negatively impact their participation in physical leisure activities.
Article
Medicine, General & Internal
Christina Esmann Fonvig, Jens Troelsen, Ulrike Dunkhase-Heinl, Jens Martin Lauritsen, Anders Holsgaard-Larsen
Summary: This prospective cohort study aims to investigate potential predictors of habitual physical activity in children and adolescents with cerebral palsy to provide evidence for optimizing physical activity levels and overall health.
Article
Public, Environmental & Occupational Health
Viktoryia Karchynskaya, Jaroslava Kopcakova, Andrea Madarasova Geckova, Daniel Klein, Andrea F. de Winter, Sijmen A. Reijneveld
Summary: Adolescents' physical activity is associated with both body-related and environment-related factors, with stronger associations found in girls and older age groups.
EUROPEAN JOURNAL OF PUBLIC HEALTH
(2022)
Article
Oncology
Ji Young Kim, Samuel Yoo, Su Jin Yeon, Ji Hee Min, Dong-Il Kim, Ji Won Lee, Jung Woo Han, Chuhl Joo Lyu, Justin Y. Jeon
Summary: The study aimed to explore physical activity levels, exercise preferences, and perceived barriers to physical activity in childhood cancer survivors. Most participants did not meet the physical activity recommendations, but they had positive attitudes towards exercise and intended to participate in it. Exercise and physical activity programs should be tailored to the personal health and preferences of childhood cancer survivors.
SUPPORTIVE CARE IN CANCER
(2022)
Review
Clinical Neurology
Christiaan Gmelig Meyling, Olaf Verschuren, Ingrid R. Rentinck, Raoul H. H. Engelbert, Jan Willem Gorter
Summary: This study synthesized evidence on physical rehabilitation interventions for children and young people with acquired brain injuries, finding varying characteristics of frequency and duration, and overall positive results in functional recovery. Further well-designed studies are needed to optimize rehabilitation practice and outcomes.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2022)
Review
Rehabilitation
Jet van der Kemp, Marjolijn Ketelaar, Jan Willem Gorter
Summary: This study provides an overview of environmental factors associated with participation and participation-related constructs in children and youth with cerebral palsy. While environmental factors are found to be associated with participation attendance and activity competence in children with CP, there is a lack of research of environmental factors in relation to both participation involvement and other participation-related constructs.
DISABILITY AND REHABILITATION
(2022)
Review
Rehabilitation
Julia (Shi-Peng) Xiong, Sarah E. Reedman, Michelle E. Kho, Brian W. Timmons, Olaf Verschuren, Jan Willem Gorter
Summary: This study aimed to explore the operationalization and measurement of sedentary behavior in individuals with cerebral palsy. Results showed that sitting and lying are considered sedentary postures in individuals with CP, defined as <= 1.5 METs. There is variability in the tools used to measure SB in this population, highlighting the need for consensus on the definition and reporting of sedentary behavior.
DISABILITY AND REHABILITATION
(2022)
Article
Psychology, Developmental
Andrea Cross, Alice Kelen Soper, Vanessa Tomas, Danijela Grahovac, Julie Brocklehurst, Diane Kay, Sue Baptiste, Jan Willem Gorter, Peter Rosenbaum
Summary: This case study describes the dissemination strategies of the F-words for Child Development and uses the Diffusion of Innovation theory to understand the factors influencing the uptake of this innovation. Through various dissemination strategies and collaboration with families and service providers, the F-words have spread globally.
CHILD CARE HEALTH AND DEVELOPMENT
(2022)
Article
Clinical Neurology
Patrick G. McPhee, Joyce L. Benner, Liam Sanvido, Marij E. Roebroeck, Rita J. Van den Berg-Emons, Wilma M. van der Slot, Olaf Verschuren, Edward A. Hurvitz, Mark D. Peterson, Jan Willem Gorter
Summary: This study aimed to assess the importance of outcome measurement instruments (OMIs) within a core outcome set (COS) for assessing multimorbidity risk in individuals with cerebral palsy (CP). The feasibility of using OMIs in international clinical research settings for CP patients was also investigated. The results showed that poor sleep quality, limited endurance, unhealthy diets, and sedentary behavior were common among CP patients. These outcomes were valued as important by the participants, suggesting a need for assessment and intervention in these areas. Objective measures of physical behavior and endurance in the COS required additional resources and personnel. As a recommendation, healthcare providers should consider using questionnaire-based assessments for initial screening before implementing more resource-intensive assessments.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2022)
Editorial Material
Rehabilitation
Jessica M. Kramer, Jan Willem Gorter
DISABILITY AND REHABILITATION
(2022)
Article
Clinical Neurology
Sandra Abdel Malek, Ronit Mesterman, Lauren Switzer, Briano DiRezze, Gabrielle DeVeber, Darcy Fehlings, Yona Lunsky, Michelle Phoenix, Jan Willem Gorter
Summary: This cross-sectional study aimed to identify factors associated with adaptive behavior in children with hemiplegic cerebral palsy. The results indicated that an autism diagnosis and lower communication functioning were significantly associated with poorer adaptive skills.
EUROPEAN JOURNAL OF PAEDIATRIC NEUROLOGY
(2022)
Article
Medicine, General & Internal
Jan Willem Gorter, Darcy Fehlings, Mark A. Ferro, Andrea Gonzalez, Amanda D. Green, Sarah N. Hopmans, Dayle McCauley, Robert J. Palisano, Peter Rosenbaum, Brittany Speller
Summary: There is a high prevalence of mental health problems and co-occurring physical problems in adolescents and young adults with cerebral palsy (CP). Family functioning, fatigue, and pain are significant predictors of depressive and anxiety symptoms. Cortisol levels in hair samples are not associated with depressive or anxiety symptoms.
JOURNAL OF CLINICAL MEDICINE
(2022)
Review
Audiology & Speech-Language Pathology
Ingrid Singer, Ellen de Wit, Jan Willem Gorter, Margreet Luinge, Ellen Gerrits
Summary: This study investigates the contextual factors that influence communicative participation in children with DLD, and identifies protective, risk, and neutral factors. The findings highlight the importance of considering both personal and environmental factors in supporting communicative participation in children with DLD. However, further research is needed to fully understand the impact of these factors and to develop effective interventions.
INTERNATIONAL JOURNAL OF LANGUAGE & COMMUNICATION DISORDERS
(2023)
Article
Audiology & Speech-Language Pathology
Jael N. Bootsma, Kristine Stadskleiv, Michelle Phoenix, Johanna J. M. Geytenbeek, Jan Willem Gorter, Dayle McCauley, Sara Fiske, Fiona Campbell, Natasha Crews, Barbara Jane Cunningham
Summary: This study assessed the implementation of the Computer-based Instrument for Low-motor Language Testing (C-BiLLT) in the Netherlands, Belgium, and Norway. The study aimed to understand the clinical contexts of C-BiLLT usage and identify barriers and facilitators to its implementation. An online survey was conducted among rehabilitation clinicians, and the results showed that the C-BiLLT was highly acceptable, appropriate, and feasible. It was mainly used with children under 12 years old and those with cerebral palsy. The main facilitator for implementation was clinicians' motivation, while the main barriers were related to resources and complexity of cases.
AUGMENTATIVE AND ALTERNATIVE COMMUNICATION
(2023)
Article
Pediatrics
Cornelia H. Verhage, Jan Willem Gorter, Tim Takken, Manon J. N. L. Benders, Linda S. de Vries, Niek E. van der Aa, Nienke Wagenaar
Summary: This study aims to examine whether accelerometry can quantify the asymmetry of upper limb activity in infants at risk for developing unilateral spastic cerebral palsy. A prospective study was conducted on 50 infants with unilateral perinatal brain injury. The results showed that infants with asymmetrical hand function had a higher asymmetry index for mean upper limb activity compared to infants with symmetrical hand function in all age groups, while the total activity of both upper limbs did not differ. It was concluded that upper limb accelerometry can identify asymmetrical hand function in infants with unilateral perinatal brain injury from 3 months onwards and complement the Hand Assessment for Infants.
PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS
(2023)
Review
Psychology, Developmental
Linda Nguyen, Jael Bootsma, Marjolijn Ketelaar, Briano Di Rezze, Susan M. Jack, Jan Willem Gorter
Summary: The purpose of this review is to identify and analyze the characteristics and outcomes of programs designed to prepare siblings for their future roles with their sibling who has a neurodevelopmental disability. Existing programs often focus on providing information, creating a supportive community, and connecting siblings to resources. However, there is limited understanding of the impacts and outcomes of these programs on siblings.
CURRENT DEVELOPMENTAL DISORDERS REPORTS
(2023)
Article
Rehabilitation
Anke Gerritsen, Raquel Y. Hulst, Ilse M. van Rijssen, Joyce Obeid, Sigrid Pillen, Jan Willem Gorter, Olaf Verschuren
Summary: The study explores the temporal and bi-directional relationship between physical activity and sleep in ambulatory children with cerebral palsy. Data on 24-hour activity and sleep were collected using ActiGraph GT3X accelerometers. The findings indicate a negative association between light and moderate-to-vigorous activity and sleep efficiency and total sleep time the following night, and a positive association between sedentary time and sleep efficiency and total sleep time the following night. Sleep efficiency and total sleep time were positively associated with sedentary time and negatively with moderate-to-vigorous physical activity the following day. Total bedtime and total sleep time were found to be negatively associated with light physical activity the following day. In conclusion, the study suggests a complex relationship between physical activity and sleep in ambulatory children with cerebral palsy, which requires further investigation.
DISABILITY AND REHABILITATION
(2023)
Article
Rehabilitation
Madison L. Giles, Geoff D. C. Ball, Revi Bonder, Annick Buchholz, Jan Willem Gorter, Katherine M. Morrison, Arnaldo Perez, Meaghan Walker, Amy C. Mcpherson
Summary: This study aimed to explore the understanding of bodyweight, health and weight management among children with spina bifida (SB) and their parents, and identify appropriate services and supports for managing their health and weight. Using interpretive description and qualitative analysis, data were collected through individual interviews with children with SB (aged 10-18) and their parents attending Canadian SB clinics. The findings revealed that both children and parents had a weight-centric approach to health, viewing weight as under individual control, primarily through diet. Trusting relationships between healthcare providers, children and families were important in discussing weight.
DISABILITY AND REHABILITATION
(2023)
Article
Pediatrics
Camille F. M. Biemans, Sanne L. Nijhof, Jan Willem Gorter, Gonneke J. W. M. Stevens, Elise van de Putte, Johanna W. Hoefnagels, Anemone van den Berg, Cornelis K. van der Ent, Jeroen Dudink, Olaf W. Verschuren
Summary: This study assessed the sleep quantity and quality of Dutch children with chronic conditions compared to healthy controls and the recommended hours of sleep for youth. The findings showed that children with chronic conditions generally met the recommended amount of sleep, but 22% reported poor sleep quality. It was also found that children with chronic conditions and Medically Unexplained Symptoms (MUS) slept significantly more than healthy controls at certain ages.
EUROPEAN JOURNAL OF PEDIATRICS
(2023)