Journal
MEDICAL LAW REVIEW
Volume 22, Issue 1, Pages 64-86Publisher
OXFORD UNIV PRESS
DOI: 10.1093/medlaw/fwt027
Keywords
bioethics; DNA sequencing; genetic research; genome; research ethics; research findings
Categories
Funding
- Wellcome Trust Award [096599/2/11/Z]
- National Institute for Health Research (NIHR) Oxford Biomedical Research Centre
- [CDGG11a ESRC 07-08]
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This paper discusses the nature of genomic information, and the moral arguments in support of an individuals right to access it. It analyses the legal avenues an individual might take to access their sequence information. The authors describe the policy implications in this area and conclude that, for now, the law appears to strike an appropriate balance, but new policy will need to be developed to address this issue.
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