Journal
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES
Volume 30, Issue 1, Pages 133-142Publisher
ELSEVIER SCIENCE INC
DOI: 10.1016/j.pedn.2014.10.001
Keywords
Patient and family-centered care; Pediatric intensive care unit; Children with complex chronic conditions
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Funding
- individual National Research Service Award from the National Institute for Nursing Research [NIH-5F31NR012093]
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Patient and family-centered care (PFCC) is the foundation for pediatric healthcare. The existence of hospital rules can, however, impact the extent to which PFCC is delivered. This qualitative, grounded theory study identified the existence of explicit and implicit rules in a pediatric intensive care unit, all of which negatively affected the family's ability to receive care that was attentive to their needs. The rules also placed the registered nurse in the challenging position of serving as rule enforcer and facilitator of PFCC. Further work is needed to explore how to adapt the hospital environment to better meet families' needs. (c) 2015 Elsevier Inc. All rights reserved.
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