4.4 Article

Barriers for individuals with spinal cord injury returning to the community: A preliminary classification

Journal

DISABILITY AND HEALTH JOURNAL
Volume 5, Issue 3, Pages 190-196

Publisher

ELSEVIER SCIENCE INC
DOI: 10.1016/j.dhjo.2012.03.005

Keywords

Spinal cord injury; Health care navigation; Barriers after spinal cord injury; Community re-integration

Funding

  1. Department of Education, NIDRR [H133N060028]
  2. Medstar Health Research Institute, Georgetown-Howard Universities Center for Clinical and Translational Science (GHUCCTS)
  3. NCRR, National Institutes of Health (NIH) [U54 RR026076-01]

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Background: With decreased length of stay for inpatient rehabilitation, individuals with newly acquired spinal cord injury (SCI) might be discharged back into the community without the level of knowledge and functional skills necessary to live successfully post injury. This research studied the course of recovery and outcomes after the delivery of a coordinated inpatient rehabilitation system of care for individuals with SCI. Objective: Individuals with newly acquired SCI face numerous barriers during reintegration into the community. The purpose of this article is to identify and develop a preliminary classification of barriers to community reintegration that persons with SCI experience during the post-acute period. Methods: This 1-year study is the qualitative arm of a randomized controlled pilot study. Twenty-six people with SCI participated (mean age 40.6 years, 81% male and 54% tetraplegic). Self-reported data were collected during the first year post discharge from inpatient rehabilitation. Results: The three most common categories of self-reported barriers were mobility and equipment issues (23%), lack of environmental, and home assistance (20%), and insurance issues (18%). The two most common specific barriers were lack of insurance coverage (6.5% of all reported barriers) and residing in a nursing home (5.4%). Conclusion: Our findings provide a preliminary classification of the barriers newly injured persons with SCI encounter during the post-acute period. (C) 2012 Elsevier Inc. All rights reserved.

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