Article
Public, Environmental & Occupational Health
Marta Nemcikova, Zuzana Katreniakova, Iveta Nagyova
Summary: This study aimed to investigate the associations of caregiver burden in informal caregivers of persons living with dementia (PLwD) with perceived social support, positive caregiving experience, and applying therapeutic communication methods. The results showed that higher perceived social support, positive caregiving experience, and caregiving intensity were significantly associated with lower caregiver burden. The associations between caregiver burden and applying two therapeutic communication methods were not significant.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Geriatrics & Gerontology
Judith G. Gonyea, Arden E. O'Donnell
Summary: The study found that negative religious coping has direct and indirect effects on caregivers' depression and anxiety, while positive religious coping does not. Caregivers who questioned God's power, perceived God punishing them, or felt abandoned by God reported higher levels of depression and anxiety.
INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY
(2021)
Article
Geriatrics & Gerontology
Frank Puga, Danny Wang, Meghan Rafford, Abigail Poe, Carolyn E. Z. Pickering
Summary: This study examines the relationships between daily stress, social support, and the mental health of dementia family caregivers. The results showed that caregivers were more likely to report depression and anxiety-related symptoms when faced with more bothersome and frequent behavioral symptoms of dementia. Specific behavioral symptoms were found to increase the daily odds of depression and anxiety symptoms. The study also found that instrumental support decreased the odds of depression symptoms, while emotional support increased the odds of anxiety symptoms on certain days.
AGING & MENTAL HEALTH
(2023)
Article
Geriatrics & Gerontology
Larissa Zwar, Hans-Helmut Koenig, Andre Hajek
Summary: This study examined the mental health, social integration, and social support of informal caregivers of individuals aged ≥60 during the second wave of the COVID-19 pandemic. A cross-sectional study was conducted in Germany, with 3022 adults aged ≥40, including 489 caregivers. The results showed that informal caregivers had higher levels of depressive and anxiety symptoms and more social support compared to non-caregivers. Perceived restrictions by the pandemic moderated the association between caregiving and social support, with stronger support among caregivers perceiving higher restrictions. These findings highlight the need for tailored policies and professional support for informal caregivers during health crises.
ARCHIVES OF GERONTOLOGY AND GERIATRICS
(2023)
Editorial Material
Oncology
Rebecca L. Utz, Echo L. Warner
Summary: Research should focus on understanding the similarities and differences among diverse caregivers to develop supportive policies and programs.
Article
Oncology
Elizabeth G. Bouchard, Mark A. Prince, Christopher McCarty, Paula C. Vincent, Hital Patel, Susan A. LaValley, R. Lorraine Collins, Olle Jane Z. Sahler, Till Krenz, Kara M. Kelly
Summary: This study examined the social network support, composition, and structure among pediatric cancer caregivers. Results showed that family members were the primary source of emotional and logistical support, while healthcare providers were the main source of informational support. Caregivers expressed disappointment with the support received from family members and wished for more support. The level of disappointment in network support was negatively associated with satisfaction in emotional and logistical support. These findings have important implications for designing tailored social network interventions to improve caregiver and family outcomes.
Article
Geriatrics & Gerontology
Jingyi Zhang, Jing Wang, Hua Liu, Chenkai Wu
Summary: This study evaluated the association between comorbidity burden of persons with dementia (PWD) and caregivers' physical, psychological, social, and financial burden. The results showed that comorbidity burden of PWD was associated with caregivers' physical and psychological burden. However, there was no significant association between care recipients' comorbidity burden and their caregivers' social and financial burden or caregiving gain.
Article
Gerontology
Andres Losada-Baltar, Francesca B. Falzarano, David W. Hancock, Maria Marquez-Gonzalez, Karl Pillemer, Cristina Huertas-Domingo, Lucia Jimenez-Gonzalo, Jose A. Fernandes-Pires, Sara J. Czaja
Summary: This study examined the associations between familism and self-efficacy dimensions, as well as levels of burden and depression, among dementia family caregivers in the US and Spain. The results showed that greater family support was related to higher self-efficacy and lower depression in the US sample. However, in the Spanish sample, higher family referent scores were associated with lower self-efficacy and higher depressive symptomatology.
JOURNAL OF AGING AND HEALTH
(2023)
Article
Social Work
Daejun Park, Carmen Morano, Andrea Savage
Summary: This study explored the impact of social support network on caregivers' depressive symptoms, finding that caregivers are influenced by social support and social networks in terms of depressive symptoms, with financial support and higher social contact frequency helping to reduce depressive symptoms.
SOCIAL WORK IN HEALTH CARE
(2021)
Article
Geriatrics & Gerontology
Yaira Hamama-Raz, Rachel Nissanholtz Gannot, Michal Michaelis, Yichayaou Beloosesky, Adaya Nissanholtz
Summary: This study examines the relationship between resilience, caregiving burden, aging anxiety, and negative affect in informal caregivers of older adults. The findings suggest that higher resilience predicts lower caregiving burden, which in turn predicts lower aging anxiety and negative affect. However, the indirect path from resilience to aging anxiety and negative affect was found to be non-significant.
AGING & MENTAL HEALTH
(2023)
Article
Geriatrics & Gerontology
Ling Xu, Yiwei Liu, Hui He, Noelle L. Fields, Dorothea L. Ivey, Chen Kan
Summary: Using the Pearlin stress process model, this study examined the association between caregiving intensity and caregiver burden, finding a nonlinear relationship where burden levels were highest at 14 hours of caregiving per day. Received support, satisfaction with support, and social network were identified as significant buffers for the relationship between caregiving hours and caregiver burden.
ARCHIVES OF GERONTOLOGY AND GERIATRICS
(2021)
Article
Geriatrics & Gerontology
Shilpa Tyagi, Nan Luo, Chuen Seng Tan, Kelvin Bryan Tan, Boon Yeow Tan, Edward Menon, N. Venketasubramanian, Wei Chin Loh, Shu Hui Fan, Kenneth Lam Thuan Yang, Audrey Swee Ling Chan, Aysha Farwin, Zunairah Binti Lukman, Gerald Choon-Huat Koh
Summary: This study investigated caregiver support systems for stroke survivors in Singapore, finding that caregiver identity plays a significant role in determining the type of support needed. Different caregivers preferred different types of support systems, with spouse caregivers favoring dyadic and extended support while adult-child caregivers preferred a distributed system including family members and paid caregivers. Practical implications include providing relationship-building skills to sustain support systems and educating clinicians on differences in caregiving arrangements for stroke survivors.
Article
Geriatrics & Gerontology
Kylie Meyer, Neela Patel, Carole White
Summary: Caregiving within a spousal partnership introduces new stressors and impacts couples' coping abilities and perceptions of emotional support. Research suggests that higher perceptions of emotional support are associated with lower depression scores, while higher perceptions of strain are linked to higher depression scores for both oneself and one's partner.
AGING & MENTAL HEALTH
(2021)
Article
Geriatrics & Gerontology
Carlos Vara-Garcia, Rosa Romero-Moreno, Samara Barrera-Caballero, Maria del Sequeros Pedroso-Chaparro, Isabel Cabrera, Maria Marquez-Gonzalez, Javier Olazaran, Andres Losada
Summary: Caregivers' value profiles, particularly those with a family-values profile, appear to have lower levels of anxiety and ambivalent feelings, as well as a higher commitment to and satisfaction with their chosen values. No differences were found for commitment and satisfaction with the caregiving value.
AGING & MENTAL HEALTH
(2021)
Article
Psychology, Applied
Christian E. Waugh, Calissa J. Leslie-Miller, Elaine Z. Shing, R. Michael Furr, Chandylen L. Nightingale, Thomas W. McLean
Summary: Caregivers of children with chronic illnesses experience elevated stress and reduced self-care. Avoidance coping strategy leads to lower well-being, higher depression, and higher stress, while distraction coping strategy results in higher well-being, lower depression, and lower stress, with strong relationships to positive emotions and personality traits.
Article
Oncology
Katherine Mohsen, John Kildea, Sylvie D. Lambert, Andrea M. Laizner
Summary: Through interviews with nine female cancer patients, this study found that the Opal mobile application has a positive impact on patients, making them feel more empowered, reassured, and fulfilled in their needs. The results suggest that patients may experience increased autonomy when using mobile applications, and healthcare professionals should support and integrate these applications to enhance collaboration between patients and professionals.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Public, Environmental & Occupational Health
Sylvie D. Lambert, Steven Grover, Andrea Maria Laizner, Jane McCusker, Eric Belzile, Erica E. M. Moodie, John William Kayser, Ilka Lowensteyn, Michael Vallis, Mathieu Walker, Deborah Da Costa, Louise Pilote, Cindy Ibberson, Judith Sabetti, Manon de Raad
Summary: The study aimed to assess the feasibility and acceptability of using a Sequential Multiple Assignment Randomized Trial (SMART) to optimize a web-based stress management intervention for patients with cardiovascular disease (CVD). The results showed that SMART procedures were feasible, but attrition rates and satisfaction were issues in the web-only group. Further research and improvement in interventions for non-responders are necessary.
PATIENT EDUCATION AND COUNSELING
(2022)
Review
Oncology
Allan 'Ben' Smith, Verena Shuwen Wu, Sylvie Lambert, Jani Lamarche, Sophie Lebel, Stuart Leske, Afaf Girgis
Summary: Fear of cancer recurrence (FCR) is prevalent and persistent among cancer caregivers. Younger caregivers and those caring for survivors with worse FCR or overall health are at higher risk. Caregivers' FCR levels may be equal to or greater than survivors', and are associated with poorer quality of life.
JOURNAL OF CANCER SURVIVORSHIP
(2022)
Article
Health Care Sciences & Services
Mira Bining, Sydney Wasserman, Lydia Ould Brahim, Eric Belzile, Mona Magalhaes, Sylvie D. Lambert
Summary: This study evaluated the quality, usefulness, therapeutic potential, and security of publicly available apps for supporting unpaid cancer caregivers. The results showed that the apps scored well in terms of quality and privacy, but had lower scores in security and usefulness.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2022)
Article
Public, Environmental & Occupational Health
Jane McCusker, Sylvie D. Lambert, Antonio Ciampi, Jennifer M. Jones, Madeline Li, Mark J. Yaffe, Marie-Eve Pelland, Eric Belzile, Manon de Raad
Summary: The study found that trained lay coaching and the use of tools based on cognitive-behavioral therapy were associated with improved depression outcomes in patients with chronic conditions but not among cancer survivors.
PATIENT EDUCATION AND COUNSELING
(2022)
Article
Environmental Sciences
Maud-Christine Chouinard, Mireille Lambert, Melissa Lavoie, Sylvie D. Lambert, Emilie Hudon, Olivier Dumont-Samson, Catherine Hudon
Summary: This study translated the Brief Health Literacy Screening (BHLS) into French Canadian and evaluated its psychometric properties among patients with chronic conditions in primary care. The results showed that BHLS-FCv demonstrated acceptable psychometric properties and could be used in a population with chronic conditions in primary care.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
(2022)
Article
Oncology
Ashley Wei-Ting Wang, Youngmee Kim, Amanda Ting, Wendy Wing Tak Lam, Sylvie D. Lambert
Summary: The purpose of this international study was to compare the perspectives of healthcare professionals and family caregivers on the unmet needs of cancer patients, and to examine the moderating effect of patients' age group. The results showed that patients had greater unmet needs in medical care compared to caregivers across all age groups. However, pediatric patients had greater unmet needs in spiritual concerns, sexuality/intimacy, and insomnia/fatigue compared to caregivers, while adolescent and young adult patients had greater unmet needs in symptom management. The other unmet needs of patients were similar to those of caregivers regardless of age groups.
SUPPORTIVE CARE IN CANCER
(2023)
Review
Oncology
Lydia Rosa Bourdache, Lydia Ould Brahim, Sydney Wasserman, Marrah Nicolas-Joseph, Francesca Y. E. Frati, Eric Belzile, Sylvie D. Lambert
Summary: The study evaluated the quality, readability, suitability, and usefulness of publicly available resources for adult cancer survivors who completed primary treatment. The resources were assessed for quality, readability, suitability, and usefulness, and the highest-scoring resources were identified. The findings showed fair quality and suitability, but readability exceeded recommended levels. Only one resource had a superior score in both quality and suitability. The study highlights the need for accessible resources that address the unmet needs of cancer survivors.
JOURNAL OF CANCER SURVIVORSHIP
(2023)
Article
Geriatrics & Gerontology
Jane McCusker, Rebecca N. Warburton, Sylvie D. Lambert, Eric Belzile, Manon de Raad
Summary: The ISAR-R tool is a potentially useful risk stratification tool to predict readmission in older adults who were discharged home from the hospital.
Article
Psychology, Multidisciplinary
Sylvie D. Lambert, Susan J. Bartlett, Jane McCusker, Mark Yaffe, Antonio Ciampi, Eric Belzile, Manon de Raad
Summary: This study aimed to develop and conduct a preliminary psychometric analysis of the CanSMART questionnaire among a diverse, multimorbid Canadian population. Results showed that the questionnaire exhibited good reliability and validity, but there were also areas for improvement. This work provides the basis for further scale development and use in research and clinical practice.
Review
Health Care Sciences & Services
Maxime Sasseville, Wilfried Supper, Jean -Baptiste Gartner, Geraldine Layani, Samira Amil, Peter Sheffield, Marie -Pierre Gagnon, Catherine Hudon, Sylvie Lambert, Eugene Attisso, Victoria Bureau Lagarde, Mylaine Breton, Marie-Eve Poitras, Pierre Pluye, Pierre-Henri Roux-Levy, James Plaisimond, Frederic Bergeron, Rachelle Ashcroft, Sabrina Wong, Antoine Groulx, Nicolas Beaudet, Jean-Sebastien Paquette, Natasha D'Anjou, Sylviane Langlois, Annie Leblanc
Summary: This study aims to conduct a systematic review of the impact of electronic patient-reported outcome measures (ePROMs) implementation in primary health care for chronic disease management. The research methods include literature review and data extraction, using a mixed methods synthesis design. The preliminary search strategy has been completed in September 2022, and the main search strategy and data collection will be completed between October and December 2022.
JMIR RESEARCH PROTOCOLS
(2023)
Article
Oncology
Sydney Wasserman, Lydia Ould Brahim, Ameer Attiya, Eric Belzile, Sylvie D. Lambert
Summary: This study evaluated the quality and usefulness of interactive mobile health applications (apps) for adults with cancer. The findings revealed that the apps had an average quality score of 3.62/5 and an average usefulness score of 50%.
Article
Health Care Sciences & Services
Kerrie Clover, Sylvie D. Lambert, Christopher Oldmeadow, Benjamin Britton, Alex J. Mitchell, Gregory Carter, Madeleine T. King
Summary: The study confirmed the validity of PROMIS anxiety measures in cancer patients, showing them to be equivalent to traditional measures but not demonstrating any clear advantages.
JOURNAL OF PATIENT-REPORTED OUTCOMES
(2022)
Article
Oncology
Sylvie D. Lambert, Lindsay R. Duncan, S. Nicole Culos-Reed, Laura Hallward, Celestia S. Higano, Ekaterina Loban, Anne Katz, Manon De Raad, Janet Ellis, Melissa B. Korman, Carly Sears, Cindy Ibberson, Lauren Walker, Eric Belzile, Paramita Saha-Chaudhuri, Helen McTaggart-Cowan, Stuart Peacock
Summary: This pilot study evaluated a tailored web-based self-management program for men with prostate cancer and their caregivers. The program showed feasibility and acceptability and demonstrated clinical significance for caregivers' anxiety and quality of life.
Article
Psychology, Multidisciplinary
Kerrie Clover, Sylvie D. Lambert, Christopher Oldmeadow, Benjamin Britton, Madeleine T. King, Alex J. Mitchell, Gregory L. Carter
Summary: This study compared three commonly used anxiety measurement tools and found differences in how they measure anxiety. The categorical classifications of anxiety severity (mild/moderate/severe) were not equivalent across instruments, resulting in varying prevalence estimates of anxiety symptoms depending on the instrument used.
CURRENT PSYCHOLOGY
(2022)