Review
Oncology
Asha Mathew, Ardith Z. Doorenbos, Min Kyeong Jang, Patricia E. Hershberger
Summary: ACT intervention has been found effective in reducing anxiety, depression, and fear of cancer recurrence among cancer survivors. However, more methodologically rigorous studies are needed to further explore the effects of ACT on other symptoms such as pain and insomnia.
JOURNAL OF CANCER SURVIVORSHIP
(2021)
Review
Oncology
Veerle Marieke Wintraecken, Sophie Vulik, Sabine de Wild, Carmen Dirksen, Linetta B. Koppert, Jolanda de Vries, Marjolein L. Smidt
Summary: This study examined the relationship between personality and quality of life (QoL) in women with non-metastatic breast cancer. The results showed that personality has a small to moderate effect on QoL, with optimism and trait anxiety being the most influential personality traits in the psychosocial QoL domain.
Review
Oncology
Salvatore Ficarra, Ewan Thomas, Antonino Bianco, Ambra Gentile, Petra Thaller, Fulvio Grassadonio, Sofia Papakonstantinou, Thorsten Schulz, Nils Olson, Alexandra Martin, Christian Wagner, Anna Nordstrom, Hande Hofmann
Summary: Exercise interventions appear to be effective in preventing the decline of physical fitness variables such as cardiorespiratory fitness, strength, fatigue, and health-related quality of life in breast cancer patients. Additionally, these interventions can improve physical function in breast cancer survivors. Resistance training and combined interventions show promising results for the selected outcomes.
Review
Health Care Sciences & Services
Pingyu Chen, Hudson M. Melissa, Minghui Li, I-Chan Huang
Summary: This meta-analysis compared health utilities (HU) in relation to clinical parameters for pediatric cancer patients and survivors, highlighting poorer HUs compared to general populations. It emphasized the importance of selecting appropriate HUs for economic evaluations and offering interventions to minimize HU deficits for specific cancer populations.
QUALITY OF LIFE RESEARCH
(2022)
Review
Public, Environmental & Occupational Health
N. Moshina, R. S. Falk, S. Hofvind
Summary: This study aimed to explore the long-term quality of life (QoL) among breast cancer survivors eligible for mammographic screening at diagnosis and compare that to QoL among women with no history of breast cancer. The meta-analysis showed no significant differences in QoL for breast cancer survivors compared with women with no history of breast cancer. The findings suggest that there is no significant difference in QoL between breast cancer survivors and women without a history of breast cancer.
Review
Oncology
Irati Rodriguez-Matesanz, Leire Ambrosio, Marta Domingo-Osle, Nerea Elizondo-Rodriguez, Virginia La Rosa-Salas, Cristina Garcia-Vivar
Summary: This study found that nursing interventions may improve the quality of life for cancer survivors, but due to the limited number of studies, the findings should be interpreted with caution. Further research is needed to strengthen effective nursing interventions in cancer practice, particularly for long-term survivors.
Article
Oncology
Erika Rees-Punia, Alpa Patel, Joseph R. Nocera, Sicha Chantaprasopsuk, Wendy Demark-Wahnefried, Corinne R. Leach, Tenbroeck G. Smith, David Cella, Susan M. Gapstur
Summary: The study found that increasing MVPA and reducing sitting time are crucial for improving health in older adults, regardless of prior cancer diagnosis.
Review
Health Care Sciences & Services
Paula Irurita-Morales, Nelia Soto-Ruiz, Leticia San Martin-Rodriguez, Paula Escalada-Hernandez, Cristina Garcia-Vivar
Summary: Telehealth is a feasible modality for cancer survival care. However, interventions for long-term survivors are lacking and the social and spiritual spheres of quality of life are often neglected.
TELEMEDICINE AND E-HEALTH
(2023)
Review
Oncology
Irene Rodriguez-Guidonet, Paula Andrade-Pino, Carlos Monfort-Vinuesa, Esther Rincon
Summary: This article is the first systematic review to evaluate the impact of avatar-based treatments on the quality of life and psychological well-being in breast cancer patients. The results suggest that using avatar-based strategies can improve patients' quality of life and psychological well-being, which is innovative for breast cancer treatment.
Article
Psychology, Multidisciplinary
Giulia Agostinelli, Barbara Muzzatti, Samantha Serpentini, Michele Spina, Maria Antonietta Annunziata
Summary: This study examined psychological distress in lymphoma survivors and identified variables associated with it, such as gender, living situation, diagnosis type, treatment methods, sleep quality, exercise frequency, and medication use. Early identification of anxiety and depression is important to provide timely psychological support to those in need.
FRONTIERS IN PSYCHOLOGY
(2022)
Article
Oncology
Maria Barca-Hernando, Andres J. Munoz-Martin, Eduardo Rios-Herranz, Ignacio Garcia-Escobar, Carmen Beato, Carme Font, Estefania Oncala-Sibajas, Alfonso Revuelta-Rodriguez, Maria Carmen Areses, Victor Rivas-Jimenez, Aitor Ballaz-Quincoces, Maria Angeles Moreno-Santos, Juan-Bosco Lopez-Saez, Iria Gallego-Gallego, Teresa Elias-Hernandez, Maria Isabel Asensio-Cruz, Leyre Chasco-Eguilaz, Gonzalo Garcia-Gonzalez, Purificacion Estevez-Garcia, Lucia Marin-Barrera, Remedios Otero-Candelera, Sergio Lopez-Ruz, Jorge Lima-Alvarez, Jose Maria Sanchez-Diaz, Macarena Real-Dominguez, Maria Carmen Borrego-Delgado, Samira Marin-Romero, Luis Jara-Palomares
Summary: Anemia's impact on the quality of life (QoL) of cancer patients was analyzed using specific questionnaires, revealing that cancer patients with anemia had significantly worse QoL both clinically and statistically.
Review
Oncology
Hua Jiang, Jianxia Lyu, Wenxuan Mou, Qinghua Jiang, Jiali Du
Summary: Over the past decade, the number of cancer cases has increased, posing difficulties for patients' families and healthcare systems. While innovative treatments have improved patient outcomes, the financial burden of treatment is a concern for oncologists. This systematic review aims to examine the relationship between financial toxicity and the quality of life of cancer survivors, considering factors that may influence this relationship.
ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY
(2023)
Review
Oncology
Avril Deegan, Ciara Brennan, Pamela Gallagher, Veronica Lambert, Simon Dunne
Summary: ObjectiveResearch has highlighted the importance of social support for child and adolescent cancer survivors, emphasizing its protective role in coping with stress and challenges. While social support tends to decrease over time, its significance remains even years after treatment. This review aimed to analyze existing evidence on social support in this population. MethodsA systematic search was conducted across multiple databases to identify relevant quantitative studies. ResultsTen studies met the eligibility criteria, revealing that family and friends, particularly parents, are crucial sources of social support. Social support was associated with positive outcomes such as posttraumatic growth and school re-entry, while also reducing psychological distress. However, inconsistencies were noted regarding gender, age, and group differences. Methodological concerns were identified, including small sample sizes and lack of measurement consistency. ConclusionsFuture research should address these limitations to inform interventions and support strategies for child and adolescent cancer survivors.
Review
Oncology
Sophie Van Dijck, An De Groef, Janan Kothari, Lore Dams, Vincent Haenen, Nathalie Roussel, Mira Meeus
Summary: Barriers and facilitators to physical activity in cancer survivors with pain can be categorized into six domains: logistical, symptoms, cognitive, clinical, social, and knowledge domain. The barrier of pain distinguishes itself and brings along additional obstacles such as anxiety, fear, and avoidance behavior. Current evidence is limited and mostly focused on female breast cancer survivors. Further research in larger cohorts representing various subsets of cancer survivors with pain is needed, as well as studies that implement these insights in physical activity interventions.
SUPPORTIVE CARE IN CANCER
(2023)
Article
Psychology, Multidisciplinary
Linda Cole, Julie Easley, Leslie Grightmire, Ellil Mathiyan Lakshmanan, Sharon J. Matthias, Karen McBoyle, Emily Piercell, Amelia Purdy, Nancy Schneider, Richard J. Wassersug, Rosemary Martino, Margaret I. Fitch
Summary: The perspectives of cancer survivors offer valuable insights into the experiences of being diagnosed and treated for cancer, highlighting the importance of communication and support in providing person-centered cancer care.
FRONTIERS IN PSYCHOLOGY
(2022)
Article
Dentistry, Oral Surgery & Medicine
A. Miroshnychenko, C. Rae, K. Wong Riff, C. R. Forrest, T. Goodacre, M. C. Swan, R. Slator, J. Goldstein, A. Thoma, K. Harman, A. Klassen
Summary: This study aimed to examine the internal responsiveness and estimate the minimally important differences (MIDs) for CLEFT-Q scales in cleft-related surgeries. The results showed that CLEFT-Q detected changes in key outcomes for three specific surgeries, and the estimated MIDs will aid in interpreting patient-reported outcomes.
CLEFT PALATE CRANIOFACIAL JOURNAL
(2023)
Article
Dentistry, Oral Surgery & Medicine
Anna Miroshnychenko, Charlene Rae, Karen Wong Riff, Christopher Forrest, Tim Goodacre, Marc Swan, Rona Slator, Jesse Goldstein, Achilleas Thoma, Karen Harman, Anne Klassen
Summary: The study aimed to examine the cross-sectional construct validity of the CLEFT-Q scales and found that the instrument has good psychometric properties.
CLEFT PALATE CRANIOFACIAL JOURNAL
(2023)
Article
Oncology
Johann M. I. Graham, Selina X. Dong, Julia Y. Kinahan, Stephanie Sutherland, Dennis Newhook, Yamilee V. Hebert, Robert J. Klaassen
Summary: This study aimed to assess the relevance of existing PROMs for pediatric hematology patients and evaluate the receptivity of electronic PROM integration into clinical practice. Through focus groups and interviews with children, parents, and healthcare professionals, strong support for disease-specific PROMs and universal support for electronic PROM integration was observed.
JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY
(2023)
Article
Hematology
Carlton D. Dampier, Marilyn Jo Telen, Ted Wun, R. Clark Brown, Payal Desai, Fuad El Rassi, Beng Fuh, Julie Kanter, Yves Pastore, Jennifer Rothman, James G. Taylor, David Readett, Krupa M. Sivamurthy, Brinda Tammara, Li-Jung Tseng, Jay Nelson Lozier, Helen Thackray, John L. Magnani, Kathryn L. Hassell
Summary: This study evaluated the efficacy and safety of rivipansel in vaso-occlusive crisis (VOC) requiring hospitalization. The results showed that rivipansel did not significantly impact the primary end point, but early treatment with rivipansel after pain onset can accelerate the resolution of acute VOC.
Article
Oncology
Michele Morfouace, Marinka L. F. Hol, Reineke A. Schoot, Olga Slater, Daniel J. Indelicato, Frederic Kolb, Ludwig E. Smeele, Johannes H. M. Merks, Charlene Rae, Heleen Maurice-Stam, Anne F. Klassen, Martha A. Grootenhuis
Summary: This study explored patient-reported outcomes in head and neck rhabdomyosarcoma (HNRMS) survivors and assessed the relationship between physician grading of adverse events (AE) and patient reporting. The findings highlight the importance of incorporating patient-reported outcome measures in survivorship follow-up, as physician-graded AEs are not sufficient to provide tailored care for HNRMS survivors.
Article
Hematology
Joel Livingston, Ziyad Alrajhi, Melanie Jackson, Catherine McGuire, Dennis Newhook, Robert J. Klaassen, Melanie Kirby-Allen
Summary: This study suggests that the use of TPO-RA in children with ITP improves quality of life by boosting mood and increasing participation in activities. However, concerns were raised about the cost, administration, and potential side effects of TPO-RA medication.
BRITISH JOURNAL OF HAEMATOLOGY
(2023)
Article
Surgery
Lucas Gallo, Rakhshan Kamran, Charlene Rae, Shelby Deibert, Sophocles H. Voineskos, Karen W. Y. Wong Riff, Anne F. Klassen
Summary: This study investigates the impact of completing the FACE-Q Craniofacial Module on patients, especially children. The results show that most patients have a neutral response to the questionnaire, and only a small proportion of patients have negative responses. It is found that increased craniofacial severity, more scales completed, and lower FACE-Q scores are associated with negative responses.
PLASTIC AND RECONSTRUCTIVE SURGERY
(2023)
Article
Surgery
Inge Apon, Nikki van Leeuwen, Maarten J. Koudstaal, Alexander C. Allori, Carolyn R. Rogers-Vizena, Eppo B. Wolvius, Anne F. Klassen, Sarah L. Versnel
Summary: This study assessed the correlations between the CLEFT-Q psychosocial scales and explored their associations with patient characteristics and psychosocial care referral. Strong correlations were observed between social function and psychological function as well as school function scales. Therefore, it is suggested to remove the social function scale from the International Consortium for Health Outcomes Measurement Standard Set for cleft.
PLASTIC AND RECONSTRUCTIVE SURGERY
(2023)
Article
Surgery
Claire E. E. de Vries, Elena Tsangaris, Dennis J. S. Makarawung, Aebele B. Mink van der Molen, Ruben N. van Veen, Maarten M. Hoogbergen, Andrea L. Pusic, Caroline B. Terwee, Stefan Cano, Anne F. Klassen
Summary: This study examined the validity and reliability of the Dutch version of the BODY-Q for use in bariatric and body contouring patients in the Netherlands. The results showed that most scales have good targeting and model fit, and the impact of differential item functioning by language was negligible. The Dutch BODY-Q can be used in both national and international research and clinical practice.
AESTHETIC SURGERY JOURNAL
(2023)
Article
Surgery
Sophocles H. H. Voineskos, Lucas Gallo, Manraj Kaur, Elena Tsangaris, Lauren Griffith, Jonas A. A. Nelson, Anne F. F. Klassen, Andrea L. L. Pusic
Summary: This study identifies patient characteristics associated with increased cancer worry, fatigue, and a negative impact on work following a breast cancer diagnosis. Factors such as younger age, shorter time since diagnosis, pain related to cancer/treatment, recurrence, prior chemotherapy, and ongoing breast edema are significantly associated with increased worry, fatigue, and impact on work. These findings are important for guiding support and interventions for breast cancer patients.
Article
Health Care Sciences & Services
Manraj N. Kaur, Sabrina Chan, Louise Bordeleau, Toni Zhong, Elena Tsangaris, Andrea L. Pusic, Stefan J. Cano, Anne F. Klassen
Summary: The study aimed to re-examine the content validity of the BREAST-Q cancer modules and determine the need for new scales. Interviews with breast cancer patients revealed that most satisfaction scores correlated with the original BREAST-Q, except for breast sensation and lymphedema. New scales for upper extremity lymphedema, breast sensation, fatigue, cancer worry, and work impact were developed.
JOURNAL OF PATIENT-REPORTED OUTCOMES
(2023)
Article
Dermatology
Anne F. Klassen, Charlene Rae, Maureen O'Malley, Trisia Breitkopf, Leah Algu, Jasmine Mansouri, Claire R. Brown, Yi Wang, Shari R. Lipner
Summary: This study designed and tested a rigorously developed PROM, the NAIL-Q, to measure nail appearance, health-related quality of life, and treatment outcomes. It can be used in clinical practice to inform patient care and include the patient perspective in research.
CLINICAL COSMETIC AND INVESTIGATIONAL DERMATOLOGY
(2023)
Article
Surgery
Farima Dalaei, Claire E. E. de Vries, Stefan J. Cano, Manraj N. Kaur, Lotte Poulsen, Andre Pfob, Danny Mou, Jussi P. Repo, Rosa Salzillo, Jakub Opyrchal, Jens A. Sorensen, Andrea L. Pusic, Anne F. Klassen
Summary: This study examined the psychometric properties of the patient-reported outcome measure BODY-Q in a normative population. The results showed that the BODY-Q scales had acceptable reliability and validity in the normative sample, and can be used as reference values in research and clinical practice.
PLASTIC AND RECONSTRUCTIVE SURGERY-GLOBAL OPEN
(2023)
Review
Clinical Neurology
S. Ombashi, E. Tsangaris, A. G. Heeres, V. van Roey, R. F. Neuteboom, M. L. C. van Veelen-Vincent, K. Jansson, I. M. J. Mathijssen, A. F. Klassen, S. L. Versnel
Summary: This study conducted a systematic literature review to examine the current use of Patient-Reported Outcome Measures (PROMs) and identify the impact of headaches on the quality of life (QoL) of children, as well as the determinants of QoL.
JOURNAL OF HEADACHE AND PAIN
(2023)
Article
Surgery
Louise Marie Beelen, Elena Tsangaris, Anne-Margreet Van Dishoeck, Andrea L. Pusic, Anne F. Klassen, Dalibor Vasilic
Summary: This study aims to translate and culturally adapt the LYMPH-Q Upper Extremity Module into Dutch. The translation process followed the guidelines of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) and included forward translations, back translations, and cognitive debriefing interviews. The resulting Dutch version of the LYMPH-Q has good content validity.
EUROPEAN JOURNAL OF PLASTIC SURGERY
(2023)
