Review
Pediatrics
Simonetta Papa, Anna Mercante, Luca Giacomelli, Franca Benini
Summary: The assessment of needs and outcomes in pediatric palliative care (PPC) is challenging due to its multidimensional nature, low patient population, heterogeneity of diseases, cognitive impairment in patients, and physiological development of children. Standardized and validated tools are needed to assess needs, symptom severity, and PPC service quality. This review discusses current tools used in PPC and proposes a classification into eligibility tools, patient and family needs assessment tools, and care assessment tools.
Article
Oncology
Nobuhisa Nakajima
Summary: This study aimed to explore the applicability of IPOS-J in clinical practice and compare its effectiveness with STAS-J evaluation.
Article
Critical Care Medicine
Guido Michels, Manuela Schallenburger, Martin Neukirchen, ICU Palliative Study Grp
Summary: A consensus process is underway in Germany to develop recommendations on palliative care in intensive care for non-oncological patients, aiming to address the needs of patients with advanced diseases.
Article
Surgery
Katherine C. Lee, Anne M. Walling, Steven S. Senglaub, Rachelle Bernacki, Lee A. Fleisher, Marcia M. Russell, Neil S. Wenger, Zara Cooper
Summary: This study aimed to develop a set of quality indicators to measure access to and the quality of primary palliative care (PC) delivered to seriously ill surgical patients. After two rounds of rating by an expert panel, a total of 24 indicators were rated as valid, covering various phases of surgical care.
Article
Medicine, General & Internal
Shuqin Zhu, Hanfei Zhu, Xintong Zhang, Kouying Liu, Zumei Chen, Xiaowen Yang, Changxian Sun, Weiping Xie, Qin Xu, Weiying Li, Dong Pang, Yan Cui, Hong Wang
Summary: The study aimed to investigate the care needs of dying patients and their family caregivers in hospice and palliative care in mainland China. A total of 18 articles were included, identifying that patients need a comfortable experience and family caregivers need to care for patients and themselves.
Review
Health Care Sciences & Services
Catriona R. Mayland, Katy A. Sunderland, Matthew Cooper, Paul Taylor, Philip A. Powell, Lucy Zeigler, Vicki Cox, Constance Gilman, Nicola Turner, Kate Flemming, Lorna K. Fraser
Summary: This study aimed to identify tools that measure the quality of dying, death, and end-of-life care for children and young people, and describe the content, validity, and reliability of these tools. A scoping review identified 11 tools reported in 18 studies. Most of these tools were completed by primary caregivers or healthcare professionals as 'proxy' assessments and focused on aspects such as quality of life and preparation for death. However, there was limited inclusion of items related to cultural aspects of care, grief, and financial costs. Only a small number of tools had undergone psychometric testing within a paediatric palliative care setting.
PALLIATIVE MEDICINE
(2022)
Article
Health Care Sciences & Services
Joachim Cohen, Kirsten Hermans, Charless Dupont, Lieve van den Block, Luc Deliens, Kathleen Leemans
Summary: This study evaluated the quality of palliative care in 36 Belgian palliative care teams and found large risk-adjusted variations between teams in multiple quality indicators. The results suggest the importance of repeated and standardized quality improvement evaluations to identify areas in palliative care delivery that need improvement and to allow teams to benchmark themselves against each other.
PALLIATIVE MEDICINE
(2021)
Article
Gastroenterology & Hepatology
Roberta Jordan, Yousuf ElMokhallalati, Lynsey Corless, Michael Bennett
Summary: Patients with liver disease face difficulties in accessing end-of-life care, with a higher percentage of them dying in hospitals and receiving less specialized palliative care compared to those with malignant liver disease. Caregivers of patients with non-malignant liver disease were less likely to rate the quality of end-of-life care as outstanding/excellent.
LIVER INTERNATIONAL
(2023)
Article
Education & Educational Research
Susan Neilson, Duncan Randall, Katrina McNamara, Julia Downing
Summary: The Children's Palliative Care Education and Training Action Group was formed in 2019 in the UK and Ireland to develop a revised competency framework for children's palliative care. The group identified four levels of knowledge and skills, developed learning outcomes for each level, and created an audit tool template for program quality assurance. The framework has been made available on the International Children's Palliative Care Network website for international access.
BMC MEDICAL EDUCATION
(2021)
Article
Hematology
Alice Crabtree, Emily Kavanagh, Charlotte Chamberlain, Donna Wakefield, Rhian Daniel, Guy Schofield, Angela Star, Sarah Yardley, Imogen Whyte, Christina Chu, Hannah Billett, Simon Noble
Summary: The majority of patients in the UK followed thromboprophylaxis guidelines, but there were significant differences in patient demographics according to the place of admission.
THROMBOSIS RESEARCH
(2023)
Article
Health Care Sciences & Services
Grant M. Smith, Brook A. Calton, Michael W. Rabow, Angela K. Marks, Kara E. Bischoff, Steven Z. Pantilat, David L. O'Riordan
Summary: Patients seen by palliative care teams at home have worse function and are more likely to be referred for care planning, while patients seen in clinic have more palliative care needs related to pain and symptom management. Both populations have significant palliative care needs that require appropriately staffed interdisciplinary teams to address.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2021)
Editorial Material
Multidisciplinary Sciences
Michael Gusenbauer
Summary: Generative AI has the potential to benefit literature search, but it is crucial that independent groups examine its biases and limitations.
Article
Health Care Sciences & Services
Jaan Nandwani, Jennifer M. Maguire, Maggie Rogers, Diane E. Meier, Arif H. Kamal
Summary: The study found a significant association between access to specialty palliative care and hospital rankings in the 2020-2021 U.S. News & World Report Best Hospitals, with higher-ranked hospitals more likely to offer outpatient palliative care services. Further research is needed to determine the specific impact of access to palliative care on hospital rankings.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2021)
Article
Health Care Sciences & Services
Jori F. Bogetz, Emily Johnston, Prasanna Ananth, Arika Patneaude, Rachel Thienprayoon, Abby R. Rosenberg
Summary: In pediatric palliative care, more than half of the participants reported involvement in quality improvement activities despite limitations in staffing, training, and standardized measures, presenting challenges to this work.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2022)
Review
Health Care Sciences & Services
Katherine C. Lee, Claire M. Sokas, Jocelyn Streid, Steven S. Senglaub, Kathleen Coogan, Anne M. Walling, Zara Cooper
Summary: This systematic review identified 263 unique quality indicators from 26 studies, with 70% being process measures. The most common indicators addressed Care of the Patient Near the End of Life (31.5%) and Physical Aspects of Care (20.8%), while Spiritual (2.6%) and Cultural Aspects of Care (1.2%) were the least common. Methodological quality varied widely across studies, with many lacking input from target populations and few discussing practical application.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2021)